Kidney Health Australia - Education Advocacy Research Support
Welcome to our website area for social networking with members of our Australian kidney community - where Aussies and others world wide with a connection to CKD can meet, chat, share and support each other. We hope this may alleviate some isolation felt when living with a chronic condition.
It is important to share your story with others - you are not alone!
YAP Space is regularly monitored and moderated by staff from our highly qualified health team.
If you have question,s but prefer a private reply confidentially email info@kidney.org.au and a Health Manager can supply you with information via email.
| YAP SPACE AREAS |
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YAP FORUM Logon to post - have your say on thread topics, or start a new one yourself.
- General YAP Chat - connect with others to chat on 'kidney' related topics, or just hang out.
- Private YAP Chat - for kidney health professionals, consumers, patient groups, educators - connect to a free pre-booked chatroom to discuss topics privately. Email info@kidney.org.au to make a booking for this area.
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YAP CHAT Logon anytime - make arrangements with a friend who is also a registered 'Yapper' to meet online. Access 24 hours a day for registered users (hint - best time to logon is early evening).
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YOUR KIDNEY BLOG
No registration, start blogging now - speak out, have your say
Your entry may be moderated if it does not fulfil Kidney Health Australia Social Netiquette Guidelines.
Click on topic link - enter your blog note in box at bottom of blog page - tick box to upload your comment.
Topics: Bloggers from our 'kidney' community I Donor Compensation I Home dialysis I Organ Donation I Patient Transport
NOTE - Material posted is reviewed - personal ID, contact information, health information which is not evidence based or product promotions must not be displayed. We encourage free and creative expression, however in any environment where people are given this freedom, conflict may arise. If an author uses language or materials that offend it will not be displayed. Do not post content that is unlawful, harmful, threatening, abusive, harassing, defamatory, vulgar, obscene, libelous, invasive to another's privacy, hateful, or racially, ethnically or otherwise objectionable. Treat other people's privacy as you would your own.

YOUR KIDNEY COMMUNITY ONLINE
If you use a 'kidney' related support group online, refer to a useful kidney health education webpage (other than ours) or have found a YouTube education video which has been helpful, email teresa.taylor@kidney.org.au so we can review it to offer as an external link to other users. We'd love to hear from you at any time.
www.facebook.com/KIDNEYHEALTHAUST

KidneyHealthAus KidneyEd TV
Offers a selection of YouTube videos grouped into playlists. Each video has been reviewed and judged as high quality education material, of interest to anyone who wants to learn visually about their kidneys and kidney failure.
Start with viewing lots of cool animations in this playlist - Kidney and urinary systems in the body.
SUPPORT GROUPS, MESSAGE BOARDS, SOCIAL NETWORKING
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BigDandMe Aussie Kidney Dialysis Blog - Melbourne
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ChIPS Support program for 12-25 year olds with chronic illness - Royal Children's Hospital Melbourne
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MyKidney USA - a blog and online chat site
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National Kidney Foundation USA Topics: Transplant athletics, Donor families, Living donors
Transplant recipients, Patient and Family Council, People with kidney disease and their families
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Siblings Australia Inc Support for brothers and sisters of people with special needs including disability, chronic illness and mental health issues - forums, workshops etc.
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Other kldney health problems - rare conditions, resources - Message Boards and Support Groups
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Amyloidosis Info and Support Groups - Amyloidosis, Myeloma, Waldenstrom's Macroglobulinemia
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Arthritis Australia Lupus, Scleroderma and related conditions: Arthritis freecall infoline 1800 104 100
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NephKids Online Cyber-Support Group Interactive email group for parents of kids and adolescents with CKD - supporting by associates of National Kidney Foundation USA - registration required
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Register to interact in Livewire - moderated chatrooms to enable you to connect in a safe environment with others who live with chronic disease, . Livewire is a supportive space for kids and teens to hang out, connect, share experiences, creatively express themselves. Membership is free for any 10 to 21 year old living with serious illness or disability - www.livewire.org.au
Updated 12 May 2013
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