 RECOMMENDED EDUCATION WEBLINKS
Reviewed weblink references I Health Professionals I Organ Donation I Youth links
Healthy living
Kidney health education resources
Emotional and wellness resources
Support Groups, Message Boards and social networking Our kidney community online
Support Groups for rare conditions - under Kidney and Urinary Conditions bottom of page
FOR KIDNEY PATIENTS, THEIR FAMILY AND FRIENDS
For Indigenous Australians - on stages of kidney disease, dialysis and treatment options
For parents of kidney kids - to read together
Chronic Kidney Disease
Chronic Kidney Disease Self-management - Patient guides
Dialysis options
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Energy comparison Australia - Work out costs for home dialysis - Switchwise offers an overview and comparison calculator, to compare providers of energy in your State
- Home Dialysis Central USA Podcasts, webinars/message boards (Aust guests)
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Kidney Support Network QLD refer to KSN Shop for home dialysis equipment for sale - PD belt, super suction PD bag hook, fistula protector, blood pressure monitor, etc
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 Kidney transplantation
Conservative or Palliative Care - with Kidney Disease
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CareSearch Palliative care knowledge network (National Palliative Care Program) 08 7221 8233
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Resources directory - Multilingual versions Arabic, Chinese: simplified & traditional, Croatian, Dari, Farsi, French, Greek, Italian, Japanese, Khmer, Korean, Macedonian, Maltese, Polish, Portuguese, Russian, Serbian, Spanish, Turkish, Vietnamese
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Treatment Options - for kidney disease and end stage kidney failure
Nutrition and Chronic Kidney Disease this site - includes recipes and a range of external weblinks on this complex area of kidney health, when living within any level of kidney failure or transplantation.
GLOBAL CKD AND DIALYSIS RESOURCES
Kidney Health Australia webpages
Australian and global Kidney Patient Charters and Principles of Care
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United Kingdom - Dialysis Manifesto Better dialysis services, improving the quality of lives
Multilingual kidney health education resources (also in English)
- American Kidney Fund Great support resources for kidney health info
- CKD - Internationalhealth education brochures NKF USA - Argentinian, Czech, French Canadian, French, German, Italian, Mexican, Polish, Portuguese, Russian, Spanish, Ukranian
- Diabetes Multilingual Health Resources Diabetes Australia 1300 136 588 - Arabic, Chinese, Croatian, Greek, Italian, Korean, Spanish, Turkish, Urdu, Vietnamese
- Diabetes Resources for non-English speaking people Australian Diabetes Council - 1300 DIABETES
- International brochures on health and CKD National Kidney Foundation USA
- International Federation of Kidney Foundations Global list of kidney groups and patient associations. IFKF Member Register contact emails or websites - for local insight IFKF Member Resources for multilingual education resources for clients who speak English as a second language
- Kidney Failure in Diabetes RRC NSW Arabic, Chinese, English, Greek, Italian, Vietnamese
- Kidney Foundation of Canada Living With Kidney Disease Manual
- English - French - Chinese - Italian - Punjabi and *Fact sheets and brochures multilingual
- Kidney Cancer USA for patients, survivors, family members multilingual resources
- Kidney Failure – multiple languages USA National Institute of Health
- Life Options Global kidney patient education and support resource
- Medicine Line 1300 888 763 Independent pharmacist advice (9am-6pm M-F)
- National Institute of Diabetes and Digestive and Kidney Diseases (USA) Also in Spanish
- National Kidney Disease Program USA Range of brochures on CKD in many languages
- Renal Info (Baxter) Multilingual support and resources for people with kidney disease
- Renal Info - Kidney Directions Global multilingual references on resources for people with CKD
- Renal Resource Centre - Multicultural resources - Kidney failure treatment options
- Translation / interpreting Services (Australian Government) 131 450
- VIC Health Translation Directory Multilingual health resources from government departments, hospitals, community health centres and welfare agencies
SPECIFIC KIDNEY AND URINARY CONDITIONS
Cancer of the kidney, renal carcinoma
Note separate website - KHA felt this condition deserved its own space www.kidneycancer.org.au
Australian websites with focus on kidney cancer
International websites with focus on kidney cancer (many in multiple languages)
Cardiovascular or heart disease
Diabetes
Kidney stones
Polycystic Kidney Disease (PKD), Cystic Disease and Renal Displasia
Other kidney health problems - rare conditions, resources, Support Groups
- Anaemia Kidney Health Australia Fact Sheet
- A to Z of conditions related to Chronic Kidney Disease NKF US (also in Spanish) Extensive list
- Alport Sydnrome Genetics reference page - National Institute Health, USA
- Alport Syndrome Brochure - Renal Resource Centre NSW
- Amyloidosis Australia Info/Support Groups, inc Myeloma, Waldenstrom's Macroglobulinemia. Call 1800 620 420 www.leukaemia.org.au Note 'Understanding Amyloidosis' - info booklet.
- Amyloidosis Foundation
- Amyloidosis Support Groups
- National Amyloidosis Centre London UK
- Anatomy: Diagram relating to renal obstruction during pregnancy
- Arthritis Australia Infosheets for Lupus, Scleroderma, related conditions: Infoline 1800 104 100
- Cain Foundation for Branchio-oto-renal Syndrome USA
- Centre for Genetics Education Australia
- ChIPS Support for 12-25 year olds living with chronic illness (Royal Children's Hospital, Melbourne)
- Chapter 8 - Other health problems from KHA's Living with Kidney Failure 7th edition
- Distal renal tubular acidosis The kidneys don't remove acid properly from urine (called acidosis)
- Fabry's Disease Wikipedia
- Fabry Australia and Fabry Support Group Australia A rare genetic problem - links to global groups
- Fibromuscular Dysplasia US - resources, active support group, chatline www.fmdsa.org
- Fibromuscular Dysplasia US - Cleveland Clinic
- Genetic and rare kidney conditions Advocacy, support groups, education on genetic conditions
- Glomerulonephritis Brochure - Renal Resource Centre NSW
- Health Insite: Chronic Conditions and Injury Australian Government health search engine
- Health Insite: Kidney and Urinary Tract Health
- Haemolytic-Uraemic-Syndrome (HUS) UK
- Horseshoe kidneys Overview - common renal fusion anomaly (occurs 1 per 400-800 live births)
- International IgA Nephropathy Network
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- IronTherapy.Org (ITO)
- Kidney Cysts KHA Fact Sheet
- Lupus - The renal (kidney) system USA. See our KHA Fact sheet on Lupus Nephritis here
- About Lupus *Living Well - Doing What You Can to Keep Your Kidneys Healthy, *Healthy Eating Tips *Lupus Treatments (S.L.E. Lupus Foundation NY USA)
- Lupus Support Groups Australia (Scleroderma groups included)
- Lupus Support Groups global via Yahoo Groups
- Medullary Cystic Kidney Disease Better Health Channel - Australia
- Medullary Sponge Kidneys Better Health Channel - Australia
- MGN (Membranous Glomerulonephritis)
- Membranoproliferative Glomerulonephritis 11 Dense Deposit Disease
- MPGN database survey Help the University of Iowa - fill out survey for MPGN Types I, II, and III
- Nephrotic Syndrome & Focal Segmental Glomerulosclerosis
- Nephrotic Syndrome WebMD e-medicine, also features more unusual kidney problems
- Potter's Sydnrome aka Potter syndrome, Potter's disease, Potter facies, Potter's facies, Potter sequence, oligohydramnios secondary to renal disease and bilateral renal agenesis
- Restless Legs Syndrome - Muscle Cramp advice KHA Living with Kidney Failure Ch 8.3 & 8.4
- Restless Legs Syndrome - Just the Facts also in Spanish
- Restless Legs Syndrome Australia Info on RLS-diagnosis, treatment, and support
- Restless Legs Syndrome Foundation (USA)
- Restless Legs Syndrome - Some facts about RLS Kidney Foundation Canada - good range of info
- Understanding and Preventing Renal Bone Disease Renal Resource Centre Australia
- Vasculitis Foundation USA - Behcet's Disease, Buerger’s Disease, Central Nervous System, Churg Strauss Syndrome, Cryoglobulinemia, Giant Cell Arteritis (Temporal Arteritis), Henoch-Schönlein Purpura, Hypersensitivity Vasculitis, Kawasaki Disease, Microscopic Polyangiitis, Polyarteritis Nodosa, Polymyalgia rheumatica, Rheumatoid Vasculitis, Takayasu’s Arteritis, Wegener's Granulomatosis
- Wegener's Granulomatosis Overview of symptoms, treatment and research NIH (USA)
- Wegener's Granulomatosis Association
Urinary problems
Urinary health - for men and their families
UPDATED 1 FEBRUARY 2012
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Links recommended by our health team are provided for your convenience. Although the quality of these sites has been reviewed, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. If a link is not connecting we appreciate advice by email health@kidney.org.au or call our Kidney Health Information Service.
National Relay Service www.relayservice.com.au Phone solution for those with a hearing or speech impairment. Use this service to connect to our KHIS line - quote 1800 4 54363 ( '9' is silent)
TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555 727 Online www.iprelay.com.au/call/index.aspx
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