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new to forum but not to kidney failure

03/09/2011 19:41:43

georgie

1 posts

new to forum but not to kidney failure
(N/A)

hi , I am in stage 4 renal failure , 12 months ago I was in esrf did pd for 6 months that was enough to clean my blood up which was fortunate as pd had to be stopped due to complications , have been running on my own kidney function since my gfr is 25 , just starting to get symptomatic with loss of appetite,nausea, high bp , and brain fog , I cant do dialisis again either hemo or pd so hoping my kidneys just keep chugging along on there own .so far so good ...... look forward to getting to know you all , I am 58 yo and from melbourne

04/09/2011 20:09:18

bella

47 posts

Re: new to forum but not to kidney failure
(N/A)

Hi Georgie , i to am in stage 4,only diagnosed in April this year and obvously everybody is different, ive stuggle a bit with over the top emotions and felt like i was alone but abviously im not...and slowly come to terms with whats is happening and now taking one day at a time.The thing i find the best is reading alot of info from this site and ask for help and dont be scared. my gfr ranges from 15 to 18 and have just had surgery to create fistula and trying to come to terms with it...I hope youre kidneys keep chugging along to too.. iguess we all do .But anyway im on here daily if u wanna chat ...cheers Bella.

06/09/2011 14:17:19

willis

17 posts

Re: new to forum but not to kidney failure
(N/A)

Hi Georgie.... I to have renal failure. I am at stage 5 with a gfr reading sitting between 10 -- 12, its been at this level now for the past couple of years. Luckily I still haven't started dialysis yet as I am still relatively healthy and able to work. I have had renal failure since the age of 14 and I am now 50. My GFR sat at 25 from the age of 14 up until about nine years ago. So I have been very lucky. Hopefully your kidneys will hold on for you, I attribute my delay in dialysis to following my Nephrolgists instructions to the letter, diet, rest when I need it, never miss any of my medications or appointments and I have to drink 3 litres of fliud a day so that's what I do. Sorry to hear dialysis is not an option for you. Have you already tried HD? I live in NSW in the Hunter Valley. Hoping you keep well....

06/09/2011 21:21:57

georgie1111

10 posts

Re: new to forum but not to kidney failure
(N/A)

hi willis , I just wrote a big post to you and went to send it off and poof !!! lost into cyber space !!! so frustrating !!! .... I have to tell you how amazing your renal journey is , I was astounded when I read that you lived for umpteen years with a gfr of 25 and now living with gfr 10-12 and drinking 3 liters of fluid a day, no dialisis and still working !!!! crikey I just have to hear more about this journey what an amazing outcome , my gfr now is 25 and I am already symptomatic ,when it was down to 9 , oh wow I was just sooooo sick !!!!!,so sick that if someone had of said your going to die I would have said yes please , whats your secret , what instructions does your neph give you , whats your diet etc , am so eager to learn as much about your renal journey as you can tell me ...... am going to keep this post small just in case it goes "poof" like the last one lol lol .....look forward to hearing more ....cheers georgie

08/09/2011 11:26:31

willis

17 posts

Re: new to forum but not to kidney failure
(N/A)

Hi Georgie, you wouldn't believe it but I experienced " cyber space" yesterday too suppose that's what I get for wtiting you a novel as a reply..... well maybe not quite a novel lol. Welcome aboard anyway. I wish there was some great secret I could share with you but really there isn't. I have just been very very lucky. We all respond differently to conditions and treatment. I do follow my Neph's instructions to the letter, never miss an appointment or any of my meds and there are plenty of those! I follow a renal diet...low salt, protein, potassium and phosphate, I prepare all my vegetables by peeling & cuuting into small pieces then soaking them preferrably overnight if I plan ahead enough then I boil the crap out of them. This helps to reduce the potassium, I am also careful as to how I mix my vegies together.... like I never have potato, pumpkin & cauliflower together in one meal. I havent had banana, orange or chocolate for years as I excluded them completely from diet as I know I wouldnt be able to stop at one as they are all very much my favourites. I dropped some excess weight but much to the disgust of my Neph I have gained a few kilos over the winter months as I still have a very healthy appetite...oops will be trying hard to drop them over the next couple of weeks as I have an appointment with him. I try to get as much exercise when I can along with fresh air and sunshine. As I have mentioned from the age of 14 up until just after my 41st birthday it had been pretty smooth... I had two trouble free sucessful pregnancies and was living life to the max. I was ambulanced to a major hospital with heart failure due to prolonged high blood pressure...... that is when I was introduced to my new Neph and I have been seeing him now for just over 9 years. The first couple of years were pretty rough as went into a depression. I excluded myself from everyone and everything. I exclued myself from life...I was literally living my death. I can recall sitting with my husband and to this very day I can't remember what he said but I laughed out loud...I truely laughed and with that my Husband held my face in his hands and started to cry and stated how good it made feel to hear my laugh and to see my face smiling as he was so scared he would never hear me laugh or get to see me smile again

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