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KIDney Kids


Kidney Kids Camp 2010 - - Camp Rock!

The awesome fun begins Monday 27 September 
and camp rocks till Friday 1 October 2010 
Venue - Belair, in South Australia

For more info phone our Kidney Health Information Service on 1800 4 Kidney (1800 4 543639) and ask for Sue Bruveris, our Kidney Kids Camp Manager

National Kidney Kids Camps are held every 18 months with the goal to provide an environment where entertainment and structured, adult-supervised activities are available for Kidney Kids with access to medical treatment. Camp provides the following benefits as it provides an environment where entertainment and structured, adult-supervised activities are available for Kidney Kids with access to medical treatment, opportunities for Kidney Kids to develop informal support networks and interact with peers with similar health issues, respite for families and carers.

 

Kidney Kids Capers and holidays 
Held annually across Australia - a daytime activity program for school-aged children with kidney disease and their siblings. We organise these fun holiday activities with the aim of providing people of all ages with kidney disease, their families and carers, an enjoyable break from normal routine. For further info on events within your state call our Kidney Health Service (KHIS) Infoline 1800 4 KIDNEY (1800 4 543639).


Other fun and info especially for our Kidney Kids

Special publications and other fun things to know about!

Moe's sick kidneys  
Moe takes his friend Milko on an adventure to tell him what it’s like. Milko thinks Moe is very brave having sick kidneys, having his blood cleaned and taking care of himself. A great story and activity book for kids who have sick kidneys and friends around them.

Moe’s sick kidneys is the result of a collaborative between Kidney Health Australia and the University of South Australia that was undertaken by two final year Occupational therapy students from the University of South Australia, Veronica Edwards and Catherine Tonks, as part of their final year studies.

Cost of book - $10 each (inc GST and postage)

There's No Such Think As a Silly Question 
A practical guide for Australian families living with a child with chronic illness, disability, mental illness or a life-threatening condition. The aim of this book is to assist parents of children with chronic illness, disability, mental illness, or a life-threatening illness to find their way around the medical and community systems. There’s No Such Thing As A Silly Question will help parents identify and access the help and support they think is appropriate for them, their child and their family. It also aims to provide insight into how parents can care for themselves and their families at a time when personal resources may be stretched to the limit.

Victorian version Produced by InterACT and published by Very Special Kids in partnership with the Gandel Charitable Trust.  Your free hard copy is available from interACT or click link to download.

South Australian version Adapted from Victorian version with support of health professionals coordinated by Anna Malden, Chronic/Complex Care Discharge Clinical Practice Consultant, Patient Flow, Women’s & Children’s Hospital. Download free copy via link or phone 08 8464 7900 to order a copy.

 

Other Important Resources for Kidney Kids

Kidney Chat Newsletter
See the latest issue  # July 2010   I   #9 December 09  I   #8 August 09  I  #7 March 09 I other issues below 

Kids Companion on Kidneys a free KHA publication
This book tells it 'how it is' to be a kid with CKD, on dialysis, waiting for a transplant. It describes how different and difficult life is when you can only eat certain foods and drink limited fluids, etc and have dialysis regularly to live. The support sheets for The Kids Companion on Kidneys Family friends  I  Important contacts  I  Tablet timetable are available for printing for your journal, at any time.

Facebook profile -Kidney Health Australia
Come join the fun with our Facebook friends (238 and climbing daily) - send us a message to become a Facebook friend at www.facebook.com/KidneyHealthAustralia

YouTube profile - KidneyHealthAus
Find us at www.youtube.com/user/KidneyHealthAus and add us as a friend. We have lots of playlists and video selections of interest to anyone who wants to learn more about their kidneys, or who wants to find out more about treatment and chronic kidney disease - start with our playlist selection on Kidney and urinary systems in the body.

Kids Helpline 1800 551 800  (24 hrs every day)  
www.kidshelp.com.au is a fun and friendly website with lots of info, a place where you can get help and connect.  What is Kids Helpline? Young people (5 to 25 year) can phone, email or chat online with a counsellor!
 

Kidney Kids can have amazing 'Wishes' come true! 
Make-A-Wish Foundation of Australia has been granting cherished wishes to kids and young people since 1985. They bring magic and joy to kids with a life-threatening illness. If you are a Kidney Kid, ask your parents to help you apply to Make-A-Wish® Australia. To be eligible the child's treating nephrologist needs to confirm the child’s illness is life-threatening. Medically eligible children aged under 4 years are entitled to a “Wish Box” full of age-appropriate toys. Phone Christina Kelly, Community Liaison Officer, on 03 9426 0777 or email Chris at  c.kelly@makeawish.org.au


Kidney Kids, you are invited to join Livewire
A supportive place for kids, teens and families to hang out, connect, share experiences, creatively express themselves and know they are not alone.
Membership is free for any 10 to 21 year old living with serious illness or disability.

Register at www.livewire.org.au phone 1300 727 827 or email info@livewire.org.au and see their YouTube stories at www.youtube.com/user/LivewireCommunity

KHA Youth Links 
Our highly recommended webpage Youth Links takes you to a world of FUN and educational kidney info suitable for youth. Show your parents - they have kidneys too! You may also find
Recommended Weblinks an excellent page for fun whilst learning.

KHA website pages to note - Using the web and Kidney Glossary - are valuable tools to assist in your research for any project you are doing, or just for interest. Take a look around our website, as we offer helpful evidence based information for you and your friends. Show them how our kidneys work and view how dialysis works!


National Kidney Kids Camp 2009 LOGO

National Kidney Kids Camp 2009 

April 2009 - Nth Palm Beach on the Gold Coast, sunny Queensland
Over 60 Kidney Kids joined in the fun of this Camps’s theme, prompted lots of special treats and surprises including; Polynesian dance and percussion sessions and friendly tribal team challenges - raft building, catapulting, bouldering and pool games and an action packed day visiting Dreamworld. See action shots from camp to give you a personal understanding of the impact of this holdiay camp.

Kidney Kids Camp Diary - A week in the life of a Kidney Kid Camper

DAY 1 - Tuesday 14 April 2009          

'Mayday, mayday!'  The Big RED airline reported a missing aeroplane somewhere in the South Pacific after a freak tropical storm. On crash landing, local natives were reported to have found the passengers and crew of the LOST aeroplane – location unknown! Aloha!  The friendly natives looked after all stranded passengers. After they unpacked and settled into their huts we prepared for a week of activities packed full of fun. The children explored the new land called Tallebudgera with all their new and old friends. In the afternoon everyone enjoyed games together (kite building, sand sculpturing) and then welcomed by the island’s tribes.

DAY 2 - Wednesday 15 April 2009

'Beat your chest – can you hear the sound of the drums?’  After breakfast it was time for all the survivors to band together and plan their rescue and on the side, experience what this newly found land had on offer; tribal challenges, raft building, bouldering, catapulting  and lots more! After lunch the Polynesian drums were inviting as they called all the children to participate in tribal tradition and music. When the sun set, neighbouring natives gathered to partake in a Luau (feast & celebration) and celebrated with Polynesian rhythms and dance. With faces painted they put on grass skirts and listened to the Haka!

DAY 3 - Thursday 16 April 2009

‘Adventure to the other side’  Venturing deeper inland the survivors and crew searched for a new world, Dreamworld!  A whole day passed with not a worry about being LOST as all the survivors forgot where they were and enjoyed the thrills and spills on all the rides at Dreamworld.

DAY 4 - Friday 17 April 2009


‘Sound your war cry and gather your tribe for some friendly rivalry’ Back by popular demand - the traditional ‘Kidney Kids Camp Concert’. The natives helped all the bedraggled survivors summon up the strength to fight till the end as they battled the contest to be the first ones found. All the survivors were encouraged to join in the tribal traditions and making the biggest Luau yet. Were the natives friendly or just plain wild?

DAY 5 - Saturday 18 April 2009

‘SOS - LOST now found’ The survivors packed their belongings and made sure to leave no trace. The SOS signals had been spotted from above. Queen Kukana on Ruapehu Mountain had spoken -the rescue planes and vehicles were on their way and were ready for boarding. Until next we meet - Aloha!

Our Special Thanks! On behalf of our Kidney Kids and KHA we thank the following supporters: Our Co Host - Queensland Child & Adolescent Renal Services

Hospital management and staff - paediatric renal units
Monash Medical Centre, Victoria
Royal Children’s Hospital, Brisbane
Royal Children's Hospital,Victoria
The Mater Children’s Hospital, Brisbane
Women's & Children's Hospital, South Australia

Related renal services with significant contribution
Baxter Healthcare Pty Ltd
Eli Lilly Australia Pty Limited
Fresenius Medical Care
Genzyme Australasia
Gold Coast Health Services Management and Paediatric Unit
Robina Dialysis Unit, Robina Hospital, Gold Coast Health Services

Community Supporters
AAC ID Solutions
ACP Magazines Ltd
Action Printing
Corporate Express
Ego Pharmaceuticals Pty Ltd
Fuji Australia Pty Ltd
Mind Challenge
Neverfail Springwater Ltd
Pacific Magazines
Taylor Props
Woolworths Pty Ltd - South Melbourne Branch, Victoria
Yamaha Motor Australia
ZART Art

Volunteer Carers
Griffith University, School of Nursing & Midwifery and School of Medicine, Gold Coast Campus

Updated 1 July 2010

National Kidney Kids Camp - Slideshows
A special site for Kidney Kids, their family and friends
 TitleDescriptionSize
National Kidney Kids Camp 2005Memories - KK Camp in Victoria 1.34 MB
National Kidney Kids Camp 2004Memories - KK Camp Adelaide Hills SA April 2004650.00 KB
National Kidney Kids Camp 2002Memories KK Camp - Adelaide SA1.80 MB
Kidney Kids Resources
 TitleDescriptionSize
Tablet timetableThe Kids Companion on Kidneys - Support Sheet for printing10.74 KB
Important contactsThe Kids Companion on Kidneys - Print Important Contact sheet for offline reference30.56 KB
Kidney Quiz OnlineChallenge your friends - how much do they know about their kidneys. Look after your kidneys, we can't live without one!!138.88 KB
Family and friends can helpThe Kids Companion on Kidneys - Print Family and Friends Support Sheet170.21 KB
The Kids Companion on KidneysAdam and Jessica tell how it is as a kid living with kidney disease438.73 KB
KIDney Chat
Newsletter especially for KIDney Kids
 TitleDescriptionSize
Kidney Chat Newsletter Issue #10 - July 20101.86 MB
KIDney Chat NewsletterIssue #9 - December 20091.26 MB
KIDney Chat NewsletterIssue #8 - August 20091,020.97 KB
KIDney Chat NewsletterIssue #7 - March 20091.58 MB
KIDney Chat NewsletterIssue #6 - November 20085.41 MB
KIDney Chat NewsletterIssue #5 - July 20082.11 MB
KIDney Chat NewsletterIssue #4 - March 20085.95 MB
KIDney Chat NewsletterIssue #3 - July 2007598.39 KB
KIDney Chat NewsletterIssue #2 - March 20073.06 MB
KIDney Chat NewsletterFirst issue - August 2006 - for KIDney Kids! 295.66 KB
 
 
 
  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: Aug 2010.