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i cant sleep......

Re: i cant sleep...and my update

08/08/2011 23:17:45

willis

17 posts

Re: i cant sleep...and my update
(N/A)

Hi Bella.....Understand perfectly about the lack of sleep! I have been sleepless for so long now that it has actually become the norm for me lol....4am, 5am night after night. i get the restless legs but in all honesty not that often. I still somehow manage to get myself to work though, as I said it's been going on for so long i believe my body has adjusted to the lack of sleep.I have a GFR that ranges from 10 to 12 and my fistula was created over 4 yrs ago but luckily for me has never been used.I am going to train to do HD at home when my time comes. I have been under constant care of my specialist for the past 9 yrs. i was diagnosed at 14 and i am now 50...a young 50 thoiugh lol! Renal failure is certainly hard. After spiralling into a bout of depression about 8yrs ago I decided to get my act together and put all my trust in my renal team and to get back in the drivers seat of my life. My specialist is like a part of my family , I consider the man absolutely brilliant.i work with him and consider us a team. i am like a human sponge, i have tried to acquire and understand as much information about my condition and I never stop asking questions. Yep life would be a whole simpler without renal failure but i love life, my renal failure is no longer my life just part of it.My husband and children are very supportive, my husband has attended every appointment with me. Keep strong Bella, maybe we can keep in contact and share our journey together! :D

09/08/2011 17:58:29

Kidney Kat

28 posts

Re: i cant sleep...and my update
(Australia)

Hi Willis - I applaud your response to Bella. Well put and I'm certain she appreciates your efforts and advice.
The 'expert patient' theory is a good one and research has proven that people who become expert on their condition and treatment, do much better than those that don't. I heard this inspirational phrase recently, quoted by Kobe Bryant speaking on his experiences with kidney disease and his kidney transplant ""Tough times never last, but tough people do!"
Cheers - Teresa Taylor (aka Kidney Kat).

09/08/2011 19:27:26

bella

47 posts

Re: i cant sleep...and my update
(N/A)

Hi, i hope when they do my fistula i dont have to use it for a long time either(vein mapping this week) . im new to this and i really find the more info i get the more i relax although it is constantly on my mind and bought up in many family and friends conversations, They have all been supportive even though they cannot know how i physically feel, but they see me go up and down with emotions ...i suffer alot of back pain which has nothing to do with my ckd as ive been told because they done a scan and i have some degeneration of my upper back..My restless legs and burning feet are getting worse, but i hope they can adjust the meds im on to help ....I was diagnosed with CKD and type 2 diabetes at the same time and it was a double wammy ,Will keep updating and would love to keep in contact, i visit this sit once a day.I am also putting my thoughts into art now..Renal appointment monday :) also get to talk to a counselor then aswell and i do have a few things to get off my chest...which are private.so i will probably chill out more once speaking with her..U keep well and catch up soon .Cheers Bella..

15/08/2011 16:13:48

bella

47 posts

Re: i cant sleep...and my update
(N/A)

Oh.....been to specialist today...no more meds for my stupid feet and legs....but did get a different pain med for my back pains.My Dr seemed to know there was something i was holding back lol now i wish i hadnt said anything.Because of my tremors i need to have a CT scan just to check theres nothing suspicious he thinks i may be have little seisures and also advises me not to drive.......i know the consequences of what could happen but if i loose my liscence i loose my indipendance..if im stuck at home i will go nuts.and most likely get depressed ..my husband dont drive, and with all the appointments i have i will not turn up..My friends all have young kids and babies and i cannot expect them to find baby sitters or drag them along. Its ok if appointments are local..but when they are in town i dont know what to do..I spoke to counselor but i was still holding things back im scared once i start letting out my real emotions i wont stop.The good news of today is my kidneys are stable, now i just have to wait for surgeons appointment so he can make surgery appointment for the creation of an AV fistula...i dont mind waiting :p....Oky doky thats it for today im buggered got the ol pjs on and gunna try and chill out for the rest of the day until i try to go to sleep and have a battle with my legs lol.Cheers Bella. Next update probably when i have surgery....or i have one of them days..

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i cant sleep......