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Organ DonationFor Patients I Youth Links I Indigenous Health Professionals

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Health Professional Organisations

Asian Pacific Society of Nephrology
Australian and New Zealand Society of Nephrology
Australasian Medical Writers Association

Cochrane Renal Group

Dietitians Association of Australia
Hotline 1800 812 942
Royal Australian College of General Practitioners
Royal College of Pathologists of Australasia
Transplantation Society of Australia & New Zealand TSANZ

Nursing Associations
Australian Practice Nurses Association APNA
Nurse Educators Network NEN
Renal Society of Australasia RSA
Transplant Nurses Association Australia TNAA

Research work and related groups
AusDiab Study Reports
Australian Diabetes, Obesity & Lifestyle Study
Australian Stem Cell Centre
Latest news on research Renal Regeneration Group
Centre for Kidney Research The Children's Hospital at Westmead, Sydney NSW
CKD Queensland Collaborative multidisciplinary research and practice program
George Institute for International Health
Reducing global burden of disease
High Blood Pressure Research Council of Australia
National Health and Medical Research Council NHMRC
- National Institute of Clinical Studies NICS - Evidence - Practice Gaps Report (Vol 2)
Research Australia

Australasian Clinical Trials - focus on Kidney and Kidney Cancer
Australian New Zealand Clinical Trials Registry (ANZCTR)
Australian Kidney Trials Network
- Publications from completed Clinical Trials
- Recruiting * Trials in development * News: Trials in progress * Trial review & approval
Scope of research: clinical trials, both paediatric & adults; secondary prevention trials in high risk populations e.g. diabetes, Indigenous Australians,& those with proteinuria; trials in patients with end-stage kidney disease; in particular dialysis and renal transplant populations; trials in patients with acute renal failure.
Clinical Trials Network Australia
* Clinical Trials search query 'Kidney'

Australian Clinical Practice Guidelines - specific health groups

Chronic Disease
Royal Australian College of General Practitioners
Diabetes management in general practice: Guidelines for type 2 diabetes
-  Red Book - Guidelines for Preventive Activities in General Practice (8th edition)
Putting Prevention into Practice (The Green Book) 2nd edition Chronic kidney disease (CKD)
KHA-CARI Guidelines Caring for Australasians with Renal Impairment - Search CARI Guidelines
- Chronic Kidney Disease Guidelines - Dialysis Guidelines - Transplant Guidelines

Cardiovascular - Heart (CVD)
Guidelines for Management of Absolute Risk of Cardiovascular Disease (CVD) & resources
Online CVD risk calculator www.cvdcheck.org.au Patient risk score of CVD within 5 yrs
Full Clinical Guidelines - quick reference guide Stroke Foundation
Manage your heart & stroke risk (Consumer resource) Absolute Risk - education videos
ISBN: 978-0-9872830-1-6 © National Stroke Foundation 2012. Initiative of National Vascular Disease Prevention Alliance (NVDPA) Diabetes Australia, Kidney Health Australia, National Heart Foundation of Australia & National Stroke Foundation
High Blood Pressure updates for GPs from High Blood Pressure Research Council of Australia

Cancer and kidneys
Education Program in Cancer Care (EPICC) Australian education program
Kidney Cancer Association
USA - education for physicians and patients on kidney cancers
Kidney Cancer Kidney Health Australia site on kidney cancer, treatments, support www.kidneycancer.org.au

Diabetes and kidney failure

Australian Diabetes Council
Diabetes and kidney disease: statistics
Kidney Health Resources for Professionals
Renal damage treatment information for health professionals
Diabetes Australia Best Practice Guidelines for treatment of DT2 
The NHMRC National Evidence Based Guidelines - Diagnosis Prevention & Management of CKD in T2 Diabetes

Home Dialysis
Home Dialysis KHA site on dialysis treatment at home www.homedialysis.org.au
Nocturnal Dialysis Home haemodialysis - Geelong Hospital Victoria
Kidney Health New Zealand Christchurch * Kidney Society Auckland New Zealand

Early detection of Chronic Kidney Disease (CKD), education tools and programs
Kidney Check Australia Taskforce
KCAT - KHA GP and Health Professional education program (CME points)
Chronic Kidney Disease (CKD) Management in General Practice - KHA's valued resource
Detecting CKD and new GFR Calculator (CKD-EPI formula) 
Kidney Evaluation for You - K.E.Y. Program
QKidney® Risk Calculator: assess risk of possible kidney damage over 5 years
-  KHA QKidney® Risk Assessment information and overview
Renal Drug Reference Guide Australian - valuable tool in primary care setting
   Inquiries: Matthew Cervelli info@renalrugreference.com.au or call +61 408 846 901

Kidney Health Australia Reports - CKD in Australia
Australian Dialysis Consumer Survey Includes survey results - Nephrologists and Renal Nurses
CKD in Australia
High level stats and reports - KHA overview
Policy & Advocacy Advocacy for those with chronic kidney disease in Australia
Publications Key Database
KHA * Archived CKD reports and journals
Economic Impact of End-Stage Kidney Disease in Australia - Projections to 2020 - Executive Summary 2010
    -  Economic Impact of End-Stage Kidney Disease in Australia 2006
    -  Cost-effectiveness of Early Detection and Intervention to Prevent Progression of CKD in Australia 2006
2nd CKD Summit - Summary
*1st CKD Summit - Summary
The Australian Chronic Kidney Disease Strategy - Summary and full report

Registry and Statistics in Australia
Australia & New Zealand Dialysis and Transplant Data ANZDATA Registry 
Australian Bureau of Statistics
Australian Institute of Health & Welfare AIHW
-  CKD Statistics and Publications 
Chronic Kidney Disease Monitoring Advisory Committee (CKDMAC) advised by
National Centre for Monitoring Chronic Kidney Disease

Key Education Resources - Kidney Health
Australian Safety & Efficacy Register of New Interventional Procedures - Surgical (ASERNIP-S)
The Kidney & Diseases of the Kidney Renal Resource Centre Australia 22 Mb high resolution graphics
iKidneyDiet - iTunes app Highly recommended - iTunes/Android (US products)
Find levels for the 3 Ps - Potassium, Phosphorous, Protein - useful when watching your food intake for a renal diet
Know Pathology Education on what pathology is, and why it is valuable to anyone's health
Lab Tests Online Australian site explains pathology tests - iTunes & Android apps - multilingual
Translation Service for CALD Communities NSW Multicultural Health Communication Service committed to
Culturally and Linguistically Diverse Communities (CALD) - sort by language or topic
Kidney Health Australia - Translated education resources
Virtual Renal Centre Portal to Australian and global information on kidney disease.


Kidney Health Education - for Health Professionals working with Indigenous Australians>
KHA reviewed resources available on all stages of kidney disease, to conservative or supportive care, for Indigenous Australians.These also highlight a range of dialysis and treatment options.
Bush Tucker & CKD I Home Country NewsEducation Videos I Health Research I Indigenous CKD Stats I Weblinks

Kidney Stories Toolkit
Flipchart series - important teaching resources. KHA proudly hosts this collective body of work. Produced by (NT Renal Services) Acute Care Policy & Service Development. Graphics de-identify images of people in the stories - useful for Health Professionals working with patients with English as 2nd language. Central Australian & Northern Territory versions - audio/ DVD versions.

*No 1: The work of your kidneys *No 2: When your kidneys get sick
*No 3: Living with Kidney Disease *No 4: Treatment options and pathways
*No 5: Haemodialysis *No 6: Peritoneal dialysis
*No 7: Fistula and Catheter *No 8: Diet and kidney disease
*No 9a: Palliative care for people with sick kidneys
*No 9b: Palliative care for people with sick kidneys
*No 10: Transplant x 4: Introduction - Tests required - Surgery - Life after transplant

Kidney Stories are produced by Northern Territory Government & NT Renal Services
Susan Poppe - Senior Nurse, Renal Services Advisor - NT Renal Services 
Officer, 2nd Floor Health House, 87 Mitchell Street, Darwin NT 0810
Call 08 8999 2406 - susan.poppe@nt.gov.au

Kidney Stories resources available from Darwin University Print Shop - price dependent on quantity ordered uniprint@cdu.edu.au

Australian Indigenous ClinicalInfonet  Resource for chronic disease & management for primary health
Australian Indigenous HealthInfoNet - Internet gateway information search engine
Central Australia Renal Study (OATSIH) July 2011
Central Australian Rural Practitioners Association (CARPA) CKD reference manual
Kidney Health Australia - onsite posters / photosheets for Indigenous Australians - sick kidneys
Heart Foundation - Indigenous Australians  'Closing the Gap'
High blood pressure (hypertension flip-chart) Print 2 charts: for Health Worker & patient - highly recommended. Stories in range: ACE inhibitors, Angeotensin receptor blockers, Beta blockers, Calcium channel blockers,Thiazide diuretics.
Renal Resource Centre see Indigenous Australian health - patients & health professionals
National guide to preventive health assessment for Aboriginal & Torres Strait Islander people
National Rural Health Alliance NRHA

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World Kidney Day in Australia -
next 12 March 2015
Held 2nd Thursday in March annually - collaborative project of ISN & IFKF
Global site www.worldkidneyday.org 
2014 theme: Kidneys age just like you do - take care of them!

International Kidney Associations & Foundations
American Society of Nephrology ASN
American Nephrology Nurses Association ANNA
British Renal Association
Canadian Society of Nephrology
Commission for Global Advancement of Nephrology
European Renal Association, European Dialysis &Transplant Association ERA-EDTA
International Society of Nephrology ISN
International Paediatric Nephrology Association IPNA
International Society for Peritoneal Dialysis

International Kidney Foundations & Patient Associations
International Federation of Kidney Foundations
Inventory of IFKF Members is regularly updated. Find contacts & resources suitable for clients with English as 2nd language. Also local insight for dialysis for anyone considering overseas travel.
American Association of Kidney Patients AAKP
European Kidney Health Allliance
European Renal Patients Association
Kidney Health New Zealand (Christchurch)  *  Kidney Society Auckland New Zealand
The Renal Association - UK
US National Kidney Foundation

International CKD Early Detection, Prevention & Evaluation Programs
K.E.E.P. - Kidney Early Evaluation Program
I.K.E.A.J. - International Kidney Evaluation Association Japan Tokyo

International Guidelines - for chronic kidney disease
Canadian Society of Nephrology (CSN) Guidelines
Dialysis Outcomes and Practice Patterns Study D.O.P.P.S Study
European Renal Best Practice Guidelines
Guidelines International Network GIN
Kidney Disease: Improving Global Outcomes
Kidney Disease Outcomes Quality Initiative KDOQI
PREVEND Study (Prevention of Renal & Vascular End-Stage Disease)
Renal Association (UK) e-Guide to CKD Guidelines derived from NICE - SIGN
Summary links to all global Renal Best Practice Guidelines

International health professional education programs
Seize CKD (NKF USA) Educational Tool
NSF for Renal Services UK - Key documents United Kingdom

International Kidney Journals
Atlas of Renal Pathology (American Journal of Kidney Disease)
Atlas of Dialysis Vascular Access

American Journal of Kidney Diseases

British Journal of Urology

Cochrane Collaboration - The Cochrane Library
GP Notebook - Renal Medicine UK website
Hypertension, Dialysis & Clinical Nephrology

Journal of Renal Nutrition

Karger Publishers

Kidney International

Comprehensive list of Medical Journals online
MDLinx Nephrology
Medical news for nephrologists
Nature Clinical Practice
Journals deliver authoritative interpretations of key research
Nephrology Dialysis Transplantation

Peritoneal Dialysis International
* Peritoneal Dialysis Today
UpToDate (Netherlands) access physician-level content

Updated 17 April 2014

Disclaimer: these links have been recommended by our health team and are provided for your convenience. Although the quality of these sites has been reviewed, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. If a link is not connecting we appreciate advice by email khis@kidney.org.au
  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: Apr 2014.