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I Youth Links I Kidney Kids Camps I Kidney Capers and holidays
Special fun things and books for Kidney Kids! Share this page with your parents, family and friends.
Onsite KHA recommended web pages
Using the web and Kidney Glossary - valuable tools for your school and personal health research. Explore our website to find lots of helpful evidence based education, for you and your friends. Some web topics for school projects are: Drink Water Instead! I How Our Kidneys Work I Youth Links
Kidney Kids can have amazing 'Wishes' come true!
Make-A-Wish Foundation of Australia grants cherished wishes to kids and young people with a life-threatening illness. Parents of Kidney Kids should apply - child's nephrologist must confirm if child's illness is life-threatening.
Medically eligible children (under 4) are entitled to a “Wish Box” of toys. Contact Christina Kelly, Community Liaison Officer on 03 9426 0777 or firstname.lastname@example.org
Educational - but interesting as well as fun
- DaVita Highly recommended USA site - CKD, emotional health and wellbeing - sexuality, anger, depression, holiday blues, caregiver stress, sleep, positive thinking etc
- iKidney: Kids and Parents Recipes for kidney kids and their families - heaps of info on many subjects
- Hair, nails and Chronic Kidney Disease DaVita
- Kidney Kids Cooking Cook power food that your kidney will love - USA
- Kids First for Life Tips on just about everything to do with kids and life, health and hospital! UK
- Kidney Health Note especially What's the deal with Dialysis? and Chronic Kidney Diseases In Spanish and via audio files and Teens Health
- KidsKare Info on organ donation and transplants, plus colouring stencils and other fun USA
- Kidney Kids Cooking Have fun with cooking power food that your kidney will love - USA
- Kidney Kids Fun KKs cartoons to colour and other fun info NZ
- Kidney Kids Health Parents - Kids and Teen section USA
- Kidney Transplantation - an explanation for kids Medzkids
- What kids need to know about Kidneys Info for Kidney Kids, Children's Hospital - Colorado USA
More fun and learning stuff
Free call service for people with, or affected by, kidney and urinary disease or email KHIS@kidney.org.au
National Relay Service - www.relayservice.com.au
For those with hearing or speech impairment. Use service to connect to KHIS line - quote 1800 454 363
TTY/Voice 133 677 | Speak & Listen (SSR) 1300 555 727 | www.iprelay.com.au/call/index.aspx
Kids Helpline 1800 551 800 - 24 hrs every day www.kidshelp.com.au
Fun friendly website - place where you can get help and connect. What is Kids Helpline?
Young people (5 to 25) can phone, email or chat online with a counsellor.
As a young person with kidney failure, you are invited to join Livewire!
The safe online place for young people aged 10 to 20 years old, living with a serious illness, chronic health condition or disability, and their siblings. Free for anyone 10 to 21, with serious illness or disability.
Our fully-moderated chat room provides members with the opportunity to connect and share experiences with other young people with similar conditions, from all over Australia! In the chat room, these adolescents encounter an opportunity for friendship, fun and connections. We also have heaps of chat guests, too!
Livewire also provides awesome articles and videos; the groups discussion pages; the opportunity to blog; and the ever popular Livewire Music Player, featuring all the latest hits, as well as the classics! Our regular competitions also give members the opportunity to score themselves some epic prizes. Register at www.livewire.org.au * call 1300 727 827 * email@example.com
RANGE OF PUBLICATIONS FOR KIDNEY KIDS AND THEIR FAMILY
Kidney Kidnections Cost: $25 inc postage
More than just a story book, it is an account of experiences of children and parents struggling to come to terms with a diagnosis of kidney disease. Simone Eyles, a parent of a Kidney Kid, produced and developed this book presenting real stories of 18 Australian families with kids affected by kidney disease. She presents inspirational, personal and uplifting insights into their journeys, supported by beautiful photos and simple facts on kidney disease, how our kidneys work and a glossary of easy to understand terminology.
Order this 80 page colour book (proceeds support our fight against kidney disease) using or Call 1800 454 363 to order, or email firstname.lastname@example.org
Moe's Sick Kidneys
Cost $10 each (inc postage)
Moe takes his friend Milko on an adventure to tell him what it’s like. Milko thinks Moe is very brave having sick kidneys, having his blood cleaned and taking care of himself. This book is a great story and activity book for kids who have sick kidneys and friends around them.
Collaborative project: Kidney Health Australia and University of South Australia - prepared by final year occupational therapy students, Veronica Edwards and Catherine Tonks.
Where's your kidneys Mum?
FREE - postage & handling costs only
Call Wendy Faulder to buy a copy on 02 6244 2046 or email email@example.com
A simple story for kids of parents with chronic kidney disease.
Starting dialysis is a devastating challenge for anyone and has an effect on all the family. Kids in particular find this very hard to understand. This charming book uses delightful drawings, to help tell this story to kids involved, which makes it easier to set out day to day practical problems a family may face, when a parent starts dialysis.
This book explains why dialysis helps the kidneys do their important work in the body, so kids better understand basic issues related to dialysis and kidney failure. View animations: how our kidneys work * how dialysis works with your child - these are excellent education resources which can support this book's message.
Read excerpt from Where's your kidneys Mum? example of content.
Funds raised are donated to
Kids Companion on Kidneys
Free Kidney Health Australia publication
Tells it 'how it is' to be a kid with CKD, on dialysis waiting for a transplant and how different and difficult life can be when you can only eat certain foods and drink limited fluid and have dialysis regularly to live. Support sheets can be printed when needed: Family friends I Important contacts I Tablet timetable
Snap's Kakadu Club CD/DVD - First Steps
"Billy Kidney's Healthy Fun Show" CD/DVD
Part proceeds from sales go to Kidney Health Australia
Kids (3 to 13) learn about their kidneys and other fun stuff. Lindi's new album features tracks from her shows which focus on ‘wholesome’ but fun themes. Great website too at www.snapskakaduclub.com.au
Lindi's fun and entertaining characters teach good health, confidence, being aware of the world, social wisdom, stranger danger, how to handle bullies and reinforces positive life skills.
Ventriloquist Lindi Jane is our special Kid's Ambassador
and donates her time to entertain our Kidney Kids at our
Kidney Camps, Kidney Capers and other events.
Billy Kidney's Health Tips are wise:
* Keep fit -be active
* Drink plenty of water
* Eat lots of fruit and vegetables
* Avoid take-away food
* Dance run hop swim skip - as you like
* Play sport outside often with friends
* Be happy and healthy
Click on this YouTube video to listen to 'Billy, Billy, Billy the Kidney...... on this album.
You'll love it - it is very catchy.
There's No Such Thing As A Silly Question
Excellent and free publication
Practical guide and resource for Australian families, to assist parents of children with chronic illness, disability, mental illness, or a life-threatening illness, find their way around the often complex medical and community systems.
For Kidney Kids, their siblings and family
KidneyHealthAus - Kidney-Ed TV on YouTube
Reviewed videos and animations which are educational and interesting for both adults and kids
Collection of clips reviewed by our medical and health team. Quality videos, fascinating animations, health education videos, patient stories and various topics grouped into playlists. Recommended for project work.
View our Kidney and urinary system playlist first, then others you may be interested in.
CAMPS AND ACTIVITIES FOR KIDNEY KIDS
If you would like more information about our programs for Kidney Kids, their families and siblings, or our new young adult programs, call Stephen Anderson - National Kidney Kids Camp Co-ordinator, on 1800 454 363 or firstname.lastname@example.org
Our National Kidney Kids Camps
Camps are held every 18 months with the goal to provide an environment where entertainment and structured adult-supervised activities are organised for Kidney Kids with access to medical treatment. Kidney Kids develop informal support networks and interact with peers with similar health issues.
National Kidney Kids Camp - Mt Eliza, Victoria in April 2012
There are several videos from this camp which tell the stories of awesome adventures and fun
at Kidney Kids Camp 2012. Also check out photos from Kidney Kids Camp (click link to download via Flickr)
Kidney Kids Capers
Australia wide day activity programs for school-aged children with kidney disease, their siblings of all ages, families and carers. Download Kidney Kids Capers photo board - big thank you to our volunteers!
Updated 4 November 2013