There are a range of educational resources developed to improve awareness and knowledge about kidney disease and the impact on Aboriginal and Torres Strait Islander people, their families and communities.
All the resources listed have been reviewed and recommended for educating Aboriginal and Torres Strait Islander people about kidney health.
Please note that some videos may contain images and voices of people who have died and content of a sensitive nature.
‘Big Girls Don’t Cry’
The cultural and emotional impact of kidney disease is devastating on Aboriginal and Torres Strait Islander communities. The spirit shown in these stories does not date.
In the documentary ‘Big Girls Don’t Cry’, three women – Essie Coffey of Muruwari clan, Mariah Swan of Kamilaroi clan and Glenda Kerinaiau of Tiwi clan – tell how they are affected by kidney disease. The strength and resilience they display makes a very moving film.
The 26-minute documentary was directed by Darrin Ballangarry and produced by Ronin Films as part of the National Indigenous Documentary Fund Series 5.
‘Diabetes Story’ – about living a healthy and long life with well-controlled diabetes – is an effective educational resource for all health professionals working with Aboriginal people in central Australia.
The film is written and animated as a story in English and Aboriginal languages: Pitjantjatjara, Warlpiri and Arrernte. It is useful for presenting to people with low medical literacy and understanding of written material or whose second language is English.
The film contains five sections:
- How do you feel?
- What is diabetes?
- Why have I got diabetes?
- What could happen to me?
- If you have diabetes or think you might have diabetes.
You can find out about ordering or downloading the film by phoning the Central Australian Aboriginal Congress on 08 8951 4425 or emailing email@example.com.
‘Transplant Story: A Personal Journey’
This is the real-life story of an Aboriginal family living with kidney disease. The 52-minute film closely follows a young man, Ronno, who had a living donor transplant when he was a child, which lasted 24 years. When his transplanted kidney began to fail he had to relocate for haemodialysis. Now on peritoneal dialysis waiting for a transplant, he is back with his family.
The film was produced by the Menzies School of Health Research. You can see details and credits.
‘Kidney Stories’ toolkit
This high-quality series of flipcharts sets out in a simple way the story of kidney disease: how kidneys work, the stages of sick kidneys, how to eat and be stronger with sick kidneys, how dialysis works, and the types of dialysis and treatment available. It also sensitively presents the story of palliative and supportive care.
The flipcharts are designed for health professionals, to enable them to answer patients’ questions and explain more where needed. DVDs are also available.
The ’Kidney Stories’ toolkit is produced by NT Renal Services. For more information phone Susan Poppe on 08 8999 2406 or email firstname.lastname@example.org.
The ‘Kidney Stories’ toolkit is now part of the education project: Sharing the Full and True Stories about Chronic Disease. You can see more about the project and the toolkit (check under Chronic Diseases – Kidney Disease).
'A yarn that could save a life' radio series
Series of six radio plays> to address barriers that may prevent Indigenous Australians discussing and making decisions about organ and tissue donation produced by Queensland Remote Aboriginal Media.
There’s an accompanying brochure titled Have you had a yarn with your mob about organ and tissue donation?.
Other associated resources include a simple, illustrated flipchart titled ‘What is organ and tissue donation?’ produced in English and Nyangumarta by the Kulunga Research Network. You can see the flipchart in English and also in Nyangumarta.
Rural Health Education Foundation programs
The Rural Health Education Foundation produces high-quality, evidence-based education programs involving health and medical experts who present information on chronic disease management.
The programs are an excellent resource for people in the kidney community and health professionals working in rural and remote regions.Indigenous healthIndigenous health research - for health professionals