ENLARGE TEXT
Send to a friend!
Make my home page
info@kidney.org.au
Hi Megan,
I too was diagnosed with kidney failure at a young age....just before my 22 birthday. There have been many times in my life since I was diagnosed that I wondered "why me?" and "that no one understands what I'm going through". But believe me Megan...you are not alone, and may of us feel exactly like that..
I was put on many different medications, that didn't seem to help my condition too much. I even had Chemotherapy, which was a trail process at the time. But for me, having an aggressive form of kidney faiure, the "miricle remedy" I so hoped for, was not to be found. After the chemo which I endured for 5 months, there was a slight improvement in my kidney function, but alas that was short lived.
I was put on new mediations, and basically waited until my kidneys had worsened and I had to start dialysis. I have been told over the years, that I may not ever have children, that comment still hurts as much today as it did the first day I was told. Especially when beiing a woman makes you feel as that it is your natural given right to have children. The gyno I saw said that once I had recieved a transplant and got my kidneys under control, and then started hormone theropy there was a small chance of me possilbly being able to have kids. I guess I'll just have to wait and see about that.
But since that day I have really considered adoption, or becoming a foster parent. There are so many children out there who are in despearate need of a safe and loving home. Having your own child, and experiencing all the joys of motherhood, would mean the world to me, but then knowing I could provide a loving home for a child in need would be pretty special too.
Anyway, I just wat you to know you are not alone, and that there is hope for us all. I am hppy to chat you too of you'd like to chat sometime .
Good Luck in all that you do.
Regards,
MissyD
Hi,
Im writing to ask about some more information on FSGS and IGA i have one kidney was born with it, and in that kidney i have both of these diseases. im not long 18 i found out in november last year. im also about to be put on cyclosporine and also a form of steriods, not sure what the doctor is puttting me on. i dont like to follow every word of my low salt diet but i do avoid eating salty food.
Any information would be nice. thanks
Hi Kem
You are trying to help yourself and reaching out to others - and that is a really positive step in becoming an expert patient.
You will find lots of information in our Fact Sheet on IgA Nephropathy at www.kidney.org.au/ForPatients/HealthFactSheets/tabid/609/Default.aspx
If you have any further queries, you can ring our Kidney Health Information Service Line (KHIS) freecall to 1800 4 KIDNEY - 1800 4 543 639 and a Health Manager will personally ring you back and chat with you about your concerns.
Some other links of interest noted in the PATIENT INFO area, under RECOMMENDED LINKS
Your doctor is your best contact for information - they should give you time and explain the condition to you, tell you what you can do to help yourself and give you detailed information on your treatment plan etc. But we can help you too.
Warm regards - your Web Angel.