WELCOME TO YAP SPACE

Welcome to our website area for social networking with members of our Australian kidney community - where Aussies and others world wide with a connection to CKD can meet, chat, share and support each other. We hope this may alleviate some isolation felt when living with a chronic condition. It is important to share your story - you are not alone!

YAP Space is regularly monitored and moderated by staff from our highly qualified health team.
If you have questions but prefer a private reply confidentially - email info@kidney.org.au and a Health Manager can supply information via email. 

• Register to interact on YAP Space now - when you complete the registration process, an email to you will confirm your registration (we do this as quickly as possible).
• Read our Terms of Reference and Rules of Conduct to understand your agreed responsibilities.
• See our Privacy Policy defining the confidential management of your information. 

YAP FORUM  Logon to post - have your say on thread subjects, or start a new one.
YAP CHAT  Logon anytime - make arrangements with a friend who is also a registered Yapper to meet online. (Access for those registered is available 24 hours a day (hint - login round 7 pm)

• General YAP Chat - connect with others to chat about anything 'kidney' related or just hang out .
• Private YAP Chat - for kidney health professionals, consumers, patient groups, educators - connect to a free pre-booked chatroom to discuss topics privately. Email info@kidney.org.au to book.

YOUR KIDNEY BLOG  No registration, start blogging now - speak out, have your say
Your entry may be moderated if it does not fulfil our Terms of Reference and Rules of Conduct. Click on topic link below - enter blog note in box at bottom of blog page - tick agreement to upload your comment.

Topics:  Bloggers from our 'kidney' community  I  Donor Compensation   I   Home dialysis  I  Organ Donation  I  Patient Transport 

NOTE - Material posted is reviewed - personal ID, contact information, health information which is not evidence based or product promotions must not be displayed. We encourage free and creative expression, however in any environment where people are given this freedom, conflict may arise. If an author uses language or materials that offend it will not be displayed. Do not post content that is unlawful, harmful, threatening, abusive, harassing, defamatory, vulgar, obscene, libelous, invasive to another's privacy, hateful, or racially, ethnically or otherwise objectionable. Treat other people's privacy as you would your own.

YOUR KIDNEY COMMUNITY ONLINE

If you use a 'kidney' related support group online, a kidney health education webpage or YouTube education video you have found helpful, email teresa.taylor@kidney.org.au so we can review it for listing on our recommended links.

  Like us at Kidney Health Australia 

KidneyHealthAus www.youtube.com/user/KidneyHealthAus
We offer some videos uploaded by us for your information related to our kidney community.

KidneyHealthAus KidneyEd TV - our YT Playlists
We've selected high quality education YouTube videos and put them together in grouped playlists. View videos produced for education, some featuring amazing animations - Kidney and urinary systems in the body. There are several education playlists available (to ensure high quality content) of interest to anyone who wants to learn more about their kidneys and chronic kidney disease.

 Support Groups, Message Boards, Social Networking

General Message Boards and Support Groups

• Australian Dialysis Buddies  Online dialysis support forum  Registration via Yahoo Groups
• BigDandMe  Aussie Kidney Dialysis Blog - Melbourne
• Canberra Region Kidney Support Group Inc 
• ChIPS Support program for 12-25 year olds living with chronic illness, which offers valuable support to those involved ( Royal Children's Hospital, Melbourne)
• From the Sharp End of the Needle  List of global CKD Blogospheres and other goodies
• Home Dialysis Central - Message Board USA - supported by Aussie health professionals
• Kidney Blog - Kidney Health Australia  No registration
  Current topics:  Bloggers from our 'kidney' community  I  Donor Compensation  I  Early Detection and Prevention  I   Home dialysis  I  Organ Donation  I  Patient Transport 
• Kidney Cancer Forum  USA - Register to interact on this extensive Message Board 
• Kidney Community Blog Stanford University USA
• Kidneyspace USA Kidney Forum online
• MyKidney USA blog and online chat site
• National Kidney Federation UK - Talkline  Range of topic areas, including a Young Persons group
• National Kidney Foundation USA Topics: Transplant athletics, Donor families, Living donors
  Transplant recipients, Patient and Family Council, People with kidney disease and their families
• Renal Support Network  USA - For kidney communities globally
• Siblings Australia Inc  Support for brothers and sisters of people with special needs including disability, chronic illness and mental health issues - forums, workshops etc.
• Yahoo online groups related to kidney disease
• WebMD - Kidney Disorders Support Groups   

Other kldney health problems - rare conditions, resources, Message Boards and Support Groups

• Amyloidosis  Info and Support Groups - Amyloidosis, Myeloma, Waldenstrom's Macroglobulinemia
• Arthritis Australia  Lupus, Scleroderma and related conditions: Arthritis freecall infoline 1800 104 100
• Fabry's Disease  USA - overview, resources, support group
• Fabry Support Group Australia  Lots of information on this rare genetic problem with inks to international groups, websites and information
• Fibromuscular Dysplasia  USA - education resources, support group and chatline
• Genetic and rare kidney conditions  Lay advocacy and support groups, information on genetic conditions /birth defects - University of Kansas Medical Centre
• Lupus - The renal (kidney) system  USA website
• Lupus Support Groups Australia  Some Lupus/Schleroderma support group contacts in Australia
• Lupus Support Groups global  via Yahoo Groups
• NephKids Online Cyber-Support Group  Interactive email group for parents of kids and adolescents with CKD - supporting by associates of National Kidney Foundation USA.  Registration required
• Nephrotic Syndrome & Focal Segmental Glomerulosclerosis  Support group
• Restless Legs Syndrome Australia  Info on RLS-diagnosis, treatment, and support

Register to interact in Livewire. This organisation offers popular moderated chatrooms to enable you to connect with others who live with chronic disease in a safe environment. Livewire is a supportive space for kids and teens to hang out, connect, share experiences, creatively express themselves. Membership is free for any 10 to 21 year old living with serious illness or disability. Register at www.livewire.org.au