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  YAP Forum  General subjects - have your say and be heard  Can't Sleep...
 Re: Can't Sleep
 
 16/02/2009 23:02:56
Kevyg
1 posts


Re: Can't Sleep
 (N/A)

Hey Guys

Just joined yap space and doing my 1st post. My GFR has just hit 14 and I just had my AV fistula done last week. Yeah! (I think?)
Many of your sentiments echo in my own mind, I am so ready to get started on Dialysis, after being diagnosed 28yrs ago with CKD

Willis you mentioned about itchy skin, I discovered at my local Kidney support group it a common thing. Anyway since I started using QV wash and sorbolene I have been almost free of the itches (mine were so bad I would wake up during the night). My sleep patterns are changing too. I find myself napping at odd times and the appetite has its good and bad days too.

I live 2 hours from what will be my training centre and I’m hoping to start nocturnal dialysis training in about 6 months. Are you aware you might get travel and accommodation subsidy? In Victoria it’s called Victorian Patient Transport Assistance Scheme (VPTAS).

Any way that’s my 2cents worth hope you guys are keeping well

 27/02/2009 12:19:37
Terryp
1 posts


Re: Can't Sleep
 (Australia)

Hi All

I have just started in centre hymo 2 weeks ago having being diagnosed with polysystice kidneys 18 years ago when I was 27. I intend to see how I go as my dialysis centre is close to work and home. I currently dialyse from 4.30pm on Mon, Wed & Friday which allows me to continue working full time. I also have mild itching but really suffered with cramps and in the last 4 months swollen ankles and of course the constant fatigue. I reckon I could sleep 20 hours a day and still be tired.

I have had great care from my Nephrologist over the last 11 years and the staff at the Dialysis Centre have been first rate with their professionaism and friendliness. Although just starting out on my dialysis journey I take great comfort from this.My wife and 2 adult children are also great support.

Unfortunately I do not have the option of a live doner at the moment so have been placed on the Transplant List. My aim now is to remain as healthy and positive as possible until my opportunity for a Transplant comes along.

I look forward to sharing past and future experiences with others through forums such as this.   

 06/03/2009 14:43:48
willis
7 posts


Re: Can't Sleep
 (N/A)

Hi everyone!

Thought it was about time to do a bit of last update. It's great to see some new names in the forum the more the better I say. Hey Jeremy thanks for the tips on the itching, I have given it a go and it seems to be helping (some relief at last), hope all is going well for you!

Well since my post I have seen my nephrologist twice, got a nice surprise last visit,my GFR reading had risen to 13 my previous reading had been 11! Common sense tells me not to get carried away though as I know it really means that the inevitable has just been prolonged a little more! I had my fistula scanned and checked and it's buzzing away nicely all ready to be used when needed.

I have also met with my transplant team just to revise all my tests to check everything is in order so I can be placed on transplant list once I start dialysis. Just have cat scan to go but can't have that till I have started to dialyze because of the dye injected could kill off any residual renal function, just another thing to help complicate matters LOL! My medical staff are great, I have complete confidence in them all. I've been meeting with them all for so long now they all seem more like family than medico's!

Overall I'm feeling pretty good and confident at the moment but I know only too well I could wake up tomorrow and all that has flown out the window! It's just that when I'm feeling up it truely helps to erase the low times even if it is only just for a little while. Hope eveyone is keeping well!!!!
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Last updated: Mar 2010.