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Kidney Health Australia - important partner organisations

Australian and New Zealand Society of Nephrology ANZSN
Dialysis Nephrology Transplantation DNT
KHA-CARI Guidelines Caring for Australasians with Renal Impairment Guidelines
Renal Society of Australasia RSA

Australian State Renal Health Networks
New South Wales - Renal Services Network
Northern Territory - Renal Services Network    
Queensland - Statewide Renal Health Network
South Australia - Renal Health Network
Tasmania - Department of Health and Human Services
Victoria - Renal Health Clinical Network - Maintenance Renal Dialysis Program 
Western Australia - Renal Health Network  

Affiliations and Partnerships
Australian Institute of Health & Welfare AIHW * CKDMAC * CVDMAC MonItoring Advisory Committees
Australian Primary Care Collaborative  CKD & CVD
Home Dialysis Advisory Committee HDAC
Australian Chronic Disease Prevention Alliance ACDPA
National Vascular Disease Prevention Alliance NVDPA CVD Risk Calculator

Health Professional Organisations
Asian Pacific Society of Nephrology
Australasian Medical Writers Association

Cochrane Renal Group
Dietitians Association of Australia Hotline 1800 812 942
Royal Australian College of General Practitioners
Royal College of Pathologists of Australasia
Transplantation Society of Australia & New Zealand TSANZ

Nursing Associations
Australian Practice Nurses Association APNA
Australian Primary Health Care Nurses Association APCNA
Nephrology Educators Network NEN
Renal Society of Australasia RSA
Transplant Nurses Association Australia TNAA

Research work and related groups
AusDiab Study Reports
Australian Diabetes, Obesity & Lifestyle Study
Australian Stem Cell Foundation
* Snapshot of Stem Cell Research in Australia 
Centre for Kidney Research
New Children's Hospital at Westmead Sydney
CKD Queensland Collaborative multidisciplinary research and practice program
George Institute for International Health
Reducing global burden of disease
High Blood Pressure Research Council of Australia
National Health and Medical Research Council NHMRC
National Institute of Clinical Studies NICS

Research Australia

Australasian Clinical Trials - focus on Kidney and Kidney Cancer
Australian New Zealand Clinical Trials Registry (ANZCTR)
Australian Kidney Trials Network

*Recruiting *Trials in development *News: Trials in progress *Trial review & approval
*Publications from completed Clinical Trials  Scope of research: clinical trials, both paediatric & adults; secondary prevention trials in high risk populations e.g. diabetes, Indigenous Australians,& those with proteinuria; trials in patients with end-stage kidney disease; in particular dialysis and renal transplant populations; trials in patients with acute renal failure.
Clinical Trials Network Australia - Find a Clinical Trial>


Chronic Disease

Royal Australian College of General Practitioners
Diabetes management in general practice: Guidelines for type 2 diabetes
-  Red Book: Guidelines for Preventive Activities in General Practice
Putting Prevention into Practice (Green Book) Chronic kidney disease (CKD)
KHA-CARI Guidelines Caring for Australasians with Renal Impairment Search CARI Guidelines
- Chronic Kidney Disease Guidelines - Dialysis Guidelines - Transplant Guidelines

Cardiovascular - Heart (CVD)
ISBN: 978-0-9872830-1-6 © National Stroke Foundation 2012. Initiative of National Vascular Disease Prevention Alliance (NVDPA) Diabetes Australia, Kidney Health Australia, National Heart Foundation of Australia & National Stroke Foundation
Guidelines for Management of Absolute Risk of Cardiovascular Disease (CVD) & resources
CVD Risk Calculator www.cvdcheck.org.au Patient risk score of CVD within 5 yrs
Full Clinical Guidelines - quick reference guide
Manage your heart & stroke risk (consumer resource) Absolute Risk - education videos 
High Blood Pressure updates for GPs
High Blood Pressure Research Council of Australia

Cancer and Kidneys
Kidney Cancer Kidney Health Australia sister site www.kidneycancer.org.au 
Kidney Cancer Coalition Independent and democratic network of patient support and advocacy organizations
Education Program in Cancer Care (EPICC) Australian education program
Kidney Cancer Association USA - education for physicians and patients
Kidney Cancer Canada

Diabetes and Kidney Failure
Diabetes Australia - diabetesaustralia.com.au

Home Dialysis
Home Dialysis KHA site: dialysis treatment at home www.homedialysis.org.au
Nocturnal Dialysis Home haemodialysis - Geelong Hospital Victoria
Kidney Health New Zealand Christchurch * Kidney Society Auckland 


Early detection of Chronic Kidney Disease, education tools and programs

Kidney Check Australia Taskforce
KCAT - KHA's Health Professional Education Program (CME points education)
Chronic Kidney Disease Management in General Practice KHA resource for health professionals
Detecting CKD * GFR Calculator (CKD-EPI formula)  * CKD - GO! App 
-  QKidney® Risk Calculator: possible kidney damage over 5 years. KHA page on QKidney® Risk Assessment
Renal Drug Reference Guide Valuable support tool in primary care setting Call Matthew Cervelli +61 408 846 901

Kidney Health Australia Reports - CKD in Australia
Policy & Advocacy Advocacy for those with chronic kidney disease in Australia
Fast Facts on chronic kidney disease  KHA page with up to date statistics on CKD in Australia
Publications for Health Professionals  Range of reports on chronic kidney disease

Registry and Statistics in Australia
Australia & New Zealand Dialysis and Transplant Data (ANZDATA) Registry 
Australian Bureau of Statistics
Australian Institute of Health & Welfare AIHW
- CKD Statistics and Publications
- Chronic Kidney Disease Monitoring Advisory Committee CKDMAC
  - advised by National Centre for Monitoring Chronic Kidney Disease

Key Education Resources for patients - Kidney Health
Australian Safety & Efficacy Register of New Interventional Procedures - Surgical ASERNIP-S
The Kidney & Diseases of the Kidney Renal Resource Centre Australia 22 Mb high resolution graphics
Know Pathology Education on what pathology is, and why it is valuable to anyone's health
Lab Tests Online Australian site explains pathology tests - iTunes & Android apps - multilingual
Translations for Culturally & Linguistically Diverse Communities Multicultural Health Communication Service
Translated education resources Kidney Health Australia
Rare Renal Disease groups UK - education & support groups for extensive range of conditions (plus clinical)
Virtual Renal Centre My VMC portal to Australian and global education on kidney disease

iKidneyDiet - iTunes app Highly recommended app: iTunes/Android (US products noted)
Find levels for 3 Ps - Potassium, Phosphorous, Protein - useful when watching food intake for a renal diet.


Kidney Health Education - Health Professionals working with Indigenous Australians>
KHA reviewed education resources on kidney disease, conservative or supportive care, dialysis and treatment.
Bush Tucker & CKD I Home Country News I Education Videos I Health Research I Indigenous CKD Stats I Weblinks

Kidney Stories Toolkit  Flipchart series - important teaching resources
KHA proudly hosts this collective body of work - produced by NT Renal Services. The graphic based flipcharts used in these stories - are useful for health professionals working with patients with English as 2nd language. Audio/ DVD versions.

*No 1: The work of your kidneys *No 2: When your kidneys get sick
*No 3: Living with Kidney Disease *No 4: Treatment options and pathways
*No 5: Haemodialysis *No 6: Peritoneal dialysis
*No 7: Fistula and Catheter *No 8: Diet and kidney disease
*No 9a: Palliative care for people with sick kidneys
*No 9b: Palliative care for people with sick kidneys
*No 10: Transplant x 4: Introduction - Tests required - Surgery - Life after transplant
Kidney Stories are produced by Northern Territory Government - NT Renal Services
Susan Poppe - Senior Nurse, Renal Services Advisor -  call 08 8999 2406 - susan.poppe@nt.gov.au
Development Office, 2nd Floor Health House, 87 Mitchell Street, Darwin NT 0810

Kidney Stories - contact Darwin University Print Shop - price dependent on quantity ordered.
Contact Scott Chamberlain 08 8946 6300 - uniprint@cdu.edu.au or www.cdu.edu.au.

'Kidney Stories' is part of 'Sharing the Full and True Stories about Chronic Conditions Project' including videos
Australian Indigenous ClinicalInfonet  Resource for chronic disease & management for primary health
Australian Indigenous HealthInfoNet  Internet gateway information search engine
Kidney Health Australia posters, photosheets for Indigenous Australians - sick kidneys
Heart Foundation: Indigenous Australians 'Closing the Gap' High blood pressure (hypertension flipchart) 
Others stories provided: ACE inhibitors, Angeotensin receptor blockers, Beta blockers, Calcium channel blockers, Thiazide diuretics.
National guide to preventive health assessment for Aboriginal & Torres Strait Islander people (2nd edition)
National Rural Health Alliance NRHA


World Kidney Day in Australia - Thursday 26 March 2015
Theme: Kidney Health For All - Onsite page>

Next global World Kidney Day - Thursday 10 March 2016
worldkidneyday.org - 2nd Thursday in March - collaborative ISN & IFKF
International Kidney Associations & Foundations
American Society of Nephrology ASN
American Nephrology Nurses Association ANNA
British Renal Association 
Canadian Society of Nephrology

Commission for Global Advancement of Nephrology
European Renal Association, European Dialysis &Transplant Association ERA-EDTA
International Society of Nephrology ISN
International Paediatric Nephrology Association IPNA
International Society for Peritoneal Dialysis

International Kidney Foundations & Patient Associations
International Federation of Kidney Foundations
Inventory of iFKF Members - for contacts & resources suitable for clients with English as 2nd language - local insight on dialysis for overseas travel.
American Association of Kidney Patients AAKP
European Kidney Health Allliance
European Renal Patients Association
Renal Association - UK

International Guidelines - for chronic kidney disease
Canadian Society of Nephrology Guidelines
Dialysis Outcomes & Practice Patterns Study D.O.P.P.S Study
European Renal Best Practice Guidelines
Guidelines International Network GIN
Kidney Disease: Improving Global Outcomes
Kidney Disease Outcomes Quality Initiative KDOQI
Prevention of Renal & Vascular End-Stage Disease PREVEND Study
Renal Association (UK) Overview of guidelines NICE - SIGN
Summary links to global Renal Best Practice Guidelines

Seize CKD (NKF USA) Educational Tool
Kidney Health For Life KH4L - Chronic Kidney Disease Multinational Inventory 
Initial phase focused on Canada, Israel and countries in Europe, namely, Austria, Belgium, Denmark, Finland, France, Germany, Greece, Ireland, Italy, Netherlands, Norway, Portugal, Spain, Sweden, Switzerland, Turkey and United Kingdom

International Kidney Journals
American Journal of Kidney Diseases
British Journal of Urology

Cochrane Collaboration - Cochrane Library European parent site 
GP Notebook - Renal Medicine
UK website
Hypertension, Dialysis & Clinical Nephrology

Journal of Renal Nutrition

Kidney International

Comprehensive list of Medical Journals online
MDLinx Nephrology
Medical news for nephrologists
Nature Clinical Practice
Journals deliver authoritative interpretations of key research in the kidney world
Peritoneal Dialysis International

UpToDate (Netherlands) access physician-level content

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Updated 14 May 2015
Disclaimer: these links have been recommended by our health team and are provided for your convenience. Although the quality of these sites has been reviewed, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. If a link is not connecting we appreciate advice by email khis@kidney.org.au
  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: May 2015.