These links are reviewed - considered quality evidence based external education
Health Professionals I Indigenous Health Professionals I Organ Donation I Youth links
See our sister sites kidneycancer.org.au * homedialysis.org.au
Kidney health education resources
Emotional and wellness resources - refer our webpage Mind, body & CKD
Our webpage Finance - information for anyone with a chronic disease
Support Groups, Message Boards and social networking Our kidney community online
Important Health Information
Medicine Line 1300 MEDICINE - 1300 633 424 M-F 9am–5pm
*Tools and Tips *Translated resources on Medicines *Medicine Line search for medicine by name.
For independent pharmacist advice on prescriptions, over-the-counter and complementary (herbal/natural/vitamin/mineral) medicines. Sometimes medicines have unexpected and undesirable side effects. The Adverse Medicines Events Line provides consumers with an avenue for reporting and discussing adverse experiences with medicines. 
If you smoke - best thing to do for your health, is to quit now!
Smoking, is it really that bad for you? Animation/background - Virtual Medical Centre
How smoking damages your body Animation
QUIT NOW 137 848 Quitline
- ask fo free Quit Pack * QUIT Coach offers personal secure help online
- My QuitBuddy free app to help you quit: iPhone, iPad & Android iTunes Online or Google Play
Smokenders Australia 1800 021 000
Other everyday health problems related to kidney failure, CKD and dialysis
For Indigenous Australians - about stages of kidney disease, dialysis and treatment options
Graphics used to visually pass on stories simply - useful for Health Professionals for patients who have English as 2nd language.
To support these resources - Indigenous Kidney Stories posters to display in clinic as education tools:
* Are your kidneys OK? * What is a Kidney Health Check? * Keep Strong Longer
For parents of kidney kids - to read together
Chronic Kidney Disease (CKD)
Chronic Kidney Disease Self-management - Patient Guides
Dialysis options
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Energy comparison Australia - Work out costs for home dialysis - an overview and comparison calculator, to compare providers of energy in your State
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Kidney Support Network QLD refer KSN Shop for home dialysis equipment for sale - PD belt, super suction PD bag hook, fistula protector, blood pressure monitor, etc
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Home Dialysis - First stop for education should be our sister site homedialysis.org.au
 Kidney Transplantation
Conservative or Palliative Care - with Kidney Disease
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CareSearch Palliative care knowledge network (National Palliative Care Program) 08 7221 8233
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Resources directory - Translatedversions Arabic, Chinese: simplified & traditional, Croatian, Dari, Farsi, French, Greek, Italian, Japanese, Khmer, Korean, Macedonian, Maltese, Polish, Portuguese, Russian, Serbian, Spanish, Turkish, Vietnamese
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Treatment Options - for kidney disease and end stage kidney failure
Nutrition and Chronic Kidney Disease
KHA webpage - which offers extensive education on this complex topic when living within any level of kidney failure or transplantation. Also recipes, videos and range of external weblinks.
Kidney Health Australia webpages
Australian and Global Kidney Patient Charters and Principles of Care
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United Kingdom - Dialysis Manifesto Better dialysis services, improving the quality of lives
Kidney Health Australia now offers a large range of translated Kidney Health Fact sheets and flyers with simplified English versions available - Translated Resources
Cancer of the kidney, renal carcinoma
Note our sister site - KHA felt this condition was so complex it deserved its own space kidneycancer.org.au
Australian websites with focus on kidney cancer
International websites with focus on kidney cancer (many in multiple languages)
Cardiovascular or heart disease
Diabetes
Kidney Stones
Polycystic Kidney Disease (PKD), Cystic Disease and Renal Dysplasia
Rare conditions, Resources, Support Groups both international and Aussie Kidney Clubs
- A to Z of conditions related to Chronic Kidney Disease NKF US (also in Spanish) Extensive list
- Alport Sydnrome Genetics reference page - National Institute Health, USA
- Alport Syndrome Australia * KHA Fact Sheet on Alport Syndrome/Hereditary Nephritis
- Alport Syndrome Brochure - Renal Resource Centre NSW
- Amyloidosis Australia Info and Support Groups for Myeloma, Waldenstrom's Macroglobulinemia - call 1800 620 420 www.leukaemia.org.au Note 'Understanding Amyloidosis' - info booklet
- Amyloidosis Foundation and Amyloidosis Support Groups
- National Amyloidosis Centre London UK
- Anatomy: Diagram relating to renal obstruction during pregnancy
- Arthritis Australia Infosheets for Lupus, Scleroderma, related conditions: Infoline 1800 104 100
- Cain Foundation for Branchio-oto-renal Syndrome USA
- Centre for Genetics Education Australia
- ChIPS Support for 12-25 year olds living with chronic illness (Royal Children's Hospital, Melbourne)
- Chapter 8 - Other health problems from KHA's Living with Kidney Failure
- Distal renal tubular acidosis The kidneys don't remove acid properly from urine (called acidosis)
- Fabry Disease Wikipedia
- Fabry Australia and Fabry Support Group Australia Rare genetic problem - links to global groups
- Fibromuscular Dysplasia US - resources, active support group, chatline www.fmdsa.org
- Fibromuscular Dysplasia US - Cleveland Clinic
- Glomerulonephritis Brochure - Renal Resource Centre NSW
- HealthInsite: Chronic Conditions and Injury Australian Government health search engine
- HealthInsite: Kidney and Urinary Tract Health
- Haemolytic-Uraemic-Syndrome (HUS) UK - Great Ormond Hospital for Children
- Horseshoe kidneys Overview - common renal fusion anomaly (occurs 1 per 400-800 live births)
- International IgA Nephropathy Network
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- IronTherapy.Org (ITO)
- Lupus - The renal (kidney) system USA.
- About Lupus *Living Well - Doing what you can to keep your kidneys healthy, *Healthy Eating *Lupus Treatments (S.L.E. Lupus Foundation NY USA)
- Lupus Nephritis> Fact sheet on this condition and how it may relate to kidney failure
- Lupus Support Groups Australia (Scleroderma groups included)
- Lupus Support Groups global via Yahoo Groups
- Medullary Cystic Kidney Disease Better Health Channel - Australia
- Medullary Sponge Kidneys Better Health Channel - Australia
- MGN (Membranous Glomerulonephritis)
- Membranoproliferative Glomerulonephritis 11 Dense Deposit Disease
- MPGN database survey Help the University of Iowa - fill out survey for MPGN Types I, II, and III
- Nephrotic Syndrome & Focal Segmental Glomerulosclerosis
- Nephrotic Syndrome WebMD e-medicine, also features more unusual kidney problems
- Nephrectomy Having a kidney removed? Helpful information - Virtual Renal Centre Perth WA
- Potter's Sydnrome aka Potter syndrome, Potter's disease, Potter facies, Potter's facies, Potter sequence, oligohydramnios secondary to renal disease and bilateral renal agenesis
- Rare and genetic kidney and urinary conditions
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- Vasculitis Foundation USA - Behcet's Disease, Buerger’s Disease, Central Nervous System, Churg Strauss Syndrome, Cryoglobulinemia, Giant Cell Arteritis (Temporal Arteritis), Henoch-Schönlein Purpura, Hypersensitivity Vasculitis, Kawasaki Disease, Microscopic Polyangiitis, Polyarteritis Nodosa, Polymyalgia rheumatica, Rheumatoid Vasculitis, Takayasu’s Arteritis, Wegener's Granulomatosis
- Wegener's Granulomatosis Overview of symptoms, treatment and research NIH (USA)
- Wegener's Granulomatosis Association
Urinary problems
Urinary health - for men and their families
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Links recommended by our health team are provided for your convenience. Although the quality of these sites has been reviewed, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. If a link is not connecting we appreciate advice by email khis@kidney.org.au or call our Kidney Health Information Service.
National Relay Service www.relayservice.com.au Phone solution for those with hearing or speech impairment. Use this service to connect to our KHIS line - quote 1800 4 54363 ( '9' silent)
TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555727 I www.iprelay.com.au/call/index.aspx
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UPDATED 29 APRIL 2013 |