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  YAP Forum  General subjects - have your say and be heard  Welcome to YAP ...
 Re: Welcome to YAP Space
 
 16/05/2008 12:01:26
Scottyharvey
4 posts


Re: Welcome to YAP Space
 (Australia)
Hey lost ant, Yeah it has been a weird couple of weeks. I found out 2 weeks ago, I was getting really tired all the time like when i was walking to my car or the letter box so i went to the doctors and we got a blood test done and then he called me late the next night telling me to go straight to the hospital becasue i have kidney disease. So i went to the hospital and 2 days later i was having dialysis... Its a bit of a bother considering i am still working full time. How did you find out about your condition? how do you know you re a year away? i dont understand how that all works when i went into hospital i was apparently a 50 - 50 chance.
 16/05/2008 18:03:18
lost ant
8 posts


Re: Welcome to YAP Space
 (N/A)
holy moly scotty! that's a close one then! it's pretty scary to find out that you can lose so much function without any decent and clear cut side effects huh! i found out about 3 yrs ago now. i acutally had an ovarian cyst, and while the lady was ultra sounding me she checked my kidneys and pancreas and other things, and my left one is about half the size of what it should be. and that's where it all started. my gfr was about about 45 then, now i'm at 22, and the doc can't give me a definate time when i'll start dialysis, but just at an estimate of the rate i'm declining he says at just over a year away. we're currently checking my mum out to donate to me. so far so good. we're doing our tissue typing test in the first week of june. although it is such a generous gift, i'm very worried at the same time, as she is my only family, and i just don't want anything to go wrong with her! but i think i'll get to that hurdle if we get there first. so what are your options at the moment? are you looking into transplantation, or sticking with the dialysis at the moment? sorry i can't help you with info about dialysis. i'm also a member of a dialysis group, so if your interested you can email me and i'll give you the website. i won't post it on here, there are so many helpful and chatty ppl there who can anwer any of your questions, or give you some advice if you wanted. some ppl there have been doing dialysis for close to 15 years, and there are others who have just started too. what is your job? i'm a gaming/bar attendant and i do 8-10 hour shifts, and i'm absolutely knackered after doing my 5 days! unfortunately i'm not one to take a back seat position, so sometimes i work myself too hard too.  
 20/05/2008 15:54:00
Sarahlouise
1 posts


Re: Welcome to YAP Space
 (N/A) Modified By Kidney Kat  on 16/06/2008 11:11:27)

Hi Guys,

Its nice to finally hear from other young people. I have been on dialysis for three years, since i was 19. I know what u mean about being the only young person at dialysis. i was a hemo patient but now do PD at home. I find dialsys very isolating, i can never go out late or travel and am continually tired.  Its difficult for other young people to understand what its like to live with kidney failure. I'd love to hear more about other peoples experiences.

 21/05/2008 15:48:51
Scottyharvey
4 posts


Re: Welcome to YAP Space
 (Australia)

At present they are still trying to find out what caused this and then i believe will start to test my family. I have 3 sisters and 1 brother so hopefully i might get some good news. They are all older than me so they are happy to donate if nessasary. I present i am an Accounts Manager for a software company in melbourne. I used to be travelling interstate once a week and i would in overseas once a month. i have had to cut that down now. its good my boss will be supporting me through this. I work while i am in the hospital having dialysis. once i get to do it at home i should be fine. i know how you feel working in the gaming industry i used to work security beofre this job and those hours took it out of me.

 

 21/05/2008 15:52:46
Scottyharvey
4 posts


Re: Welcome to YAP Space
 (Australia)

Hey Sarah

Is PD really that bad? i was told that i could travel? apparently you can do hemo at home and only 3 times a week. i am going to find some more information tommorrow. i dont really have mch experiences to share yet. I did start playing basketball again and i was feeling good getting up the court. how do you find exercising while on PD?

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