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YOUR KIDNEY BLOG
This Kidney Blog is Australia's first Kidney Health Consumer feedback mechanism (no registration) and enables people in our kidney community to share personal views and stories, which can become a strong voice to Government . A shared voice is louder and together we can achieve change.
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Blogosphere (no registration required) Bloggers from 'kidney' community I Donor Compensation I Early Detection and Prevention I Home Dialysis I Organ Donation I Patient Transport
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UPDATED 9 JANUARY 2012
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Transport
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Location: Blogs Your Kidney Blog - Have your say |
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| Posted by: Administrator Account |
Sunday, 5 July 2009 |
Transport is a key concern for patients needing to travel to dialysis treatment - whether it be access to taxi subsidies, availability of bus services, reliance on family and friends, or cost of petrol for cars - getting to dialysis can be a real struggle. Skyrocketing petrol prices are having a devastating impact, particularly for those patients who live in regional and rural areas where access to dialysis units is limited.
Many patients undertake dialysis three times a week and have no option but to travel, as their treatment is keeping them alive. People on dialysis and their families are already suffering heavy financial penalties and the rising petrol prices will only increase the burden. |
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Comments (16)
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By Teresa Taylor on Tuesday, 7 February 2012
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Re: Transport |
Reply to Melissa - from Debbie Fortnum, Home Dialysis Project Manager
Hi Melissa, well done for taking on home dialysis. I know that in the future every time you go on the machine without driving anywhere it will be worth it. I agree that the limits on travel that can be reimbursed can be frustrating. Availability of home dialysis training close to home is a tricky one if there are only a few people in your area that require the service. KHA are committed to assisting the system in overcoming these type of barriers. Any suggestions for your area would be appreciated. For more information on Home Dialysis - go to PATIENT INFO - Treatment options - then www.kidney.org.au/ForPatients/Treatmentoptions/HomeDialysis/tabid/811/Default.aspx |
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By Melissa Darnley on Friday, 3 February 2012
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Re: Transport |
Re: Transport
I am undergoing training for home haemodialysis in Ballina Hospital, meaning a journey of an hour each way from my home 4 times a week until I learn enough to set up at home. I consider myself fortunate(in some ways) to only have that distance and expense as there must be many people in an even worse situation than I am because the next training unit is at Newcastle a LONG days drive away. I appreciate that my wonderful hospital will subsidise some accommodation expenses for me, but unfortunately I like my home and the travelling distance falls just short of any travel subsidy. |
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By Melissa on Friday, 3 February 2012
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Re: Transport |
| Good Post. |
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By Andrea on Thursday, 16 June 2011
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Help with Specialist Care in Regional QLD |
Please could anyone help with some information in how Specialist care works in Regional Australia/Queensland???
We moved from overseas 6 months ago and boy 2years old boy was born with some ureters and bladder condition which caused a major urine reflux to his kidneys. He had surgery to fix some of it but he lost kidney function and will need to be monitored for the rest of his life by a Urologist or Nephrologist.
We are living in Airlie Beach, just off Proserpine, QLD. Do I have to take him to Brisbane to his next scan and doctor appointment or Specialist Doctors do visit major centers in Regional QLD??
Is this care free?
Am I entitled to financial help if I have to travel for his care?
Thanks a lot to all for your time,
Andrea (Rafael's mum) |
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By snoozie on Wednesday, 9 February 2011
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Re: Transport |
Hi all
I am assisting my 72 yr old mother to prepare for dialysis in near future - just gathering info. She lives in north west of Brisbane and I am wanting to get an idea of what sort of transport assistance she may be able to access in getting to and from dialysis - presuming she would need to attend RBH or Chermside (not sure if this is an option). Keperra is not an option as I understand that it is a self dialysis venue rather than staffed with nurses? Any info appreciated |
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By Michael Griffin on Thursday, 10 December 2009
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Re: Transport attn Grant |
Grant you can contact me, Michael Griffin or Jess through myspace at
http://www.myspace.com/adajablack
http://www.myspace.com/michaelgriffin09
Lets hope the moderator doesn't delete this address. I will delete it myself after you have made contact.
She has adopted a stage name and performs under that name. |
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By grant luisetti on Tuesday, 14 July 2009
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jess |
| just trying to get hold of Micheal Griffin (jesss dad) I am a good friend of Zane's and trying to get hold of her.I wass so proud of Jess and very sad not to see her go further.They used to stay with me in Byron Bay .I am still here Email removed due to web policy - however this address can be obtained from teresa.taylor@kidney.org.au........ cheers grant |
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By Wayne - Kidney Health Australia on Tuesday, 13 January 2009
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Re: Transport |
Hi Joanne, The Princess Alexandra Hospital has social workers who deal with transport issues related to your situation. You will need to arrange to be referred to a social worker through your specialist. Further, the Kidney Support Network may also offer some transportation that is suitable. They can be reached on 07 3300 0906 to enquire further.
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By Joanne W on Tuesday, 13 January 2009
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Re: Transport |
| I am going to check today to see if there is some sort of patient transfer services or if Lands have services running between our house and the hospital to get my husband to the Gold Coast hospital for dialysis. He is a patient of the PA but there and Logan Hospitals have no room for him to start HD there. I work 24/7 rotating shift work, my husbands doesn't work and working, home, everything is all on me. How the hell am I suppose to get him to the hospital when I work the shifts I do on top of everything else and still have to try and fit in daytime sleeping.. |
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By Miguel Lopez on Sunday, 10 August 2008
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Re: Transport |
| I am a kidney patient on haemodialysis and I personally see the need for transport. Having witness one patient waiting more than 4 hours for transport it showed me how bad this issue is. We should all put our cents toghether and make sure there is a service available. Otherwise it could be YOU waiting more than 4 hours. HELP! |
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By Tracy Rolfe on Sunday, 27 January 2008
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Organ Donation |
Hi, My Mum has just had a successful kidney transplant in the UK, her new (or as we call it second hand) kidney was so kindly donated by her younger brother. I will be forever grateful to him for giving me a healthy Mum back, she is already looking at flights for 2008 to visit me in Hervey Bay for 3 months.
Never give up hope !
Tracy |
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By Di Abrahams on Friday, 2 March 2007
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Re: Transport |
I've recently started Home Heamo so only travel 2.5hrs to Drs appts every 8 weeks or so.....but while doing Satelite 3 times a week.....clocked up 444kms per week. Had to have minimum of 500kms to lodge a claim. I really feel for the people struggling with this issue.
Also only heard about the VPTAS by accident. It would be helpful to a lot of people if this scheme was more widley advertised. |
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By michael griffin on Sunday, 27 August 2006
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Re: Transport |
My daughter jess griffin is in Aust Idol. She had a kidney removed when she was two. She has not let this stop her achieve what she wants. It doesn’t have to be a majour problem. GO JESS! Jess’s dad Michael.
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By uja@sbate.com on Saturday, 5 November 2005
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Re: Transport |
| Hear! Hear! |
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By Jonie Brown on Saturday, 29 October 2005
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Re: Transport |
My husband is a kidney failure patient. And with just me being the breadwinner it has become rather difficult to cope with. I have a 5-year-old daughter and a newborn baby that need constant attention. Recently I got a promotion and was asked to move to India. This wasn’t something I expected. And after a lot of thought we did move here. Initially it was extremely difficult settling in. I was extremely worried for my husband. It’s been 8 months now and I must say I think the quality of my life in the sense for my home has certainly improved. My husband did in the beginning have to travel a long distance to one of the private hospitals for dialysis. And he would be extremely exhausted, however a couple of months back an Indian NGO called Mohan Foundation helped us out.
They have been working very hard to try and create awareness about kidney transplant and improve the lives of transplant patients. They have been apparently trying to get the government to give travel concessions for kidney patients (which they have been to a large extent been able to do!!) and are I feel the voice of the transplant community here!!
Through them I met other patients and their families here in India. We also found a dialysis center closer to our homes for my husband. I think in the end its all worked out well over all. |
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By Melissa Darnley on Saturday, 3 September 2005
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Re: Transport |
| I am undergoing training for home haemodialysis in Ballina Hospital, meaning a journey of an hour each way from my home 4 times a week until I learn enough to set up at home. I consider myself fortunate(in some ways) to only have that distance and expense as there must be many people in an even worse situation than I am because the next training unit is at Newcastle a LONG days drive away. I appreciate that my wonderful hospital will subsidise some accommodation expenses for me, but unfortunately I like my home and the travelling distance falls just short of any travel subsidy. |
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