PUBLIC SUBMISSIONS AND ADVOCACY DOCUMENTS
Kidney Health Australia is a national health care charity, with a vision 'to save and improve the lives of Australians affected by kidney disease'. As the national peak body, Kidney Health Australia promotes good kidney health through delivery of programs in education, advocacy, research and support.
See below a list of Kidney Health Australia’s public submissions on key policy consultation opportunities at both a State and Territory and Federal level. Further information regarding recent announcements on health policy, can be found in our Media>.
Kidney Health Australia's Position Statement on Organ Trafficking>
Kidney Health Australia unequivocally supports ‘The Declaration of Istanbul on Organ Trafficking and Transplant Tourism’ (the Declaration), which includes condemning the practice of buying and selling organs for transplantation and other illegal activities related to transplant tourism.
For more information on Australia’s organ donation efforts, or on the illegal practices of transplant commercialism organ trafficking and transplant tourism please see:
Tackling Kidney Disease: A national action plan to reduce Australia’s kidney disease burden>
Kidney Health Australia's key election policy document outlines six key areas for an incoming government to address. Each provides a range of initiatives that are realistic, tangible and will improve the lives of those living with kidney disease.
There are 1.7 million adult Australians – one in ten – with existing signs of chronic kidney disease. Yet less than one percent is aware of their condition, sadly confirming kidney disease remains Australia’s ‘silent killer’. Up to 90 percent of kidney function can be lost before any symptoms become evident.
There are nearly 11,000 people on dialysis, and we expect that number to increase by 80 percent by 2020.
The treatment of end stage kidney disease is estimated to cost in excess of $1 billion in direct health expenses, with the economic cost of forgone productivity even higher. It is also ranked as the 10th leading cause of death in Australia, with more people dying from kidney disease each year than from breast cancer, prostate cancer or even road deaths. It is clearly time to act. Read an overview of this plan in Media>
Pre Budget Submission 2013-2014 Federal Budget - Charting a comprehensive approach to tackling kidney disease>
Kidney Health Australia’s budget submission outlines proposals to guide increased risk assessment, support early detection and improve the treatment of kidney disease. This submission proposes a number of key ‘next steps’ to tackle kidney disease by presenting a package of evidence‐based and cost‐effective interventions spanning strategic planning, improved early detection, education, the funding of ongoing treatment and organ donation.
Submission on The National Aboriginal and Torres Strait Islander Health Plan>
This submission outlines Kidney Health Australia’s initial round of comments and suggested areas of focus for the development of a new ‘National Aboriginal and Torres Strait Islander Health Plan’ (NATSIHP). This submission further supports Kidney Health Australia’s involvement in the national consultation workshop process held in 2012.
Consultation response to NSW Government regarding Organ Donation>
This submission outlines Kidney Health Australia’s initial comments regarding the Deceased Organ and Tissue Donation – Consent and Other Procedural Requirements; the Practice Guidelines for when doctors accede to a family’s objection to donation; and Designated Officers – Procedures and Guidelines.
Submission on ACT Government’s Strategy for Improving Care and Support for those Living with Chronic Conditions>
This submission outlines Kidney Health Australia’s views and recommendations on the ACT Health Directorate’s ‘Strategy for Improving Care and Support for those Living with Chronic Conditions 2012-2017’. The submission outlines the state of kidney disease in Australia, provides specific feedback on the previous ‘2008-2011 - ACT Chronic Disease Strategy’ and comments on the six key goals and priorities outlined in the plan.
Submission to the Pharmaceutical Benefits Advisory Committee - The Need for Second Line Treatments for Kidney Cancer>
In light of Kidney Health Australia’s work to support those with kidney cancer, this submission supports the view that Australian consumers should have equitable, timely access to the necessary range of subsidised treatment options available internationally, which includes both first and second line treatments for kidney cancer.
Submission to the Independent Hospital Pricing Authority (IHPA) Consultation Paper for the Pricing Framework for Australian Public Hospital Services 2013-14>
Kidney Health Australia’s submission outlines a number of points regarding the delivery of dialysis services and the current varying rates of uptake of the different modalities and settings in which it is undertaken, particularly regarding home dialysis. It puts forward the view that there should be a more holistic accounting of home dialysis, including the costs faced by consumers in undertaking dialysis at home, when looking to determine the ‘efficient price’ for the delivery of these services.
Updated 21 November 2013