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Hey Guys
Just joined yap space and doing my 1st post. My GFR has just hit 14 and I just had my AV fistula done last week. Yeah! (I think?)Many of your sentiments echo in my own mind, I am so ready to get started on Dialysis, after being diagnosed 28yrs ago with CKD
Willis you mentioned about itchy skin, I discovered at my local Kidney support group it a common thing. Anyway since I started using QV wash and sorbolene I have been almost free of the itches (mine were so bad I would wake up during the night). My sleep patterns are changing too. I find myself napping at odd times and the appetite has its good and bad days too.
I live 2 hours from what will be my training centre and I’m hoping to start nocturnal dialysis training in about 6 months. Are you aware you might get travel and accommodation subsidy? In Victoria it’s called Victorian Patient Transport Assistance Scheme (VPTAS).
Any way that’s my 2cents worth hope you guys are keeping well
Hi All
I have just started in centre hymo 2 weeks ago having being diagnosed with polysystice kidneys 18 years ago when I was 27. I intend to see how I go as my dialysis centre is close to work and home. I currently dialyse from 4.30pm on Mon, Wed & Friday which allows me to continue working full time. I also have mild itching but really suffered with cramps and in the last 4 months swollen ankles and of course the constant fatigue. I reckon I could sleep 20 hours a day and still be tired.
I have had great care from my Nephrologist over the last 11 years and the staff at the Dialysis Centre have been first rate with their professionaism and friendliness. Although just starting out on my dialysis journey I take great comfort from this.My wife and 2 adult children are also great support.
Unfortunately I do not have the option of a live doner at the moment so have been placed on the Transplant List. My aim now is to remain as healthy and positive as possible until my opportunity for a Transplant comes along.
I look forward to sharing past and future experiences with others through forums such as this.
Hi Willis,my names Alan,i been on haemodialysis 7yrs now,&sleep problems have plagued my sleeping patterns just like you,it drove me mad,so i gave in & now take one sleeping pill,but i try taking herbal teas aimed at sleep,which do work.I do home dialysis,4hrs every second day,no week end off.Button hole dialysis for me is easier& i gave up using local anesthetic,it causes scar tissue making it hard to canulate the fistula.
Hope you had a beaut new year& jeremy,your mate i saw had been chatting with you,anyway,hope to chat with you,its hard being on dialysis
Am on a vegan diet,was advised by renal doctor,dairy is a real enemy of dialysis patients,2 wks after he said that my fistula collapsed.what a hex.! Bye for now,alan
Hi Willis, got email come thru from you, hope your ok.
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I've had my second fistula for 3yrs now & its going well probably due to my vegan diet cause diary is a real enemy of renal patients thus the reason for my first fistula collapsing,the renal doctor told me diary was no good for & 2ks later it collapsed. I now have soy milk, oat milk or rice milk. No icecream, white bread, sugar, butter, cheese, meat, chicken or fish, just eat lots of legumes, tofu, sprouts and i make a lot of food myself, its cheaper to do that than eat out of home,which you never know if you will get sick, but if you make the food, then you wont end up sick, plus i eat beans & brocoli raw, cooking destroys so many enzyems in the food. Am so on the go these days, used to have to rest after a session of dialysis, not now. Take care my friend,
Alan