These links are provided for your convenience. Although the quality of the sites has been checked, Kidney Health Australia takes no responsibility for their content or reliability. The listing of these sites should not be taken as our endorsement. Be aware, other sites may link to our website without our knowledge or permission. We appreciate you letting us know if a link is not connecting - research@kidney.org.au or phone Kidney Health Information Service 1800 682 531.
DETECTION, PREVENTION, RESEARCH AND STATISTICS
Australian Kidney Research and Projects
CKD early detection and evaluation programs
Clinical Practice Guidelines & Renal Registries
EDUCATION MATERIALS ABOUT THE KIDNEY
Healthy living
- Australian Dialysis Buddies Most active online dialysis support forum in Australia
- Better Health Channel: healthier living online (VIC) Quiz: How much do you know about your health
- Beyond Blue National Australian Depression Initiative 1300 224 636
- Chapter 9 - Medications from KHA's Living with Kidney Failure 7th edition
- DaVita Highly recommended USA site - CKD, emotional health and wellbeing - sexuality, anger, depression, holiday blues, caregiver stress, sleep, positive thinking, benefits of pets, etc.
- Global Dialysis Cartoons "The Lighter Side of Dialysis" courtesy of Jazz Communications. Laughter is good for the health - monthly cartoons Peter Quaiffe (former bassist - The Kinks) Volume 1
- Just the Facts: Dealing with Depression also in Spanish
- Just the Facts: Exercise for Life also in Spanish
- Just the Facts: Skin and Hair Problems on Dialysis also in Spanish
- Life Goes On - HOPELINE 24 hr support 1300 364 673 - There are times, often after hours, when you need someone to talk to - who can lift you out of despair and inspire you to carry on
- Lifeline 13 11 14 for 24-hour crisis telephone counseling
- Medicine Lline 1300 888 763 Independent pharmacist advice (9am - 6pm M- F) on prescriptions, over-the-counter, and complementary (herbal/natural/vitamin/mineral) medicines
- myDr.com.au - Health Toolkit - calculators to assess your health and wellbeing status, risk tests and learn more about healthy living with interactive quizzes
- QUIT Ring 13 78 48 and ask for Quit Pack to be sent free of charge
- My vitals A secure online storage system that enables you to record, manage and access your health and lifestyle information 24/7 from anywhere in the world
- SANE Helpline 1800 18 SANE (7263)
- SANE Australia Pfizer Report - Depression and Chronic Illness
- Smokenders Australia Helpline 1800 021 000
- US Surgeon General's Report Consequences of smoking on human body and organs - including your kidneys - Amazing 3D full body diagram
Kidney health education resources
- Chapter 1 - About your kidneys from KHA's Living with Kidney Failure 7th edition
- Chapter 2 - Kidney Disease from KHA's Living with Kidney Failure 7th edition
- Discovery Health Beyond Kidney and bladder health education tool - broadband access 3D player
- Medline Plus (USA) Consumer-friendly info on specific disease topics and conditions, links to medical encyclopedias/ dictionaries, drug info and other resources
- National Kidney and Urologic Diseases Information Clearing House (USA)
- Renal Resource Centre Based at Royal Nth Shore, Sydney Kidney health education resources
- The Kidney Atlas Kidney disease information and images of the kidney
- The Kidney and diseases of the kidney Renal Resource Centre - Royal Nth Shore Hospital NSW: See individual chapters (need high-speed connection) You may prefer to download the complete book 22 Mb - beautiful high res graphics
- VIC Health Translation Directory Links to multilingual health resources from government departments, peak health agencies, hospitals, community health centres and welfare agencies
- Wikikidney.org USA based, written by nephrologists and qualified health professionals
- Wired for Health UK All about health and living well, easily understood by youth - use images to navigate to 4 Key Stage websites, birth to 16 years and kids, parent and teacher sections
Kidney and urinary health education - 3D animations
Other helpful links
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FOR KIDNEY PATIENTS, THEIR FAMILY AND FRIENDS
Dialysis and other treatment
For parents of kidney kids
How to get the most out of life
Nutrition for chronic kidney disease
Transplant Community Consumer Groups
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GLOBAL KIDNEY HEALTH RESOURCES
International dialysis travel and global relocation information
International Kidney Foundations
International Kidney Patient Associations
Multilingual kidney health education resources (all also offered in English)
- A to Z of a renal diet and nutrition National Kidney Foundation USA - Spanish
- American Kidney Fund Great support resources for kidney health info - Spanish
- Diabetes Multilingual Health Resources (Diabetes Australia) English, Arabic, Hindi, Chinese, Croatian, Greek, Italian, Serbian, Spanish, Thai, Turkish, Ukrainian, Vietnamese
- Diabetes Australia-NSW Resources for people of non English speaking background
- International Federation of Kidney Foundations Resources Comprehensive inventory of education resources published by IFKF member countries
- Kidney Foundation of Canada 'Living With Kidney Disease' Full version available for free download, translated books available - French, Chinese, Italian, Portuguese, Punjabi
- Kidney Cancer USA for patients, survivors, family members and anyone interested in the global eradication of kidney cancer - French, Dutch, Italian, Portuguese and Spanish
- Kidney Failure Treatment - Arabic, Chinese, Greek, Italian, Vietnamese (Renal Resource Centre - Australia)
- Life Options International kidney patient resource - Spanish
- Prostate Problems - Better Health Translation Directory Chinese, Croatian, Greek, Italian, Macedonian, Polish, Serbian
- Renal Info (Baxter) Multicultural support and resources for people with kidney disease
- Renal Info - Kidney Directions - Global multilingual references on resources for people with CKD
- Renal Resource Centre - Multicultural Information Kidney failure treatment options Arabic, Chinese, Greek, Italian, Vietnamese and English
- VIC Health Translation Directory Links to multilingual health resources from government departments, peak health bodies, hospitals, community health centres and welfare agencies
KIDNEY AND URINARY CONDITIONS
Anaemia
- Anaemia Kidney Health Australia Fact Sheet
Cancer
Cardiovascular
Diabetes
Kidney stones
Specific kidney conditions and complications
- Alport Sydnrome Genetics Home Reference page - National Institute Health, USA
- Alport Syndrome Brochure from Renal Resource Centre NSW
- Amyloidosis Info and Support Groups - Amyloidosis, Myeloma, Waldenstrom's Macroglobulinemia
- Anatomy: Diagram relating to renal obstruction during pregnancy
- Arthritis Australia Lupus, Scleroderma and related conditions: Arthritis freecall infoline 1800 104 100
- Chapter 8 - Other health problems from KHA's Living with Kidney Failure 7th edition
- Fibromuscular Dysplasia
- Foundation for IgA Nephropathy (Canada) Berger's Disease, IgA nephritis & IgA glomerulonephritis
- Genetic and rare kidney conditions Lay advocacy and support groups, information on genetic conditions /birth defects - University of Kansas Medical Centre
- Glomerulonephritis Brochure Renal Resource Centre NSW
- Health Insite: Chronic Conditions and Injury Australian Government health search engine
- Health Insite: Kidney and Urinary Tract Health
- International IgA Nephropathy Network
- The IronTherapy.Org (ITO) website
- KidComm Resource for families living with childhood nephrotic syndrome, minimal change nephrotic syndrome, FSGS, IGA Nephropathy and other childhood kidney diseases
- MGN (Membranous Glomerulonephritis) Support Group
- NephCure Foundation (USA) Nephrotic Syndrome & Focal Segmental Glomerulosclerosis
- Polycystic Kidney Disease of Virginia Foundation
- Polycystic Kidney Research Foundation
- Polycystic Kidney Disease Booklet from Renal Resource Centre NSW
- Potter's Sydnrome aka Potter syndrome, Potter's disease, Potter facies, Potter's facies, Potter sequence, oligohydramnios secondary to renal disease and bilateral renal agenesis
- Restless Legs Syndrome - Just the Facts also in Spanish
- Restless Legs Syndrome Australia Info on RLS-diagnosis, treatment, and support
- Restless Legs Syndrome Foundation (USA)
- The Cain Foundation for BMS All about Branchio-oto-renal Syndrome
- Understanding and Preventing Renal Bone Disease Renal Resource Centre NSW
- Wegener's Granulomatosis Overview of symptoms, treatment and research NIH (USA)
- Wegener's Granulomatosis Association
Urinary problems
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