PUBLIC SUBMISSIONS AND ADVOCACY DOCUMENTS
Kidney Health Australia is a national health care charity, with a vision 'to save and improve the lives of Australians affected by kidney disease'. As the national peak body, Kidney Health Australia promotes good kidney health through delivery of programs in education, advocacy, research and support.
Submissions listed below represent written responses to public calls for submissions which Kidney Health Australia has prepared. These submissions compliment Kidney Health Australia's ongoing and detailed advocacy with Federal, State and Territory governments on a range of issues facing those living with kidney disease, their families and their carers.
Further information on recent announcements on health policy can be found at KHA media>
Submission to the Australian Vigilance and Surveillance Framework for Organ Donation for Transplantation (the Framework)>
The draft Framework underpins a national vigilance and surveillance system that complements and operates in parallel with jurisdictional clinical incident management systems for deceased organ donation and transplantation; provides early warning systems; monitors, records and analyses SAERs and the impact of an intervention; improves patient outcomes; and informs future organ donation for transplantation management and health policy.
Removal of Cinacalcet (Sensipar) from the Pharmaceutical Benefits Scheme (PBS)>
Position Statement: approved June 2015. The statement outlines the situation regarding the recent changes to Cinacalcet (Sensipar) and a PBS subsidy.
ACDPA welcomes opportunity to respond to the Australian Government’s Re:think Tax Discussion Paper>
The Australian Chronic Disease Prevention Alliance (ACDPA) is an alliance of the five leading non-government health organisations working together in the prevention of chronic diseases including kidney disease, heart attack, stroke, diabetes and cancer. ACDPA welcomes the opportunity to respond to the Australian Government’s Re:think Tax Discussion Paper. ACDPA’s interest in this review relates to the potential impact of changes to the taxation system on the nutritional and physical activity behaviour of the population, and the consequent long-term health outcomes for Australia.
Kidney Health Australia's State of the Nation 2015 - Chronic Kidney Disease in Australia>
A new report paints a striking picture of Australia’s kidney health, highlighting kidney disease as a silent killer which goes largely undiagnosed, and often works in partnership with cardiovascular disease and diabetes. This report highlights two confronting facts: less than 10% of Australians with chronic kidney disease (CKD) realise they have it; and 51% of people with CKD also have cardiovascular disease or diabetes. The report highlights that 6 out of 10 people with CKD have hypertension, but sadly 96% of Australian adults are unaware of the link between high blood pressure and kidney disease.
NVDPA submission to Australian National Diabetes Strategy>
The National Vascular Disease Prevention Alliance – comprised of Kidney Health Australia, Diabetes Australia, the Heart Foundation and the Stroke Foundation – have put in a submission to the Federal Government’s draft Diabetes Strategy outlining the need for an integrated health check to improve early detection of vascular disease.
The Impact of Increased Power Costs on Home Haemodialysis Tasmania>
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within Tasmania.
The Impact of Increased Power Costs on Home Haemodialysis Queensland>
Increases in the cost of electricity continue to contribute to the situation where home haemodialysis patients in Queensland face significant out-of-pocket costs. The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis in Queensland.
The Impact of Increased Power Costs on Home Haemodialysis Northern Territory>
The Northern Territory has the highest prevalence rate of dialysis patients in Australia. This is comprised of a significant number of Aboriginal and Torres Strait Islander renal patients, with a rate of 743 per million population (pmp). The treatment option most utilised is haemodialysis, through stand-alone renal units in Darwin, Katherine, Tennant Creek, and Alice Springs or satellite centres in remote communities offering closer to home nurse-lead or self-dialysis models of care. The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within the Northern Territory (NT).
Kidney Health Australia Pre-Budget Submission: 2015-16 Federal Budget>
Charting a comprehensive approach to tackling kidney disease 'Proposals to guide increased risk assessment, support early detection and improve the treatment of kidney disease'. Kidney Health Australia has included proposals to address the full spectrum of the health sector - from strategic planning and early detection, to education and support in the primary care sector, organ donation, palliative care and of course Indigenous health. All of the proposals are realistic, designed to be low-cost, no-cost or generate savings and have one principle in common - they are all designed to improve the lives of those with kidney disease through smart, targeted interventions, which seek to support existing efforts and policy.
Submission on Indigenous kidney health issues for the Senate Select Committee on Health>
The Senate Select Committee on Health was established in 2014 to inquire into health policy, administration and expenditure. Recently, they called for a submissions on with particular reference to Indigenous health. KHA provided a submission on kidney health issues and developed a specific submission on Indigenous kidney issues outlining:
- Aboriginal and Torres Strait Islander people experience disproportionate levels of CKD regardless of urban, region or rural locality.
- There is scope for the Federal Government to provide solid leadership in Indigenous affairs and health, with the Department of Prime Minister & Cabinet (DPMC) at the centre of coordinated national policy and program implementation.
- A competent, qualified, culturally respectful, multidisciplinary health workforce is critical to improving Aboriginal and Torres Strait Islander health.
- A wide range of support services for Aboriginal and Torres Strait Islander kidney consumers and families need to be accessible and better integrated to limit the severity of dislocation for treatment.
- Ultimately, adequately resourced preventive programs within the primary health sector reduces the progression of chronic diseases, including kidney disease and will lead to longer term savings in the later stage acute and high cost interventions.
The Impact of Increased Power Costs on Home Haemodialysis South Australia>
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis within South Australia.
Kidney Health Australia Survey: Challenges in methods and availability of transport for dialysis patients>
The purpose of this survey was to describe the transport options provided by dialysis units for consumers who are unable to provide their own dialysis transport, and to outline the costs to consumers and dialysis units for these services. This analysis is important for providing information to dialysis units and is critical to Kidney Health Australia’s advocacy work regarding service gaps and/or areas of best performance in dialysis patient transport.
Kidney Health Australia Submission Regarding Terms of Reference - Senate Select Committee on Health>
Chronic Kidney Disease(CKD)is a major health problem, and one that is growing. Without greater focus from the Australian Government, there is clear evidence based on current trends that the situation has the potential to worsen. Kidney Health Australia estimates that 1 in 3 Australians are at an increased risk of developing CKD1. Approximately 1.7 million Australians – a striking 1 in 10 – over the age of 18 years have at least one clinical sign of CKD. The situation is much worse for at-risk-groups.
The impact of increased power costs on Home Haemodialysis (re-released 2014)>
The purpose of this discussion paper is to illustrate the potential impact of increased power costs on the number of people choosing to undertake or remain using home haemodialysis.
Quality Practice Incentives Program - Development of a quality-focused PIP to address prevention of vascular and related diseases>
This paper presents a submission from the National Vascular Disease Prevention Alliance (NVDPA) on an integrated approach to detect and prevent vascular and related diseases in Australian general (medical) practice. Its key feature is to move away from disease specific detection to an integrated approach which recognises the interaction between these diseases and their risk factors.
Kidney Health Australia: Response to ‘Factors Contributing to the Decline in Living Organ Donations’ Report>
Kidney Health Australia is responding to the Australian Healthcare Associates’ (AHA) report Factors Contributing to the Decline in Living Organ Donations. AHA was engaged in 2013 by the Department of Health and Ageing (DoHA) to undertake an investigation into the decline of living organ donations.
Submission into interim report: A New System for Better Employment and Social Outcomes>
Kidney Health Australia welcomed the opportunity to provide input into the interim review report ‘A New System for Better Employment and Social Outcomes’ released by the Government on 29 June 2014. Kidney Health Australia would also welcome the opportunity to expand upon this in person, as we feel strongly there is now an opportunity to address the inequitable approach to supporting those providing episodic, but critical care, for those on dialysis and that doing so can improve social and productive outcomes.
Kidney Health Australia and Palliative Care Australia are calling for improved access to palliative care services for patients living with Chronic or End Stage Kidney Disease>
Kidney failure patients are the second most frequent users of palliative care services in Australian hospitals and statistics show that approximately 1500 dialysis dependent people die in Australia each year.
Kidney Health Australia Submission to Senate Inquiry on out-of-pocket medical costs in Australian healthcare>
This document outlines Kidney Health Australia’s submission to the Federal Government’s Senate Inquiry on out-of-pocket medical costs. Some of these costs for kidney consumers might be related to transport costs - to and from dialysis; home dialysis costs; and costs associated with being a live donor.
Kidney Health Australia's State of the Nation 2014: Chronic Kidney Disease in Australia May 2014>
CKD is common: around 1.7 million Australians (1 in 10) aged 18 years and over have clinical evidence of chronic kidney disease (CKD). However, as CKD typically has no symptoms, less than 10% of the people with CKD are aware they have this condition. This means over 1.5 million Australians are unaware they have indicators of CKD. The most visible outcome of CKD is end stage kidney disease (ESKD); people with ESKD require dialysis or a kidney transplant (together called renal replacement therapy) to stay alive. There are currently 20,766 people in Australia who are on renal replacement therapy. However, people with CKD are up to 20 times more likely to die from a heart attack or stroke than they are to receive dialysis. Currently, the three most common causes of kidney disease requiring kidney replacement therapy in Australia are diabetes, glomerulonephritis (inflammation of the kidney) and hypertension (high blood pressure).
Inquiry into the Patient Assisted Travel scheme (PATS) in Western Australia>
Kidney Health Australia requests this submission be accepted as part of the 'Inquiry into the Patient Assisted Travel Scheme (PATS)' undertaken by the Western Australian Parliament's Standing Committee on Public Administration.
National Consensus Statement: Essential Elements for Safe and High-Quality End-of-Life Care in Acute Hospitals>
Response to the consultations questions about the national consensus statement from Kidney Health Australia. Kidney Health Australia is a not for profit organizations whose focus is to improve kidney health outcomes leading to substantial improvement to the quality of life for people with kidney and urinary tract diseases, their families and carers, as well as developing initiatives that reduce the incidence of kidney disease in the Australian community. Kidney Health Australia recognise the importance of safe and high quality hospital care for those at the end-of-life. In 2007, one in ten deaths is related to chronic kidney disease.
Kidney Health Australia Pre-budget Submission: 2014-15 Federal Budget>
Kidney Health Australia budget submission includes a number of proposals to address the full spectrum of the health sector – from strategic planning, early detection, education and support in the primary care sector, and organ donation. All of the proposals are realistic, designed to be low-cost, no-cost or generate savings and have one principle in common – they are all designed to improve the lives of those with kidney disease through smart, targeted interventions, which seek to support existing efforts and policy.
Kidney Health Australia submissions to the Federal Review of Medicare Locals>
This submission outlines Kidney Health Australia’s submission to the Federal Government’s Review of Medicare Locals, including outlining the important role of awareness and education regarding kidney disease at the primary care level.
Kidney Health Australia submission to the Queensland Government’s review of Patient Travel>
This submission outlines Kidney Health Australia’s suggestions on improving the Queensland patient travel reimbursement scheme.
Kidney Health Australia submission to National Commission of Audit>
This submission outlines Kidney Health Australia’s response to the National Commission of Audit’s Terms of Reference.
Kidney Health Australia's Position Statement on Organ Trafficking>
Kidney Health Australia unequivocally supports ‘The Declaration of Istanbul on Organ Trafficking and Transplant Tourism’ (the Declaration), which includes condemning the practice of buying and selling organs for transplantation and other illegal activities related to transplant tourism.
For more information on Australia’s organ donation efforts, or on the illegal practices of transplant commercialism organ trafficking and transplant tourism please see:
Tackling Kidney Disease: A national action plan to reduce Australia’s kidney disease burden>
JULY - OCTOBER 2013
Kidney Health Australia's key election policy document outlines six key areas for an incoming government to address. Each provides a range of initiatives that are realistic, tangible and will improve the lives of those living with kidney disease.
There are 1.7 million adult Australians – one in ten – with existing signs of chronic kidney disease. Yet less than one percent is aware of their condition, sadly confirming kidney disease remains Australia’s ‘silent killer’. Up to 90 percent of kidney function can be lost before any symptoms become evident. There are nearly 11,000 people on dialysis, and we expect that number to increase by 80 percent by 2020.
The treatment of end stage kidney disease is estimated to cost in excess of $1 billion in direct health expenses, with the economic cost of forgone productivity even higher. It is also ranked as the 10th leading cause of death in Australia, with more people dying from kidney disease each year than from breast cancer, prostate cancer or even road deaths. It is clearly time to act.
Kidney Health Australia submissions into the South Australian Government’s review of patient travel>
These submissions outline Kidney Health Australia’s suggestions on improving the South Australian patient travel reimbursement scheme.
Kidney Health Australia submission into the Northern Territory review of patient travel>
This submission outlines Kidney Health Australia’s suggestions on improving the Northern Territory patient travel reimbursement scheme.
Pre Budget Submission 2013-2014 Federal Budget - Charting a comprehensive approach to tackling kidney disease>
Kidney Health Australia’s budget submission outlines proposals to guide increased risk assessment, support early detection and improve the treatment of kidney disease. This submission proposes a number of key ‘next steps’ to tackle kidney disease by presenting a package of evidence‐based and cost‐effective interventions spanning strategic planning, improved early detection, education, the funding of ongoing treatment and organ donation.
Submission on The National Aboriginal and Torres Strait Islander Health Plan>
This submission outlines Kidney Health Australia’s initial round of comments and suggested areas of focus for the development of a new ‘National Aboriginal and Torres Strait Islander Health Plan’ (NATSIHP). This submission further supports Kidney Health Australia’s involvement in the national consultation workshop process held in 2012.
Consultation response to NSW Government regarding Organ Donation>
This submission outlines Kidney Health Australia’s initial comments regarding the Deceased Organ and Tissue Donation – Consent and Other Procedural Requirements; the Practice Guidelines for when doctors accede to a family’s objection to donation; and Designated Officers – Procedures and Guidelines.
Submission on ACT Government’s Strategy for Improving Care and Support for those Living with Chronic Conditions>
This submission outlines Kidney Health Australia’s views and recommendations on the ACT Health Directorate’s ‘Strategy for Improving Care and Support for those Living with Chronic Conditions 2012-2017’. The submission outlines the state of kidney disease in Australia, provides specific feedback on the previous ‘2008-2011 - ACT Chronic Disease Strategy’ and comments on the six key goals and priorities outlined in the plan.
Submission to the Pharmaceutical Benefits Advisory Committee - The Need for Second Line Treatments for Kidney Cancer>
In light of Kidney Health Australia’s work to support those with kidney cancer, this submission supports the view that Australian consumers should have equitable, timely access to the necessary range of subsidised treatment options available internationally, which includes both first and second line treatments for kidney cancer.
Submission to the Independent Hospital Pricing Authority (IHPA) Consultation Paper for the Pricing Framework for Australian Public Hospital Services 2013-14>
Kidney Health Australia’s submission outlines a number of points regarding the delivery of dialysis services and the current varying rates of uptake of the different modalities and settings in which it is undertaken, particularly regarding home dialysis. It puts forward the view that there should be a more holistic accounting of home dialysis, including the costs faced by consumers in undertaking dialysis at home, when looking to determine the ‘efficient price’ for the delivery of these services.
Page updated 22 July 2015