Our Kidney Chat Newsletter -#9 December 09 I  #8 August 09 I  #7 March 09  I  #6 November 08 

These links are provided for your convenience - see also specific selections at Organ Donation I Health Professionals I Patient Information. Although the quality of the sites has been checked, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link  to our website without our knowledge or permission. Let us know if a link is not connecting health@kidney.org.au or phone our Kidney Health Information Line

 For hearing impaired TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555 727

Sites for young adults with CKD

• Chronic Babe Online community for younger women with chronic health issues
• Chebucto Teens health project, Nova Scotia Canada - hot topics to discuss with your friends
• CKD online  DaVita USA - animated flash on how the kidney and dialysis works!
• Kidney education page Dr Raj provides info on what can go wrong with the kidney and urinary system - images, diagrams, xrays, info on treatment - excellent education module
• Mental Health of Young People  HealthInsite NSW website - Great info, to keep your cool!
• Renal Services Network  RSN Network serving those affected by kidney disease (USA website)
• Reality Check  For young adults with diabetes
• Teenagers with chronic kidney disease  DaVita - Guide to living a full life
• Teens Health - Hot Topics Heaps of articles on lifestyle issues teenagers want to know about USA
• Teens First for Life UK  Tips on just about everything to do with teens and life, health and hospital!

Sites for Kidney Kids

• iKidney: Kids and Parents  For kidney kids and their families - heaps of info on many subjects 
• Kids Companion on Kidneys KHA publication Family friends I Important contacts I Tablet timetable    
• Kidney Kids Cooking  Have fun with cooking power food that your kidney will love - USA
• Kids First for Life Tips on just about everything to do with kids and life, health and hospital! UK
• Kidney Kids Health  Parents - Kids and Tenn section - Info on how a child with CKD might feel and what treatments may be involved USA
• Kidney Kids Fun page  Kidney Health NZ - information, books, puzzles and colouring pages
• Kidney Kids Support Group New Zealand  Visit Kee-Wee who guides you through the kidney world
• Playnormous Health games, have fun and learn about your health at the same time USA
• Websites for Kidney Kids and their families - Kidney Times  Broad spectrum of useful information
• What kids need to know about Kidneys

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Kidney and Urinary Tract Educational Resources - including awesome 3D animations

• A guide to using the internet to research health information   KHA Fact Sheet
• Blausen Medical Atlas Amazing resource showing the human body and various health conditions
• Chronic Kidney Disease education  DaVita - Excellent animated flash of how the kidney works!  
• Discovery Health Beyond  Kidney and bladder health education (high speed connection for 3D player)
• Health Encyclopedia   (En Español) *Medical Dictionary *Interactive Body Guide *3D Medical Animations - Urinary System *Introduction *Kidneys: location and structure *Kidneys: function *Urine production
• Karolinska Institute of Urology  Patient information collection
• Kidney Times Online Quiz  USA
• Kidney Glossary  Kidney Health Australia
• Kidney and Urinary Tract Disorders  Mercksource Health Library 
• Kidney education modules (USA) Patient Education Institute (Also in Spanish)
  *IVP (Intra Venous Pyelogram) *Kidney Failure *Kidney Stones *Kidney Transplant
• Medical Online Dictionary  Virtual Medical Centre Australia
• National Kidney and Urologic Diseases Information Clearing House (USA)
• Online simulation of how diabetes occurs Diabetes Australia-NSW  Flash animation
• The Kidney Atlas  Complex science and medical education (best with high-speed connection)
• The Kidney and diseases of the kidney  See individual chapters or entire book (22 MB) see many detailed beautiful graphics (best with high-speed connection)
• Urodynamics  Interesting information on the urinary system
• Virtual Medical Centre WA 3D animation *Bladder Cancer *Bladder Incontinence *Bladder Infection  *Blood Pressure *Diabetic Nephropathy *Kidney Dialysis *Kidney Stones *Kidney Transplant *Urinary Tract Infection
• Wikikidney.org  Online encyclopedia of the kidney
• Wired for Health UK  All about health and living well, easily understood - use images to navigate four entry levels, birth to 16 years.  Each level offers separate kids, parent and teacher sections. 

 Healthy Living

• Better Health Channel: healthier living online (VIC)  Quiz: How much do you know about your health
• Beyond Blue  National Australian Depression Initiative  1300 224636
• Chapter 9 - Medications from KHA's Living with Kidney Failure 7th edition
• Da Vita  Highly recommended USA site - CKD, emotional health and wellbeing - sexuality, anger, depression, holiday blues, caregiver stress, sleep, positive thinking, benefits of pets, etc.
• Dietary Approaches to Stop Hypertension (DASH) diet - Lower blood pressure through diet and exercise
• Just the Facts: Dealing with Depression (also in Spanish)
• Just the Facts: Exercise for Life (also in Spanish)
• Just the Facts: Skin and Hair Problems on Dialysis  (also in Spanish)
• Live Life Well  A NSW Health Resource
• myDr.com.au - Health Toolkit  Calculators to assess your health and wellbeing status, risk tests and learn more about healthy living with interactive quizzes
• SANE Australia  Pfizer Report - Depression and Chronic Illness

How to get the most out of life

• Chapter 12 - Getting the most out of life from KHA's Living with Kidney Failure 7th edition
• Chapter 11 - Living with kidney failure from KHA's Living with Kidney Failure 7th edition
• Chapter 13 - Sexuality, intimacy and fertility from KHA's Living with Kidney Failure 7th edition
• Just the Facts: Dealing with Depression  (also in Spanish)
• Just the Facts: Exercise for Life  (also in Spanish)
• Just the Facts: Skin and Hair Problems on Dialysis  (also in Spanish)
• Participate in Health Aussie site with useful health consumer info - 22 page guide
• Rehabilitation and Exercise on dialysis  brochure from Renal Resource Centre, NSW
• Urinary Tract Infections Find out how to avoid them

Infoline numbers

• Beyond Blue  For youth a National Australian depression initiative  1300 224 636 
• Life Goes On  HOPELINE 24 hr support  1300 364 673 - There are times, often after hours, when you need someone to talk to - someone who can lift you out of the pit of despair and inspire you to carry on.
• Lifeline 13 11 14  for 24-hour crisis telephone counseling
• QUIT  Ring 13 78 48 and ask for Quit Pack to be sent free of charge  
• Medicine Line  1300 888 763 Independent pharmacist advice (9am to 6pm M-F) independent info on prescriptions, over-the-counter, and complementary (herbal/natural/vitamin/mineral) medicines
• SANE Helpline 1800 18 SANE (7263)
• Smokenders Australia  Helpline 1800 021 000 
• Smoking, is it really that bad for you?  Virtual Medical Centre WA
• Suicide Call Back Service  Free, nationwide telephone service that offers short to medium term support for people at risk of suicide - Referral Line 1300 659 467 staffed between 10am and 8:30pm (EST), 7 days a week. If calling outside these hours, leave a message and team member will contact you the next day. This number is not a crisis line. Click here for 24 hour support services

Think about organ donation and transplantation - The Gift of Life

• Get the Facts  USA website
• Kidney Transplant Virtual Renal Centre WA - 3D animation on kidney transplantation
• Kidney Transplantation in children GOSH - UK website Also in Arabic, Bengali, Greek, Turkish
• Kids Kare  Provides information on organ donation and organ transplants USA
• Organ Donation and Transplantation  KHA's area this site with loads of information
• Play with Transplant Man  Renal Support Network USA 
• Superhero yourself  UK Transplant's online application where you create your own superhero
• The Interactive Body: Organs and tissues for transplant  3D view of human organs and tissues

Young people like me with CKD

• Diabeteskidsandteens  DiabetesAustralia NSW - website for kids and teens with Diabetes 1
• National Kidney Federation UK  YPG Zone (Young Persons Group) run by young patients
• NKF's YPG Zone  UK website - Run by young patients for young patients (0-18 years and 18-40 years)
• YAP Space - Kidney Katz  KHA's area for young adults 16 to 25 who want to chat online

Youth Helpline 1800 551 800 - (24 hrs every day) www.kidshelp.com.au is a fun and friendly website with lots of info, a place where you can get help and connect.  What is Kids Helpline? Young people (5 to 25 year) can phone, email or chat online with a counsellor! 

Join Livewire! Starlight Children’s Foundation - a supportive place for kids, teens and their families to connect, share experiences - you are not alone. Membership is free to any 10 to 21 year old living with serious illness or disability. Register at www.livewire.org.au Freecall 1300 727 827 or info@livewire.org.au