HOME  |   SITE MAP  |   CONTACT US  |   STAFF  |   LOGIN

ENLARGE TEXT Normal Font Size Large Font Size

Send to a friend! 

Make my home page 

          SEARCH   
 
 



info@kidney.org.au

 
  

 
Share
 
Kidney Health Programs

We have proudly provided below a brief outline of our Kidney Health Australia Services and Programs to present some of the important work we do within our Australian kidney community. However we encourage you to email health@kidney.org.au to give us suggestions on how we can further assist you. 


Our Kidney Health Information Service

A freecall telephone support service for people with,
or affected by, kidney and urinary disease


24 hr relay call numbers - TTY/Voice 133 677 - Speak & Listen (SSR) 1300 555 727For hearing impaired - TTY/Voice 133 677 | Speak & Listen (SSR)

TTY (Teletypewriter service for hearing impaired)  We recommend callers who are deaf or have a hearing or speech impairment use the National Relay Service - see www.relayservice.com.au trained operator helps you connect to Kidney Health Australia and will stay online to ensure you can communicate effectively with our operators to obtain the information you need. An Australian Government Initiative.

What is Kidney Health Information Service (KHIS)?  This is Kidney Health Australia’s telephone support service for people living with and/or affected by Kidney and urinary disease. This is a freecall service offered throughout Australia. This service is utilised by the general public, carers, concerned relatives/friends, nurses, social workers, dieticians, occupational therapists, rehabilitation counsellors and students.

How does KHIS work  All Kidney Health Information Service (KHIS) calls to this service are answered by a trained receptionist. Then a message is sent to one of our Health Services Managers, who is a trained renal nurse or social worker.

What does KHIS process your query?  Calls are initially answered by a trained receptionist (you will first be asked to listen to a heath disclaimer announcement to inform you about the process to register your call). A message is then sent to a Health Services Manager. Your call is returned as soon as possible and information is provided which is relevant to your enquiry. If for some reason our Health Manager is unable to reach the caller, the Health Manager will make a maximum of three attempts over a 48 hour period to respond to your request. It is important to note that this service does not provide specific medical advice. Should the caller require further information or education, they are advised to consult their doctor or health professional.

What types of enquiries are dealt with on KHIS?  The most popular calls received are in regards to diet, transplantation, disease states, chronic kidney disease and dialysis. There are also a number of enquiries in relation to practical advice on topics such as holidaying on dialysis or find information on insurance. Some callers wish to find out more about a particular disease state or condition, or are seeking advice in regards to their rights as a patient.


Consumer based programs

Kidney Connect Program - Want to connect with others like you?  Kidney Health Australia has a number of initiatives which provide you with support from people going through similar experiences to you. This program links you directly with someone who you can talk to about your experiences with kidney disease and listen to their journey. Ask our trained Health Services Managers for more information on what support services are available for you.  

Australian Holiday Dialysis Konnections  This is Kidney Health Australia's initiative to connect individuals on dialysis in different locations in Australia - you may be able to arrange a vary your routine a little, travel interstate for a special occasion, or enjoy a well earned holiday. This program allows you to identify possible travel options - we facilitate the exchange of contact information with another registered AHD Konnectee - you then liaise directly with this person to identify a ‘chair swap’ for the period you request. Refer to our Dialysis Unit Guide for more information on where a local unit is based in Australia and other dialysis unit contact information.

Your Consumer Participation Councils  These Councils have been established in each state to identify, and are informed of, advocacy issues affecting individuals living with kidney and urinary tract disease, their families and carers and all state Councils report to a National Consumer Council who manage these issues on behalf of our 'kidney' community.

Use our Kidney Blog and YAP Space Forum and Chatrooms  Speak out and be heard and share with others your experiences with CKD and problems. A problem shared is halved.

The Australian Kidney Patient Charter  Our National Consumer Council prioritised twenty four Principles of Optimal Care for Australians with CKD and clearly sets out your rights as an Australian with chronic kidney disease.

Kidney Camps, Capers and Holiday Activities  These programs are organised for Kidney Kids, their families or carers and adults who have kidney disease, are on dialysis, and/or have received a transplant. 

Kidney Kids Camp - For children aged between 7 and 17 years, who are affected by kidney disease. It is an annual five-day camp conducted in Queensland, South Australia, Victoria and Tasmania on a 12–18 month rotational basis with the aim of national implementation in the near future.

Kidney Capers - An action-packed daytime fun-filled program to give children and parents/carers with an opportunity for social networking and a welcome break from their normal routine. Held for the first time in 2002, this program now attracts up to 60 participants in each State. To find out more about your state's Kidney Capers, contact your local Kidney Health Australia Branch Office.

WA Adult Holiday Dialysis Program - Families applying, who fit this criteria receive an annual week's holiday break in the beautiful south-west town of Busselton, Western Australia by using a temporary dialysis unit.

Our Kidney Health Education Program  All of our education resources providing kidney health information - brochures, fact sheets and the various publications, booklets or kidney health advertorials which we produce for patients and health professionals are all evidence-based. These resources are produced to give precise, up to date information and prevention messages on a wide range of kidney related conditions and treatments.

Resource Order Form  Use this order from to order any of our resources - booklets, brochures or publications etc, or call our Kidney Health Information Service 1800 4 KIDNEY (1800 4 543639 ).

Forums - for kidney patients, carers and health professionals  These various Kidney Health Forums aim to provide education and support to people living with kidney disease, kidney donors and recipients, their carers and family members. Some Forums are arranged specifically for health professionals.

Family Accommodation Initiative - Transplant Housing (FAITH)  This program provides fully furnished accommodation for Western Australian families who need to travel to Perth for living kidney transplants. Since the launch of FAITH in Western Australia, Kidney Health Australia has provided numerous rural families with much needed lengthy stays accommodation, which they could not otherwise afford. The FAITH Progam has also assisted families travel from Victoria and Queensland to participate in kidney transplants in Western Australia.

Patient Self-Management Program  This program aims to raise the quality of life for people living with kidney disease, kidney donors and recipients, their carers and family members through the provisions of information and essential skills and support during each phase of the health and wellness pathway.

Newsletters and Bulletins  Call your Kidney Health Australia state office if you would like to join our Health Professionals or Consumer newsletter mailing lists; alternatively join us online at www.kidney.org.au

Organ Donation Awareness  Kidney Health Australia actively encourages Australians to become organ donors but we do not manage organ and tissue donation registration nor the retrieval and transplantation of organs. We refer all enquiries to either the Organ Donor Registry or the relevant state organ donation agencies. 


Programs for Health Professionals

Kidney Check Australia Taskforce (KCAT)  Our primary care education program of Kidney Health Australia. It focuses on the education of health professionals – general practitioners, practice nurses, pharmacists and other allied health practitioners. It is the only Australian chronic kidney disease (CKD) program designed specifically for general practice. It runs under the guidance of an expert KCAT committee, comprising of leading
nephrologists, GPs, renal nurses and consumers. KCAT has a fully accredited suite of teaching modules developed by KCAT Committee members and other experts. KCAT also provides on-line opportunities for health professionals, and has produced a very popular Management of CKD in General Practice booklet.

Research & Grants Scholarship Program  Kidney Health Australia coordinates and manages an ongoing medical research program. To date, Kidney Health Australia has provided close to $30 million for medical research programs in hospitals and universities.

The Caring for Australians with Renal Imparments - CARI Guidelines seeks to improve the quality of care and outcomes for patients with kidney disease in Australia & New Zealand. CARI offers clinical practice guidelines based on the best available evidence and effectiveness. An evidence-based project from the Council of the Australian and New Zealand Society of Nephrology and Kidney Health Australia


Global Kidney Health Programs

International Federation of Kidney Foundations

The Inernational Federation of Kidney Foundations - the IFKF is a not for profit organisation made up of over 60 Council Members, representing kidney foundations, patient groups and organisations in the global 'kidney' community.

Kidney Health Australia has been a proud Council Member of the International Federation of Kidney Foundations (IFKF) since its creation in 2000, and has done much to help it grow since. This involvement has enabled both organisations to benefit from and contribute to, the experiences of the international global kidney community.

Some of our executive staff have served as IFKF Officers and Board Members and the IFKF Secretariat has been hosted in South Australia for over ten years.

Updated 1 May 2010

Health Programs
 TitleDescriptionSize
Kidney Health Australia Services and ProgramsOverview of our Health and Medical Programs213.58 KB
 
 
 
  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: Aug 2010.