 Welcome to YAP Space
This is our social networking area for Australia's kidney community - where Aussies and others world wide with a connection to CKD, can meet, chat, share and support each another. We hope this may alleviate some isolation felt when living with a chronic condition. It is important to share your story - you are not alone!
All YAP Space areas are regularly monitored by our health staff. If you have questions but prefer a private reply, confidentially - chatroom@kidney.org.au - a Health Manager can supply information via email.
- Register now - an email to your nominated email address confirms your registration - but approval may take a few days (we do this as quickly as possible)
- Read our Terms of Reference and Rules of Conduct below, to understand your agreed responsibilities.
- See our Privacy Policy defining the confidential management of your information.
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- Forum Logon to post - have your say on thread subjects, or start a new one
- Chat Logon anytime - registered Yappers only 24 hours a day - spread the word
- Kidney Katz 16 to 25 - connect and choose your 'room'
- General YAP Chat - connect with others about anything 'kidney' related
- Health professionals, consumers, patient groups, educators - connect and choose a free pre-booked private YAP chatroom to discuss online topics privately - enquiries to chatroom@kidney.org.au . At specified time, login to allocated room and wait to be accepted by moderator.
- Your Kidney Blog No registration, start blogging now - speak out, have your say
Click on subject below - enter your blog note in box at bottom of blog page - tick agreement to upload comment. Entry may be moderated if it does not fulfil our Terms of Reference or Rules of Conduct.
Topics: Bloggers from our 'kidney' community I Transport I Home dialysis I Organ Donation I Donor Compensation I Early Detection and Prevention
NOTE - Material posted is reviewed - personal ID, contact information, health information which is not evidence based or product promotions must not be displayed. We encourage free and creative expression, however in any environment where people are given this freedom, conflict may arise. If an author uses language or materials that offend it will not be displayed. Do not post content that is unlawful, harmful, threatening, abusive, harassing, defamatory, vulgar, obscene, libelous, invasive to another's privacy, hateful, or racially, ethnically or otherwise objectionable. Treat other people's privacy as you would your own.
Your Kidney Community Online
If you use a quality kidney community social networking chat site or support group online, which you are impressed with and not on the list below, or a kidney health education webpage or YouTube video you found helpful, email chatroom@kidney.org.au to review it for listing on our recommended links below.
Our Facebook profile - Kidney Health Australia
www.facebook.com/KidneyHealthAustralia
Come join the fun with our Facebook family (258 friends July 26 2010, climbing daily). Send us an 'add' - we will be delighted to welcome you.
Our Twitter profile - KidneyHealth
Tweet away or 'follow us' at our profile. We give you the latest news from our kidney community in Australia. Tell us what you think!
Our YouTube profile - KidneyHealthAus 
www.youtube.com/user/KidneyHealthAus
We offer videos uploaded by us for your information, with some featured on this website.
Online YouTube education playlists
We've also selected good quality education YouTube videos, produced by experts in their field specifically for education, featuring amazing animations and tutorials. The education playlists we offer list screened videos (to ensure high quality content) of interest to anyone who wants to learn more about their kidneys, urinary system or about treatments for CKD. Start with our playlist selection Kidney and urinary systems in the body. We will list other links to our recommended playlists over the coming weeks and months, but if you know your way around YouTube, you will see them online at our profile.
Support Groups, Message Boards and social networking
- reach out to our kidney community online
General Message Boards and Support Groups for kidney disease
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BigDandMe Aussie Kidney Dialysis Blog - Melbourne
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ChIPS Support program for 12-25 year olds living with chronic illness, which offers valuable support to those involved ( Royal Children's Hospital, Melbourne)
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National Kidney Foundation USA Topics: Transplant athletics, Donor families, Living donors
Transplant recipients, Patient and Family Council, People with kidney disease and their families
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Other kldney health problems - rare conditions, resources, Message Boards and Support Groups
YAP Space Terms of Reference
- All sessions are recorded - infringements may be reported to chatroom@kidney.org.au
- Use of YAP Space is agreed by continued acceptance and compliance with our Terms of Use and Rules of Conduct.
- Your continued use of this site constitutes your agreement to any modified Terms of Use and Rules of Conduct.
- Kidney Health Australia may change at any time, the Terms of Use and Rules of Conduct. These changes will appear in the Terms of Use and Rules of Conduct, and available for your perusal.
- The Kidney Health Australia website www.kidney.org.au is provided as a homepage for people living with and/or affected by kidney disease.
- YAP Space allows Registered Users an opportunity to gain emotional support and share experiences.
Information provided on www.kidney.org.au or offered on YAP Space should not be used in place of consultation with, or advice of, your physician or other healthcare provider.
Rules of Conduct
You are expected to observe all Rules of Conduct in any chat session, during both monitored and unmonitored chats and in your postings in YAP Forum.
- Please use good judgment when you chat. YAP Space is not intended as a Forum for lay medical advice and we caution you strongly to refrain from doing so. You are expected to observe all guidelines below and your conduct should be guided by common sense, basic etiquette, but especially these Rules of Conduct:
- In any communication or posting always be polite and courteous, introduce yourself upon entering the room.
Respect the opinions and practices of others in the chat room. We ask that you do not argue or openly debate with anyone.
- The use of rude or abusive language, blatantly insensitive remarks, or purposely annoying comments is not acceptable.
- It is strictly forbidden to advertise or promote cures, treatments, or products.
- Do not offer personal health advice to anyone online, or suggest treatment options with them - this is the role of an expert health professional.
- Do not try to obtain personal information from a Yapper - phone numbers and email addresses.
- Chat safely: we strongly encourage you NOT to give your last name, home or email address, phone numbers etc. If you do decide to exchange this information we suggest you use the private message 'whisper' function.
- Do not SHOUT: do not use all capital letters when posting messages as the use of all capital letters in a in a chat room is considered to be 'shouting' and shows very poor manners.
- Do not allow the posting of any website addresses (URLs) in chat sessions. Our moderators cannot check the appropriateness of all web sites posted while they are monitoring the chat room.
Infringements of the Rules of Conduct may be reported to chatroom@kidney.org.au - if reported for 'bad behaviour' a Yapper may be banned permanently. Kidney Health Australia reserves the right to remove or ban you from the room for violating any of the above guidelines or for any other behavior that is deemed to be inappropriate for our rooms.
Acronyms and abbreviations for chat online
Shortcuts listed below are often used to speed up chat or you can just use symbols to express emotions - see "Smileys" pull-down menu.
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AKA - Also known as
AFK - Away from keyboard
ASL - Age/Sex/Location
BBS - Be back soon/shortly
BFN - Bye for now
BRB - Be right back
BTW - By the way
CYA - See ya
FAQ - Frequently asked questions
FYI - For your information
GW - Good work
IM - Instant message
IMHO - In my humble opinion
IMS - I am sorry
JIC - Just in case
K - Okay
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KIS - Keep it simple
LOL - Laughing out loud
LTNS - Long time no see
LTNT - Long time no talk
NBD - No big deal
NRN - No response necessary
OIC - Oh I see
PLS - Please
ROFL - Rolling on the floor laughing
RYOK - Are you OK?
THX - Thanks
TTYL - Talk to you later
WB - Welcome back
WFM - Works for me
WTG - Way to go
YW - Your welcome
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Updated 26 July 2010 |