KidneyHealthAus www.youtube.com/user/KidneyHealthAus

KidneyHealthAus  KidneyEd TV - YT Playlists selected by us
We review high quality education YouTube videos videos and group them in playlists - to ensure high quality content of interest to anyone wanting to learn more about their kidneys and CKD. View videos and cool animations - Kidney and urinary systems in the body. Several playlists available.

Youth Helpline 1800 551 800  (24 hrs every day)  
www.kidshelp.com.au  Fun and friendly website, a place where you can get help and connect. What is Kids Helpline? Young people (5 to 25 year) can phone, email or chat online with a counsellor!

Can online support groups or social networking sites make you healthier?
Support groups are growing fast online. See ABC Health and Wellbeing - Health benefits of social networking

You are invited to join Livewire
Support for kids, teens and families to hang out and yap, share experiences and know you are not alone. Free for anyone 10 to 21, with serious illness or disability. Register www.livewire.org.au call 1300 727 827 or info@livewire.org.au

Kidney Health Information Service (KHIS line) For people with, or affected by, kidney and urinary disease

National Relay Service  www.relayservice.com.au - is a free phone solution for the hearing impaired or those with a speech impairment. Use this service to connect to our KHIS line - quote 1800 4 54363 as '9' is silent for this purpose.
TTY/Voice 133 677  |  Speak & Listen (SSR) 1300 555 727  I  Online www.iprelay.com.au/call/index.aspx

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YOUTH LINKS -surf websites with fun resources, CKD sites especially for you

These links are provided for your convenience - see specific selections at Organ Donation I Health Professionals I Patient Information. Although the quality of the weblinks below has been checked, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. Let us know if a link is not connecting health@kidney.org.au

Education websites for young adults with CKD

• Chronic Babe Online community for young women with chronic health issues  
• Kidney education page  What can go wrong with the kidney and urinary system - images, diagrams, xrays, treatment - education module
• Mental Health of Young People  Info on how to keep your cool!
• Renal Services Network USA
• Roy Jones Education Awards Australian young kidney leaders - Applications close 30 May annually Australian young kidney leaders. This education award is for you - 1 prize $800 + 4 prizes x $400 (see DATA Victoria).
• Teenagers with chronic kidney disease  DaVita - Guide to living a full life
• Teens Health - Hot Topics USA On lifestyle issues
• Teens First for Life UK Tips on teens and life, health and hospital!

Forums for people like me with CKD

• Diabeteskidsandteens  DiabetesAustralia NSW - for kids and teens with Diabetes 1
• Young@NKF has been put together by young patients for young patients
• Siblings Australia Inc  Support for brothers and sisters of people with special needs; including disability, chronic illness and mental health issues - forums, workshops and other good programs
• YAP Space  You can YAP chat in a secure space (hint - check in 7 pm) or post on Forum. (Registration essential). If you prefer, comment on our Kidney Blog (no registration).

Social networking and more

• Australian Dialysis Buddies  Online dialysis support forum  Registration, via Yahoo Groups
• BigDandMe  Aussie Kidney Dialysis Blog - Melbourne
• ChIPS Support for 12-25 year olds living with chronic illness - Royal Children's Hospital, Melbourne
• From the Sharp End of the Needle  List of global CKD Blogospheres and other goodies
• Home Dialysis Central - Message Board USA - supported by Aussie health professionals
• Kidney Blog - Kidney Health Australia  No registration 
• Kidney Cancer Forum  Kidney Cancer Association USA - Register to interact
• Kidney Community Blog Stanford University USA
• Kidneyspace USA Kidney Forum online
• MyKidney USA blog and online chat site
• National Kidney Foundation USA Topics: Transplant athletics, Donor families, Living donors
  Transplant recipients, Patient and Family Council, People with kidney disease and their families
• Renal Support Network  USA - For kidney communities globally
• Yahoo online groups related to kidney disease
• WebMD - Kidney Disorders Support Groups

Healthy Living

• Be a player – Get up and play an hour a day NIH USA SmallSteps HealthierUS.gov You'll enjoy this one!
• DaVita Highly recommended USA site - CKD, emotional health and wellbeing - sexuality, anger, depression, holiday blues, caregiver stress, sleep, positive thinking, benefits of pets, etc.
• Dietary Approaches to Stop Hypertension (DASH) diet Lower blood pressure through diet and exercise
• Drink water instead Kidney Health Australia webpage
• Dialysis Cartoons A range of cartoon images on dialysis
• Hair, nails and Chronic Kidney Disease DaVita
• Live Life Well NSW Health Resource
• Measure Up Australian Better Health Initiative Evidence shows improving diet and physicaly fitness can help prevent or delay the onset of chronic disease
• Measure Up and CKD KHA webpage in 'For Patients' section - Measure Up with health eating - Measure Up with physical activity - Measure Up and wellness
• myDr.com.au - Health Toolkit Calculators to assess your health and wellbeing status, risk tests and learn more about healthy living with interactive quizzes
• Teen Health Information USA website - offers loads of links to articles on stuff you want to know about
• There’s No Such Thing As A Silly Question Guide for families living with a child with chronic illness, disability, mental illness or life-threatening condition - free from Women’s & Children’s Hospital Foundation - 08 8464 7900 or nosuchthing@wchfoundation.org.au

Helpline numbers and websites

• Beyond Blue For youth a National Australian depression initiative 1300 224 636
• Life Goes On HOPELINE 24 hr support 1300 364 673 - We offer comfort and guidance to the seriously ill and carers – and for those who survive and struggle to find meaning in their lives Online support
• Lifeline 13 11 14 for 24-hour crisis telephone counseling
• Medicine Line 1300 MEDICINE (1300 633 424) Independent pharmacist advice (9am-6pm M-F) on prescriptions, over-the-counter, complementary (herbal/natural/vitamin/mineral) medicines
• QUIT Ring 13 78 48 and ask for Quit Pack to be sent free of charge
• SANE Helpline 1800 18 SANE (7263)
• Smokenders Australia Helpline 1800 021 000 Smoking, is it really that bad for you?
• Suicide Call Back Service 1300 659 467 (24 hrs) For URGENT crisis service numbers/advice

How to get the most out of life - from KHA's Living with Kidney Failure 7th edition

Kidney and Urinary Tract education resources - awesome 3D animations

• A guide to 'Using the Web' to research health information KHA webpage
• How stuff works - kidney and urinary system Discovery Health Beyond
• Kidney Times Online Quiz USA
• Kidney Glossary Online at Kidney Health Australia
• Kidney and Urinary Tract Disorders Mercksource Health Library
• KidneyHealthAus - on transplant and organ donation Our KHA YouTube profile playlist selections
  Kidney education modules USA Patient Education Institute
  * IVP (Intra Venous Pyelogram) * Kidney Failure * Kidney Stones * Kidney Transplant
• Medical Online Dictionary Virtual Medical Centre Australia
• The Kidney Atlas sets out complex science/medical kidney education (high-speed connection)
• The kidney and diseases of the kidney (22 MB) awesome book, fine graphics (high-speed connection)
• Urodynamics Interesting information on the urinary system
• Virtual Medical Centre WA 3D animations - relevant sections you may try:
  *Bladder Cancer *Bladder Incontinence *Bladder Infection *Blood Pressure *Diabetic Nephropathy *Kidney Dialysis *Kidney Stones *Kidney Transplant *Urinary Tract Infection
• Wikikidney.org Online encyclopedia of the kidney

Think about organ donation and transplantation - The Gift of Life

• Get the Facts USA website
• Kidney Transplant Virtual Renal Centre WA - 3D animation on kidney transplantation
• Kidney Transplantation in children Great Ormond Street Hospital - UK
  • Information on Kidney Disease and Haemolytic-Uraemic-Syndrome (HUS)
• Kids Kare Provides information on organ donation and organ transplants USA
• Organ Donation and Transplantation KHA's area this site with loads of information
• Play with Transplant Man Renal Support Network USA
• The Interactive Body: Organs and tissues for transplant 3D view of human organs and tissues
• Interactive Health Activities HealthInsite Australia - range of health calculators and other fun stuff

UPDATED 14 NOVEMBER 2011