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Highlights from our Kidney Community News - December 2013>
Note these dates: 20 December 2013 to 1 January 2014
These are the dates when our Kidney Health Australia National and State Offices and our Kidney Health Information Service will be closed, as staff enjoy a well earned holiday break. We wish you a safe healthy Christmas and sparkling New Year and at this time, we thank our supporters in 2013, as without you we could not carry out our work. We look forward to assisting you through the delivery of our various education, advocacy, research and support programs for our Australian and global kidney community in 2014.
- From the CEO- Anne Wilson
- Government Relations updated - Luke Toy
- Medical Matters - Tim Mathew: Kidney Week 2013, Atlanta USA, November 2013
- Don't stop your cholesterol pills!
- Incy Wincy
- KHA in the community
- 45 Year Anniversary
- Big Red BBQ - but with a twist! Australia Day, 26 January 2014
More at www.bigredbbq.com.au
- CKD, Dialysis and Diabetes friendly tasty recipe: Bruschetta
Kidney Calendar of Events 2013>
Calls for articles for Kidney Community News
You are invited to email your suggestions for articles, to advertise an event, or share your story in our monthly newsletter.
Contact Cassandra Bradshaw - Editor of Kidney News and Media & Communications Adviser on: 03 9674 4313 or 0402 346 197 or to: Cassandra.Bradshaw@kidney.org.au
Kidney Community poster> Download and print a copy to display in your Dialysis Unit.
Kidney Community News Archives>
WANT TO SUPPORT OUR........
'TRAVEL FREEDOM ON DIALYSIS - CAMPERVAN PROGRAM'?
DONATE to this help fund this program using our Online Donation Form
Please note your donation is for our 'Travel Freedom on Dialysis - Campervan Program'. Or simply use our free call 1800 454 363 and our staff will make this easy for you, via your credit card.
The Wade family from the Gold Coast made an initial donation of $50,000 which has meant work can begin for the 'Travel Freedom on Dialysis' Program.
This exciting initiative can provide important respite or holiday dialysis options for Australians living with kidney disease, on dialysis and their families. Each Kidney Campervan would be fitted with dialysis machines and initially available on the Gold Coast in Queensland. Future plans are in place for this program to expand to key cities nationally.
To raise further funds for this important program Rod Wade (aka Vintage Adventurer) and navigator John Bell, drove Rod's 1930 Model ‘A’ Ford through very remote locations in the Peking to Paris Car Rally over just 33 days, in May this year. Along the way Rod and John raised funds to kick start our Kidney Campervan program. Follow his adventure via links above. See media>
Our BIG RED Kidney Bus
Kidney Health Australia presents the BIG RED Kidney Bus, which will be located at popular holiday destinations in Victoria for 4-6 weeks at a time, to enable families with someone on dialysis, to take a break away from their hospital or satellite dialysis service. We need your help for fit out of our bus - donate to Kidney Health Australia>.
Find out more about this program here>
Enquiries: Jo Fairbairn, Community Education & Health Promotion Manager - 03 9674 4315
or email her at firstname.lastname@example.org
Adelaide policeman Wade Burns - Ironman in Cairns
Adelaide's Wade Burns made news recently weekend for his approach to kidney disease. His diagnosis of IgA Nephropathy that came "out of the blue" caused him to increase his active lifestyle even more - by deciding to participate in his first full Ironman competition in Cairns. He decided to raise funds for Kidney Health Australia as he competed. His life philosophy and outlook is inspirational. Read more on Wade's story>
Wade has raised nearly $6000 for Kidney Health Australia - you may still contribute to Wade's project fundraising, at http://give.everydayhero.com/au/wadeburns
KIDNEY NEWS - HIGHLIGHTS
Archived KHA Media and Press Releases>
October 2013: Kidney disease rampant in remote Australia
New research shows that Australians living remotely are at greater risk of dying from chronic kidney disease. Kidney Health Australia welcomes this morning’s report from the Australian Institute of Health and Welfare (AIHW) that highlights the prevalence and impact of kidney disease amongst Australians living outside of capital cities, and particularly for those in remote locations. 'The Regional Variation in chronic kidney disease in Australia' report calls attention to the differences. Read more about this>
August 2013: Kidney Health Australia welcomes NT Government announcement
An extra $7.5 million per year will be injected into the Patient Assistance Travel Scheme (PATS) including the introduction of a new 'weekly' distance travelled figure. NT Govt media>
Kidney Health Australia submitted formal submissions to the NT Government advocating for these changes:
- Introduce a ‘weekly’ figure – meaning those who travel 400km per week will be eligible (for a standard 6 trips a week for 3 sessions of dialysis, the one way km distance effectively drops from 200km to 66km)
- Increase in the accommodation rates
- Increase the reimbursement rates for travel, as well as address a number of the specific issues we raised.
1 July 2013: The Australian Live Organ Donor Leave Scheme starts
A two year pilot of the Supporting Leave for Living Donors Scheme began from 1 July 2013. Kidney Health Australia's CEO, Anne Wilson said: "Kidney Health Australia fought hard for the establishment of a live organ donor scheme. Today is a historic day for the donor community, marking the first time the avenue of access to paid leave has been available or eligible Australian live donors." Media>
This pilot scheme provides up to six weeks paid leave at minimum wage to employers, who pass it on to eligible employees who become live organ donors. Refer to our Policy & Advocacy area to read KHA submissions on behalf of our Kidney Community.
Click to Register - and to read support messages - LOGIN to comment
Our GUEST BOOK is created especially for you to register your support for the continuation of the Live Organ Donor Leave Scheme. These comments will be very important in the evaluation of this program by Government, to achieve continued funding. Please sign up and post your comments now.
Updated 18 December 2013