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KIDNEY HEALTH AUSTRALIA SERVICES AND PROGRAMS

We proudly present a brief outline of our Kidney Health Australia Services and Programs to set out some of the important work we do within our kidney community. We would be interested in any suggestions for programs which could further assist our kidney community. Please email health@kidney.org.au with your comments.

Kidney Health Australia's Mission is to advance the public health agenda through awareness, detection, prevention and management of kidney disease in Australia and our region. Our work helps to raise the quality of life for people living with kidney disease, kidney donors and recipients, their carers and family members through the provision of information, essential skills, education and support during each phase of the health and wellness pathway.


OUR KIDNEY HEALTH INFORMATION SERVICE

National Relay Service www.relayservice.com.au

NRS is a Government initiative to assist callers who are deaf or have a hearing or speech impairment.
Note: Callers should quote 1800 4 54363 to connect, as '9' is silent for this purpose

TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555 727 I Online www.iprelay.com.au/call/index.aspx

What is Kidney Health Information Service (KHIS)?
We provide a free phone support service Australia wide for people living with and/or affected by kidney and urinary disease. You may also email your query to health@kidney.org.au.  Calls are answered by a trained receptionist (you will listen to a heath disclaimer to inform you about the process to register your call). The simple details of your query is sent to a Health Services Manager and your call returned. If for some reason our Health Manager is unable to reach the caller, a maximum of 3 calls over a 48 hour period will be made to respond to your request.

It is important to note this service does not provide specific medical advice. Should the caller require further information or education, they are advised to consult their doctor or health professional.

What types of questions are dealt with on KHIS?
Most popular calls taken are on diet, transplantation, disease states, chronic kidney disease and dialysis. Some callers ask for practical advice on topics such as travel on dialysis, or information on insurance or advice on their rights as a patient.

Our websites www.kidney.org.au and www.kidneycancer.org.au 
Our websites provide educational resources to support Kidney Health Australia's Mission -  to advance the public health agenda through awareness, detection, prevention and management of kidney disease. We are a key reference point for kidney health education information in Australia. Both of our websites rank very highly and we are pleased that members of our kidney community provide significant statistics of visitors to our website, from both the Australian and global communities. 

Website Authorship - for all details about our kidney health information resources and authorship, refer to Legal and Copyright. Our health education resources are evidence-based and referenced for our websites: www.kidney.org.au and www.kidneycancer.org.au

Our Kidney Health Australia - Website Advisory and Editorial team

This website is certified by Health On the Net Foundation. Click to verify.

This site complies with HONcode standard for trustworthy health information: verify here.

 

We can help you become an expert patient
Many patients become 'experts' as they learn a set of life skills to cope with and manage their chronic conditions. As a discerning patient learn the elements of how to locate and refer only to high quality evidence-based education. Our websites should be your first reference point, as we do the work for you. Increasing evidence shows that with proper support, people with a chronic condition can take the lead in managing their condition which improves their health, quality of life, and reduces incapacity.

Refer to Using the web to find out how to research health information online. Our websites accent the information we present, by linking to relevant external organisations which provide high quality resources for your reference, to enhance and compliment the health education information we produce. See our Recommended Weblinks.


OUR KIDNEY CONNECT PROGRAM

Kidney Health Australia has a number of initiatives which provide you with support from people going through similar experiences to you. This program links you directly with someone who you can talk to about your experiences with kidney disease, and they will tell you of their journey. Ask our trained Health Services Managers for more information on what support services are available for you in your area.

Australian Holiday Dialysis Konnections - Chair Swap Program
An initiative to connect individuals on dialysis in different locations in Australia - you may arrange to travel interstate for a special occasion, or enjoy a well earned holiday. This program allows you to identify possible travel options - we facilitate an exchange of contact information with other registered dialysis patients who wish to swap in a similar manner, to personally discuss a ‘chair swap’ for the period you request. If considering travel with any chonic condition, you should refer to our webpage Dialysis and Travel before you start planning.

The Australian Dialysis Unit Guide (The DUG)
This online directory provides accurate location and contact details for public and private Renal and Dialysis Units in Australia. It is useful for referrals, to help with relocation or travel, or arrange short term stays.

Consumer Participation Councils
Established by Kidney Health Australia across Australia, our State Councils report to a National Consumer Council to identify and be informed on issues affecting individuals, their families and carers, living with kidney and urinary tract disease), and advocate and manage these issues.

Family Accommodation Initiative - Transplant Housing
Our F.A.I.T.H. Program provides furnished homes for families who need to travel to Perth for live kidney transplants - accommodation they may not otherwise afford.

Kidney Health Education Forums for kidney patients, carers and health professionals
Provides education and support to people living with kidney disease, kidney donors and recipients, their carers and family. Some Forums are arranged specifically for health professionals.

Our Kidney Blog and YAP Space - Forum and Chatrooms
Our onsite 'social networking' areas for our kidney community. Share with others your experience with CKD.


OUR CAMPS, CAPERS AND OTHER HOLIDAY ACTIVITIES

Camps, Capers and Holiday Activities
Kidney Health Australia's Recreation Camps are organised for Kidney Kids and adults who have kidney disease, who are on dialysis and/or who have received a transplant

  • Kidney Kids Camp For children aged between 7 and 17 years, affected by kidney disease
    An annual 5 day camp conducted in Queensland, South Australia, Victoria and Tasmania on a 12–18 month rotational basis with the aim of national implementation in the near future.
  • Kidney Capers and Adult Holidays
    Action-packed daytime fun-filled program to give Kidney Kids and their parents/carers an opportunity for social networking and a welcome break from normal routine.
    • Our WA Adult Holiday Dialysis Program
      Families applying, who fit the set criteria, receive an annual week's holiday break in beautiful south-west Busselton, Western Australia using a temporary dialysis unit.

To find out more about any of these programs, contact your local Kidney Health Australia Branch Office or ring our KHIS line - 1800 4 543 639 for more information.

Kidney Connect
Our umbrella support program for people with kidney disease, kidney donors and recipients, their carers and family members. It consists of the following programs:

  • Kidney Care Program Offers trained Kidney Care volunteers and coordinators conduct a Dialysis Support Service, which provides support and companionship to people undergoing haemodialysis treatment in renal units throughout Australia.
  • Peer Support Program For people living with kidney disease, kidney donors and recipients, their families and carers. This national telephone and/or email peer support service connects people in need with trained Peer Support Volunteers who have similar experience.
  • Self-Management Program Provides members of our kidney community with information, essential skills and support during each phase of the health and wellness pathway. See Living with Kidney Failure.
  • Patient/Carer/Health Education Forums are held across Australia to provide education and support to people living with kidney disease..

OUR KIDNEY HEALTH EDUCATION PROGRAMS

All kidney health education resources produced by our Health and Medical teams are evidence-based. All of the brochures, fact sheets and our publications, booklets and kidney health advertorials are produced to give precise, up to date information and prevention messages, on a wide range of kidney conditions and treatments. Use our special Resource Order Form to order any of our resources, or call our KHIS - 1800 4 KIDNEY -1800 4 543639.

Why join our Kidney Community?
Sign up for our new monthly Kidney Community newsletter. Email full contact details to community@kidney.org.au  Once registered, you will receive a monthly newsletter allowing you to access to:

  • Information and invitations to KHA's education and support activities
  • Updates on medical research in kidney disease, on clinical trials and research opportunities
  • Information on advocacy opportunities and government relations issues
  • Information on community and corporate events held by Kidney Health Australia
  • Personal profiles on key identities in our kidney community.

Advocacy/Consumer Participation
Consumer Advocacy Councils have been established in each state. Your National Consumer Council identify and are informed of issues affecting individuals living with kidney and urinary tract disease, their families and carers. See Consumer Participation and You Can Help?

Organ Donation Awareness
Kidney Health Australia actively encourages Australians to consider organ donation but we do not manage organ and tissue donation, registration, or retrieval and transplantation of organs. We refer enquiries to the Organ Donor Registry, DonateLife or other relevant agencies



OUR PROGRAMS FOR HEALTH PROFESSIONALS

KHA - CARI Guidelines (Caring for Australians with Renal Impairment) 
Offers evidence based clinical practice guidelines based on the best available evidence and effectiveness.

Kidney Check Australia Taskforce (KCAT)
Our primary care education program for health professionals - GPs, practice nurses, pharmacists and allied health practitioners is the only Australian chronic kidney disease program designed specifically for general practice. KCAT has a fully accredited suite of teaching modules, developed with experts in their field. These workshops are provided free to Divisions of General Practice around Australia. Each module is designed to assist with developing skills in the detection and management of CKD. Our Chronic Kidney Disease (CKD) Management in General Practice booklet

Medical Research Funding Program
Kidney Health Australia manages an ongoing medical research program which has provided well over $30 million for medical research conducted in hospitals, institutions and universities in Australia.


International Federation of Kidney FoundationsCONNECTIONS TO THE GLOBAL KIDNEY COMMUNITY

The International Federation of Kidney Foundations  (IFKF)  www.ifkf.net
A not for profit organisation made up of many Council Members representing kidney foundations, patient groups representing our 'kidney' community across the world.

Kidney Health Australia has been a proud Council Member of the IFKF since its creation in 2000 and has done much to help it grow since. Some of our executive staff have served as IFKF Board Members. The IFKF Secretariat had been hosted in Australia for over 10 years and is now located in Amsterdam.

7th World Kidney Day - Thursday 8 March 2012
'Kidneys for Life' promoting organ donation and transplantation

World Kidney Day is held annually, 2nd Thursday in March - a collaborative project of the IFKF and International Society of Nephrology (ISN). For more info and resources, check global website www.worldkidneyday.org or email info@worldkidneyday.org

Go to our own Kidney Health Australia World Kidney Day webpage for local information.


Health Programs
 TitleDescription
Kidney Health Australia Services and ProgramsOverview of our Health and Medical Programs
 
 
 
  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: Feb 2012.