The A to Z guide - your KEY to better Kidney Health

Are you at risk?

• Chronic Kidney Disease
• Kidney Disease: Are you one in three? Good Medicine Advertorial
• Using the internet to research health information
• What does that word mean?  

About your kidneys

• Are you at risk?
• Are your Kidneys OK? Online Quiz
• Kidney Glossary - What does that word mean?
• Kidney and Urinary Health  KHA brochure
• Kidney Health - What you should know....
• Kidney Health Australia Services and Programs
• Life with a single kidney
• Link to animated kidney teaching tool
• Pfizer Health Report No 29 Blood Pressure September 2006

Aboriginal and Torres Strait Islander Resources

• Bush Tucker in Kidney Failure and Diabetes
• Flip chart - a teaching tool for Health Professionals
• Indigenous Resources KHA webpage listing resources for health professionals
• Rural and Remote Kidney Health

Anaemia

• Anaemia

Australian Dialysis Unit Guide (The DUG)

• Australian Dialysis Unit Guide (DUG) 
  • DUG - Short term Renal Unit visits
  • DUG - Questions to ask before a short stay Renal Unit visit
  • DUG - Travel tips for people with kidney failure
  • Australian Dialysis Konnections 

Calculators of health factors online

• Absolute Risk CVD Calculator Find out your five-year risk of getting cardiovascular disease (CVD)
• Know your eGFR information to help you understand your eGFR
• MDRD eGFR Calculator eGFR is a measurement of your kidney function
• Body Mass Index - your BMI Calculator also offers information on achieving a 'healthy weight'
• Measure your Body Mass Index (BMI) info on how  may affect your risk of developing diabetes

Cancer

• Kidney Cancer

Cardiovascular disease

• Absolute Risk CVD Calculator Find out your five-year risk of getting cardiovascular disease (CVD)
• Know your heart and stroke risk* why it’s important for you to know your heart and stroke risk score
• Heart disease and chronic kidney disease  KHA Fact Sheet
• Know your heart and stroke risk*  consumer summary sheet
• Your heart and CKD  KHA webpage

Carers

• Family and Carers
• Pfizer Australia Health Report - Carers

Chronic Kidney Disease (CKD)

• Kidney Disease: Are you one in three?  Good Medicine Advertorial
• Chronic Kidney Disease
• Diabetes and CKD  KHA webpage
• Know your eGFR
• Life with a single kidney
• Living with Reduced Kidney Function Handbook for self-management of chronic kidney disease (KHA)
• Heart disease and chronic kidney disease
• Making the most of your visit to the doctor
• MeasureUp and CKD  KHA webpage
• Nutrition and CKD  KHA webpage
• What does that word mean?  KHA webpage
• You're in Charge - self-management health book  Good Medicine
• Your heart and CKD  KHA webpage

Australian Consumer Council

• Consumer Participation
• Patient Charter

Depression and kidney disease

• SANE Australia - Mind and body initiative and SANE Helpline  1800 18 SANE (7263)
• Beyond Blue  For youth, an Australian depression initiative 1300 224 636
• Kids Helpline 1800 551 800 Free confidential, phone counselling service (5-25 yrs)  
• Life Goes On  HOPELINE 24 hr support 1300 364 673
• Lifeline 13 11 14  for 24-hour crisis telephone counseling
• Smokenders Australia  Helpline 1800 021 000 
• Smoking, is it really that bad for you? Virtual Medical Centre WA
• Suicide Call Back Service Free nationwide telephone service that offers short to medium term support for people at risk of suicide - Referral Line 1300 659 467 staffed between 10am and 8:30pm (EST), 7 days a week. If calling outside these hours, leave a message and team member will contact you the next day. This number is not a crisis line. Click here for 24 hour support services

Diabetes

• Diabetes and Chronic Kidney Disease
• Diabetic Kidney Disease KHA webpage
• Diabetic Nephropathy  Excellent 3D overview of this condition - Virtual Renal Centre WA (Aust)
• Kidney Disease and Diabetes  KHA brochure  
• MeasureUp and CKD  KHA webpage
• Online Simulation of how diabetes occurs  Diabetes Australia-NSW
• Urinary Tract Infections KHA webpage

Dialysis

• Access for dialysis
• Choosing whether to have treatment
• Haemodialysis
• Home haemodialysis
• Peritoneal Dialysis

Events and forums

• Carers Australia
• Consumer Participation KHA webpage
• Kidney Health Forums KHA webpage
• News and Events KHA webpage
• Pfizer Australia Health Report - Carers
• Renal Resource Centre Australia

Facts, statistics and reports

• Australian Bureau of Statistics
• Australian CKD Statistics KHA webpage
• Australian Institute for Health and Welfare 
• AusDiab Study Australian Diabetes, Obesity & Lifestyle Study
• Continence Foundation
• Fast Facts on CKD in Australia  KHA webpage
• HealthInfoNet 
• National Chronic Kidney Disease Strategy Report 2006  KHA publication
• Organ Donation Fast Facts  KHA webpage

F.A.I.T.H. Project

• The F.A.I.T.H. Program  Family Accommodation Initiative Transplant Housing  KHA webpage

Forms

• Evaluation Sheet
• Resource Order Form

Health and Travel Insurance

• How can I get Insurance or Super?
• Influenza and Pneumococcal Vaccination
• Informed consent for medical testing
• Insure? Not sure? 
• Insurance disability benefits
• Know your rights as a private patient in hospital 
• Medicare - Your Health 
• Private Health Insurance Ombudsman
• Super and Insurance Glossary
• Travel insurance for people with kidney disease

High Blood pressure (hypertension)

• Heart disease and chronic kidney disease
• Kidney Health and Blood Pressure  KHA Brochure

Hyperphosphataemia

• Hyperphosphataemia Patient Booklet For kidney patients diagnosed with high phosphate in their blood. Also in *Arabic *Chinese *Italian *Greek  *Hindi *Urdu *Vietnamese

Other Kidney health problems  - rare conditions, resources and Support Groups

• Alport Sydnrome  Genetics reference page - National Institute Health, USA
• Alport Syndrome  Brochure - Renal Resource Centre NSW
• Amyloidosis  Info and Support Groups - Amyloidosis, Myeloma, Waldenstrom's Macroglobulinemia
• Anatomy: Diagram relating to renal obstruction during pregnancy
• Arthritis Australia  Lupus, Scleroderma and related conditions: Arthritis infoline 1800 104 100
• Blood in the urine
• Calcium and phosphate
• Centre for Genetics Education Australia
• Chapter 8 - Other health problems from KHA's Living with Kidney Failure 7th edition
• Fabry's Disease  USA - overview, resources, support group
• Fabry's Disease Wikipedia information
• Fibromuscular Dysplasia  USA - education resources, support group and chatline
• Foundation for IgA Nephropathy (Canada)  Berger's Disease, IgA nephritis & IgA glomerulonephritis
• Genetic and rare kidney conditions  Lay advocacy and support groups, information on genetic conditions /birth defects - University of Kansas Medical Centre
• Glomerulonephritis  Brochure Renal Resource Centre NSW
• Health Insite: Chronic Conditions and Injury  Australian Government health search engine
• Health Insite: Kidney and Urinary Tract Health 
• Hereditary nephritis: Alport Syndrome
• IgA Nephropathy
• International IgA Nephropathy Network
• IronTherapy.Org (ITO)  
• Kidney Cysts  KHA Fact Sheet
• Life with a single kidney
• Lupus - The renal (kidney) system  USA website 
• MGN (Membranous Glomerulonephritis) 
• Membranoproliferative Glomerulonephritis 11  Dense Deposit Disease 
• Membranous nephropathy
• MPGN database survey Help University of Iowa - do survey for MPGN Types I, II, and III
• Nephritis
• Nephrotic Syndrome & Focal Segmental Glomerulosclerosis
• Nephrotic Syndrome  WebMD e-medicine, also features more unusual kidney problems
• Potter's Sydnrome aka Potter syndrome, Potter's disease, Potter facies, Potter's facies, Potter sequence, oligohydramnios secondary to renal disease and bilateral renal agenesis
• Proteinuria
• Restless Legs Syndrome - Just the Facts also in Spanish
• Restless Legs Syndrome Australia  Info on RLS-diagnosis, treatment, and support
• Restless Legs Syndrome Foundation (USA)
• The Cain Foundation for BMS  All about Branchio-oto-renal Syndrome
• The IronTherapy.Org (ITO) website
• Understanding and Preventing Renal Bone Disease  Renal Resource Centre Australia
• Wegener's Granulomatosis  Overview of symptoms, treatment and research NIH (USA)
• Wegener's Granulomatosis Association

Kidney Health Australia publications

• Australian Dialysis Unit Guide also known as 'the DUG'  KHA webpage and directory 
• Back on the Menu  Low Potassium Diet and Recipe Cookbook - KHA publication)
• Kidney Disease: Are you one in three?  KHA publication
• Living with Kidney Failure (7th edition)  KHA publication
• Living with Reduced Kidney Function  KHA publication
• Kids Companion on Kidneys
• Patient Stories
• Three minutes of CKD
• You're in Charge - Self-management health book

KIDney Kids

• Kidney Kids Camp information
• Kidney Kids Capers and Holidays
• Kids Companion on Kidneys
• School Resources
• Useful contacts
• Who are the people looking after you
• Your tablet timetable
• Youth Links

KIDney kids - For their parents

• Kids Companion on Kidneys
• Kidney Kids Camp
• Kidney Kids Capers and Holidays  KHA School Holiday Program
• Urinary reflux in children

Kidney patients, their families and friends

• Australian Dialysis Unit Guide Also known as 'The DUG' KHA webpage and directory 
• Back on the Menu (Low Potassium Diet and Recipe Cookbook)
• Chronic Kidney Disease
• Influenza and Pneumococcal Vaccination  
• Kidney Disease: Are you one in three?
• Kidney and Urinary Health  KHA brochure)
• Kidney Health Australia Health Services and Programs
• Labtestsonline  What do your lab reports mean? Medicine Line 1300 888 763
• Living with Kidney Failure
• Making the most of your visit to the doctor
• Patient stories KHA publication
• Useful contacts
• You're in Charge - self-management health book

Kidney Stones

• Back on the Menu (Low Potassium Diet and Recipe Cookbook)
• Calcium and phosphate
• Kidney Stones
• Nutrition issues and kidney failure  KHA fact sheet
• The Kidney Stone Web Site  USA

Men's health

• Sexuality, Intimacy and Kidney Disease
• Transurethral Resection of the Prostate  KHA fact sheet

Multicultural kidney health info for those who speak English as a second language

• Multicultural Kidney Health Education Resources  KHA Patient Information - Recommended Weblinks

Nutrition and CKD

• Calcium and phosphate
• Dietitians Association of Australia 1800 812 942
• Nutrition and CKD  KHA webpage
• Nutrition issues and kidney failure

Organ donation

• Australian Organ Donor Register 1800 777 203 free call  9am to 5pm M-F
• Deciding about live donation
• Donate Life  Discover - Decide - Discuss - DonateLife™ is an Australian Government Initiative
• Kidney Transplantation
• Life with a single kidney
• Live Donation
• Organ and tissue donation and transplantation

Parents of KIDney kids

• Family and carers
• Finding problems before your baby is born
• Kids Companion on Kidneys
• KIDney Kids Capers  KHA School Holiday Program
• Recommended Weblinks
• Urinary reflux in children
• Urinary Tract Infections

Pregnancy and Kidney problems

• Finding problems before your baby is born

Physical exercise and health

• MeasureUp  Australian Better Health Initiative - Evidence shows that improving diet and being more physically active can help prevent or delay the onset of such chronic diseases
• MeasureUp and CKD  KHA webpage
• Research that supports the Economic Case for Physical Activity & Nutrition

Recommended weblinks

• Health Professional weblinks 
• Organ Donation weblinks
• Patient Information weblinks
• Travel and Dialysis weblinks 
• Youth Links

School resources

• Billy Kidney's Health Tips
• Kids Companion on Kidneys
• Link to animated kidney teaching tool
• Living with Kidney Failure
• Using the Internet to research health information
• What does that word mean?

Self management program

• Choosing whether to have treatment
• Informed consent for medical testing
• Living with Kidney Failure (7th edition)
• Living with Reduced Kidney Function
• Sexuality, Intimacy and Kidney Disease
• You're in Charge - Self-management health book
• What does that word mean?

Superannuation updated January 08

• Government Super Fund (SA, Vic, NSW, Tas, Qld & WA)
• How can I get new Insurance or Super?
• Insurance disability benefits
• Super and Insurance Glossary
• Superannuation death benefits
• Super disability benefits
• Super, Insurance and Centrelink
• Travel insurance for people with kidney disease
• What if super contributions are not paid?
• What is my Superannuation?
• When can I get my Superannuation? 

Transplantation

• Deciding about live donation
• Donate Life  Discover - Decide - Discuss - DonateLife™ is an Australian Government Initiative
• The F.A.I.T.H. Program  Family Accommodation Initiative Transplant Housing  KHA webpage
• Kidney Transplantation
• Life with a single kidney
• Live Donation
• Making a decision about living organ and tissue donation 
• Organ and tissue donation and transplantation

Travel

• Australian Dialysis Unit Guide (The DUG)  KHA webpage and directory 
• Australian Dialysis Konnections KHA Program to help you connect with others to swap 'chairs'
• Dialysis and Travel - tips for people with kidney failure
• DUG - Questions to ask before a short stay Renal Unit visit
• DUG - Short term Renal Unit visits
• Henry Giblett Holiday Dialysis Program
• Medicare - Travelling Overseas 
• Patient Info - Recommended Weblinks
• Taking Your Kidneys on Holidays
• Travel insurance for people with kidney disease

• Blood in the urine
• Kidney and Urinary Health  KHA brochure
• Transurethral Resection of the Prostate
• Urinary reflux in children
• Urinary incontinence
• Urinary Tract Infections  KHA webpage

Using the web to research Kidney health info

• Using the web to research Kidney health information  KHA webpage

Water

• Listen to your thirst - Drink water instead  KHA webpage

WWW2 - Social networking with your kidney community through Kidney Health Australia

• Your Kidney Blog - Kidney Health Australia  No registration
  Topics:  Bloggers from our 'kidney' community  I  Transport  I   Home dialysis  I  Organ Donation  I  Donor Compensation  I  Early Detection and Prevention 
  
• YAP Space  KHA social networking webpage
  • YAP Forum  Logon to post - have your say on thread subjects, or start a new one
  • Chatline  Logon for social YAP - registered Yappers 24 hours a day - spread the word
    • Kidney Katz 16 to 25 - connect and choose relevant open channel or 'room'
    • General chat - connect to chatroom on anything 'kidney' related
    • Health professionals or patients - connect and select your booked channel at a pre-arranged  time, then wait to be accepted by the moderator

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Support Groups, Message Boards and social networking with the Kidney Community Online 

• Australian Dialysis Buddies  Online dialysis support forum  Registration via Yahoo Groups
• BigDandMe  An Australian Kidney Blog - Melbourne
• From the Sharp End of the Needle  List of global CKD Blogospheres and other goodies
• Kidney Cancer Forum  USA - Register to interact on this extensive Message Board 
• Kidney Community Blog  Stanford University USA
• Kidneyspace USA  Kidney Forum online
• MyKidney USA blog and online chat site
• National Kidney Foundation USA  Topics: Transplant athletics, Donor families, Living donors
  Transplant recipients, Patient and Family Council, People with kidney disease and their families
• Renal Support Network   USA - For kidney communities globally
• Yahoo online groups related to kidney disease
• WebMD - Kidney Disorders Support Groups

Young adults

• Sexuality, Intimacy and Kidney Disease
• You're in Charge - self-management health book
• Youth Links  KHA webpage