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i cant sleep......

i cant sleep...and my update

04/08/2011 03:08:36

bella

47 posts

i cant sleep...and my update
(N/A)

Hi all..its 3am and yes im awake..my feet are burning and my legs feel like they want to run away, which i am taking meds for but seem to have very little effect..(restless legs)...i think i may have had too much fluid today my hands are swollen which i see up to 4 times aweek and there was a big jump im my scales by 4 kilos today....which has scared me cause ive been loosing upto a kilo a week, then to gain that much in 24hrs made me wander what is going on..because ive been suffering diahrea most of the day and made sure i was drinking plenty but i guess ive drunk to much!.....as im at the later end of stage four ckd im wandering wether something is going on or my mind is on overdrive....had to make the decision recently on which type of dialysis i prefered i chose HD , so i now have my appointment to have a vein mapping scan in the next couple of weeks then i have to wait for surgeons appointment , then he/she will make surgery appointment ...never ends lol also endless other appointments, from dentists, diabetes, renal,etc ...Also getting an abcess in my gum and it feels like its gunna bust up my nose..ringing dentist in morning....Yeah i know im gibbering but what else is there to do this time of morning!..Gone over alot of things in my head and have slowly come to terms with whats going on but the main thing is that i have the say in my future ...ive been loosing weight ..try to follow nutritionists advice but gee if i dont feel like eating i dont. i check my suger levels if they fine i dont...mainly living on the good veg hardly any meat , ive often said to my hubby gee im hungry then i will go and make something and then dont eat it....hubby is getting better now at cooking for himself.....Golly i could go on for eva lol...Oh and i dont tell my Drs everything im feeling anymore because if it dosnt show up in the blood tests it cant be real....I give up in that department ...i now wait for them to tell me there some otha tablet i need or what eva else has to be done.what annoys me is do the interns ,registras and specialists actually discuss each patient between each other because im sick of repeating stuff they allready know...its like Der ..youre the Dr..lol...on a possitive note the Registras and Specialist that treats me do a good job...they probably cannot work me out cause i may seem quiet , but thats me working out what they are saying. ...I often blame myself for what has happened, but now ive gotto get ova that and do my best to slow it down for aslong as possible and not to take life for granted....u only get one chance which i nearly lost in the past with acute renal failure...but know its chronic and a kick in the ..........anyway update later on..

08/08/2011 03:23:22

bella

47 posts

Re: i cant sleep...and my update
(N/A)

Ok.......im soooooooooo over my burning feet and restless legs.....just checked the clock after 3am ....gotta another week before next renal appointment so by then im gunna be one very grumpy lady with attitude.....i cannot keep going on only 2 to 3 hrs of sleep, muscle twitches are annoying aswell...and im really craving a coffee of all things.It is a shame no one uses yap chat because atleast us owls could have a conversation with each other..Got blood tests this week which i really hate having, takes the lady for ever trying to get blood outta me, and im sure she hates seeing me coming lol..Theres an old tom cat outside singing out ready for battle ..In the morning im guuna find all my drawing stuff for these long nights and start putting my thoughts in to art, but will update on here just to share my progress ..

08/08/2011 11:46:00

Kidney Kat

28 posts

Re: i cant sleep...and my update
(Australia)

Hi Bella - I see you've been awake in the wee hours again. It is often helpful to write about how you are feeling - I know it works for me when I'm managing a problem, whether it be health or life. I think your plan to use your art as a therapy to visualise the various issues you face, is awesome. I read all your posts and so do many others. They may not post in the Forum, but the statistics show that many read the posts. So your thoughts will help others as well. Unless there is a specific question, I try to let the Forum work in this way. But I thought you may appreciate a comment from cyberspace. Keep strong.
Cheers Teresa - KHA web angel.

08/08/2011 12:10:31

Kidney Kat

28 posts

Re: i cant sleep...and my update
(Australia)

Hi Bella

I should also direct you to these web information which could be helpful to ease your symptoms. But I strongly recommend that you ask either a renal nurse, your GP or your specialist on tips of how to manage these annoying symptoms.

On our website, you will find four reviewed external websites, which focus on Restles Leg Sydnrome etc. and provide general information

Living with Kidney Failure: 7th edition Chapters 8.3 and 8.4 (detailed chapters are available - you may be interested in reading others as well)
http://www.kidney.org.au/ForPatients/LivingwithKidneyFailure/tabid/696/Default.aspx

And we also offer reviewed external website weblinks under these listings......

FOR PATIENTS
http://www.kidney.org.au/ForPatients/Recommendedweblinks/tabid/619/Default.aspx

Other kidney health problems - rare conditions, resources, Message Boards, Support Groups

Restless Legs Syndrome - Just the Facts also in Spanish

Restless Legs Syndrome Australia Info on RLS-diagnosis, treatment, and support

Restless Legs Syndrome Foundation (USA)

Restless Legs Syndrome - Some facts about RLS Kidney Foundation Canada - good range of info

Cheers and hope this information helps you.
Teresa - KHA web angel

08/08/2011 14:12:55

bella

47 posts

Re: i cant sleep...and my update
(N/A)

lol there is someone out there..thanks for info, i am taking meds for it but they not working, and its happening everynight ,so im getting really tired.I will keep updating on here especially when i have i regarding anything thats going on in my journey with ckd. cheers Bella..

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i cant sleep......