These links are provided for your convenience - see also specific selections at Organ Donation I Health Professionals I Youth links. Although the quality of the sites has been checked, Kidney Health Australia takes no responsibility for their content or reliability. Listing should not be taken as our endorsement. Be aware other sites may link to our website without our knowledge or permission. Let us know if a link is not connecting by emailing health@kidney.org.au or phone our Kidney Health Information Service.
 Hearing impaired TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555 727
DETECTION, PREVENTION, RESEARCH AND STATISTICS
Australian kidney research and projects
CKD early detection and evaluation programs
Clinical Practice Guidelines & Renal Registries
EDUCATION MATERIALS ABOUT THE KIDNEY
Healthy living
Kidney health education resources
Kidney and urinary health education - 3D animations
Other helpful links of interest to our kidney community
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FOR KIDNEY PATIENTS, THEIR FAMILY AND FRIENDS
Chronic Kidney Disease (CKD)
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Renal Info Global and multilingual resources for people with kidney disease
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CKD - Patient Guides to Self-Management of CKD
Dialysis and other treatment options
Emotional and wellness resources
- Beyond Blue National Australian Depression Initiative 1300 224 636
- Chapter 12 - Getting the most out of life from KHA's Living with Kidney Failure
- Chapter 13 - Sexuality, intimacy and fertility from KHA's Living with Kidney Failure
- DaVita Highly recommended USA site - CKD, emotional health and wellbeing - sexuality, anger, depression, holiday blues, caregiver stress, sleep, positive thinking, etc.
- Health Management Plan for End Stage Kidney Disease Renal Resource Centre Australia
- Just the Facts: Dealing with Depression also in Spanish
- Kidney Quiz Online Challenge your friends, how much do they know about their kidneys
- Kids Helpline 1800 551 800 Free confidential, phone counselling service (5-25 yrs in Australia)
- Life Goes On HOPELINE 24 hour support 1300 364 673 There are times, often after hours, when you need someone to talk to - who can lift you out of despair and inspire you to carry on
- Lifeline 13 11 14 for 24-hour crisis telephone counseling
- Maintaining a Health Sex Life Renal Resource Centre Australia
- Medicine Line 1300 888 763 Independent pharmacist advice (9am-6pm M-F)
- Tools and Tips on wise use of your medicine, medimate, medicine name finder
- Men's Line Australia 7 day a week service for men with family and relationship difficulties 1300 789 978
- Palliative Care Information Service 1800 772 273 (9-5; M-F) Australian free phone, emotional and counselling support, to individuals affected by life-limiting or terminal illness
- Participate in Health (Australian) with useful information for health consumers inc - 22 page guide
- Pfizer Australia Health Reports Use search term 'kidney' for find links to:- Diabetes I Depression and Chronic Illness I Healthy Kidneys I Transplantation and Organ Donation
- National Palliative Care Service Directory Online directory for palliative and end-of-life care services
- Rehabilitation & Exercise for Renal Patients Renal Resource Centre Australia
- SANE Helpline 1800 18 SANE (7263)
- SANE Australia Pfizer Report - Depression and Chronic Illness
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Suicide Call Back Service Freecall - short to medium term support for people at risk of suicide, their carers and those bereaved by suicide. Suicide Call Back Service Referral Line 1300 659 467 staffed 10am to 8:30pm (EST) 7 days. If calling outside these hours leave a message and team will contact you the next day. It is not a crisis line Click here for 24 hour support services
For parents of kidney kids
- ChIPS Support program for 12-25 year olds living with chronic illness, which offers valuable support to those involved ( Royal Children's Hospital, Melbourne)
- GOSH - UK Over 300 factsheets, on a wide-range of conditions, treatment, medication and care of your child with a chronic condition Also in Arabic, Bengali, Greek, Turkish
- Information on childhood kidney and urinary tract problems
- Kidney Obstruction in Children
- Kidney Transplantation in children GOSH UK - Also in Arabic, Bengali, Greek, Turkish
- Kids Health for parents USA Keeping your child healthy from head to toe - also in Spanish
- National Kidney Foundation USA A range of fact sheets for parents
- Nephrotic Syndrome WebMD e-medicine, also features more unusual kidney problems
- Paediatric urological conditions Wayne State University USA
- Renal Resource Centre: Nephrotic Syndrome in children
- There’s No Such Thing As A Silly Question Excellent guide for families living with a child with chronic illness, disability, mental illness or a life-threatening condition - free copy Women’s & Children’s Hospital Foundation - phone 08 8464 7900 or nosuchthing@wchfoundation.org.au
- Tips for parents of kids with chronic kidney disease DaVita USA
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- Websites for Kidney Kids and their families Kidney Times - a broad spectrum of useful information
- When your child has chronic kidney disease DaVita USA
Nutrition for Chronic Kidney Disease - consultation with your renal dietician is essential to personalise your dietary plan for your individual health profile
Support Groups, Message Boards and social networking - our Kidney Community Online
See rare conditions and support groups under Kidney and Urinary Conditions bottom of weblinks list
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BigDandMe Aussie Kidney Dialysis Blog - Melbourne
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ChIPS Support program for 12-25 year olds living with chronic illness, which offers valuable support to those involved ( Royal Children's Hospital, Melbourne)
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National Kidney Foundation USA Topics: Transplant athletics, Donor families, Living donors
Transplant recipients, Patient and Family Council, People with kidney disease and their families
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Transplant Community Consumer Groups
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GLOBAL DIALYSIS TRAVEL
Australian Holiday Dialysis
Australian travel and global relocation information
General advice for Australians travelling on dialysis
International travel and global relocation information
- American Society of Nephrology
- Asia Pacific Nephrocare
- Dalysis Abroad Australian company - international escorted tours providing quality dialysis for clients
- Dialysis at Sea Fancy a family cruise to far away places
- Eurodial
- eNeph List of International Dialysis Units
- Fresenius Medical Care: Travelling and Dialysis
- Global Dialysis Extensive resource for dialysis patients who want to travel overseas, including a detailed listing of dialysis units, by country region
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Canada Travelling Dialysis RV Association Rent an RV with a Formula Belco 2000 dialysis machine and WRO95 water purification system. Patient must be trained with this type of unit.
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Fiji - Suva Colonial War Memorial Hospital (no Sundays - note on east coast of island) approx 200kms from most west coast holiday destinations. Treatment approx $500 Fijian (approx AU$300) call Debra +679 310 0020 or fijidialysiscentre@gmail.com
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Holiday Dialysis: Dr Berger Travel service for dialysising patients - Bulgaria, Croatia, Czech Republic, Egypt, Greece-Crete, Hungary, Italy, Spain, Tunisia, Turkey, Poland
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GLOBAL CKD AND DIALYSIS RESOURCES
International Kidney Foundations
International Kidney Patient Associations
International Kidney Patient Charters and Principles of Care
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United Kingdom Dialysis Manifesto Better dialysis services, saving lives and improving the quality of lives - National Service Framework (NSF) for Renal Services
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Multilingual kidney health education resources (also in English)
- A to Z of a renal diet and nutrition National Kidney Foundation USA Also in Spanish
- American Kidney Fund Great support resources for kidney health info Also in Spanish
- Diabetes Multilingual Health Resources (Diabetes Australia) Also in Arabic, Hindi, Chinese, Croatian, Greek, Italian, Serbian, Spanish, Thai, Turkish, Ukrainian, Vietnamese
- Diabetes Australia-NSW Resources for people of non English speaking background
- International brochures on health and CKD Range of brochures from National Kidney Foundation USA - Most available in Argentinian, Czech, French Canadian, French, German, Italian, Mexican, Polish, Portuguese, Russian, Spanish, Ukranian
- International Federation of Kidney Foundations - Resources Comprehensive inventory of global kidney groups offering kidney education resources in other languages - as well as English.
- Kidney Foundation of Canada "Living With Kidney Disease'" Full versions available - translated books also offered Also French, Chinese, Italian, Portuguese, Punjabi
- Kidney Cancer USA for patients, survivors, family members and anyone interested in the global eradication of kidney cancer Also in French, Dutch, Italian, Portuguese and Spanish
- Kidney Failure Treatment Renal Resource Centre Also in Arabic, Chinese, Greek, Italian, Vietnamese
- Kidney failure treatment options Renal Resource Centre Also in Arabic, Chinese, Greek, Italian, Vietnamese and English
- Kidney Failure – Multiple Languages Arabic (العربية), Hindi (हिन्दी), Somali (af Soomaali), Bosnian (Bosanski), Japanese (日本語), Spanish (español) Chinese - Simplified (简体中文) Korean (한국어) Tagalog (Tagalog) Chinese - Traditional (繁體中文) Portuguese (português) Vietnamese (Tiếng Việt) French (français) Russian (Русский) - provided by Medline Plus (US National Institute of Health)
- Life Options International kidney patient resource. Also in Spanish
- Medicine Line 1300 888 763 Independent pharmacist advice (9am-6pm M-F)
- Prostate Problems-Better Health Translation Directory Also in Chinese, Croatian, Greek, Italian, Macedonian, Polish, Serbian
- Renal Info (Baxter) Multicultural support and resources for people with kidney disease
- Renal Info - Kidney Directions Global multilingual references on resources for people with CKD
- VIC Health Translation Directory Links to multilingual health resources from government departments, peak health bodies, hospitals, community health centres and welfare agencies
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KIDNEY AND URINARY CONDITIONS
Anaemia
- Anaemia Kidney Health Australia Fact Sheet
Cancer
Cardiovascular
Diabetes
Kidney stones
Polycystic Kidney Disease (PKD)
Other Kidney health problems - rare conditions, resources, Message Boards and Support Groups
- Alport Sydnrome Genetics reference page - National Institute Health, USA
- Alport Syndrome Brochure - Renal Resource Centre NSW
- Amyloidosis Info and Support Groups - Amyloidosis, Myeloma, Waldenstrom's Macroglobulinemia
- Anatomy: Diagram relating to renal obstruction during pregnancy
- Arthritis Australia Lupus, Scleroderma and related conditions: Arthritis freecall infoline 1800 104 100
- Centre for Genetics Education Australia
- ChIPS Support program for 12-25 year olds living with chronic illness, which offers valuable support to those involved ( Royal Children's Hospital, Melbourne)
- Chapter 8 - Other health problems from KHA's Living with Kidney Failure 7th edition
- Fabry's Disease Wikipedia information
- Fabry's Disease USA - overview, resources, support group
- Fabry Support Group Australia Lots of information on this rare genetic problem with inks to international groups, websites and information
- Fibromuscular Dysplasia USA - education resources, support group and chatline
- Foundation for IgA Nephropathy (Canada) Berger's Disease, IgA nephritis & IgA glomerulonephritis
- Genetic and rare kidney conditions Lay advocacy and support groups, information on genetic conditions /birth defects - University of Kansas Medical Centre
- Glomerulonephritis Brochure Renal Resource Centre NSW
- Health Insite: Chronic Conditions and Injury Australian Government health search engine
- Health Insite: Kidney and Urinary Tract Health
- International IgA Nephropathy Network
- IronTherapy.Org (ITO)
- Kidney Cysts KHA Fact Sheet
- Lupus - About Lupus *Living Well - Doing What You Can to Keep Your Kidneys Healthy, *Healthy Eating Tips for People with Lupus, *Lupus Treatments (S.L.E. Lupus Foundation NY USA)
- Lupus - The renal (kidney) system USA website
- Lupus Support Groups Australia Some Lupus/Schleroderma support group contacts in Australia
- Lupus Support Groups global via Yahoo Groups
- Medullary Cystic Kidney Disease Better Health Channel - Australia
- Medullary Sponge Kidneys Better Health Channel - Australia
- MGN (Membranous Glomerulonephritis)
- Membranoproliferative Glomerulonephritis 11 Dense Deposit Disease
- MPGN database survey Help the University of Iowa - fill out survey for MPGN Types I, II, and III
- Nephrotic Syndrome & Focal Segmental Glomerulosclerosis
- Nephrotic Syndrome WebMD e-medicine, also features more unusual kidney problems
- Potter's Sydnrome aka Potter syndrome, Potter's disease, Potter facies, Potter's facies, Potter sequence, oligohydramnios secondary to renal disease and bilateral renal agenesis
- Restless Legs Syndrome - Just the Facts also in Spanish
- Restless Legs Syndrome Australia Info on RLS-diagnosis, treatment, and support
- Restless Legs Syndrome Foundation (USA)
- The Cain Foundation for BMS All about Branchio-oto-renal Syndrome
- Understanding and Preventing Renal Bone Disease Renal Resource Centre Australia
- Wegener's Granulomatosis Overview of symptoms, treatment and research NIH (USA)
- Wegener's Granulomatosis Association
Urinary problems
Urinary health - for men and their families
top Page updated 26 July 2010 |