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FAMILIES AND CARERS

Useful information for carers or families of anyone with a chronic health condition

See also our webpage Finance for advice on these subjects 

Australian Health Consumer click link
Covers issues including health financing, privacy, patient safety, quality use of medicines, clinical standards and general practice.

Carers Storybook click link
Hard copies 1800 050 009 quote product number FACSIA 0770.0801
Stories from 19 carers whose kids have a severe disability, medical condition or terminal illness. Stories told from initial diagnosis to the complexities of life day-to-day.

Supportive Care for Kidney Disease click link
Published by Sydney South West Area Health Service - Eastern Zone Renal Unit
Info for Australian patients, carers and their families about supportive care. Subjects covered in this book include: Supportive Care of End Stage Kidney Disease, Kidney Disease Symptom Management and Palliative Care, Planning for your Future, Community Services. 

Working Carers Support Gateway Project click link
Resources and support for low income and busy carers juggling caring and workplace demands. Of particular interest to isolated, regional and culturally diverse carer groups. Refer to Service Directory and Fact Sheets for finance information and advice.

Do you have an article for our Kidney News?
Email our Editor Cassandra.Bradshaw@kidney.org.au
with suggestions for articles. We would all love to hear about your path with kidney disease!

Register for our monthly Kidney Community News
Email subscribe@kidney.org.au with your request and contact details, or call 1800 454 363
Display our Kidney Community poster to spread the word.


AUSTRALIAN FAMILY AND CARER SUPPORT SERVICES

Carers Australia  www.carersaustralia.com.au Call 02 6122 9900 or fax 02 6122 9999
caa@carersaustralia.com.au or check Carers Australia - State information

If you and your family need more help at home, the following services may be help when choosing supportive care. Your health care team or Social Worker can give further information.

  • Home and Community Care Program (HACC) Australian, State & Territory Government Initiative
    Domestic assistance, personal care, professional allied health care and nursing services to support older Australians, younger people with a disability and carers to be more independent.
  • Australian Association for Families of Children with a Disability 1800 222 660
  • Home Care Service - 1800 350 792 Long term assistance for patients, carers and families - assistance with cleaning, personal care, grocery shopping and carer respite
  • Department of Veterans Affairs Home Care - 1300 550 450 Long term support for eligible veterans, war widows/widowers - help with cleaning, personal care, shopping, carer respite.
  • Commonwealth Carer Respite Centre -1800 059 059 Short term emergency support for carers - with cleaning, personal care, shopping and carer respite.
  • Commonwealth Carer Resource Centre - 1800 242 636 Referrals to services or carer kits - emotional support and counseling programs.
  • Commonwealth Carelink Services - 1800 052 222 or www.carelink.com.au
  • Telephone Interpreter Service - 13 14 50 TTY 1800 552 152 for hearing/speech impaired

Public Health and Chronic Disease

Medicare Australia - 132 011 to locate a Medicare office
TTY 1800 552 152 for hearing/speech impaired - 131 450 for interpreting service

Private Health Insurance and Chronic Disease


TRANSPORT AND OTHER SUBSIDIES

Also see KHA Finance webpage for more information.

Australian Patient Assisted Travel Scheme (PATS) state information
Isolated Patient Travel and Accommodation Assistance Scheme (IPTAAS)

Patients traveling to the city for treatment may be eligible for financial assistance for travel and accommodation expenses. This scheme has a different name in each State and Territory: See KHA Finance webpage.

Dialysis Transport Information booklets
These transport information booklets detail options that should be available in your State, to assist attending your local dialysis clinic. You may need to use a combination of services. Talk to staff at your dialysis clinic if unable to find a transport solution.

Dialysis Transport Options - ACT
Dialysis Transport Options - New South Wales
Dialysis Transport Options - Queensland
Dialysis Transport Options - South Australia
Dialysis Transport Options - Tasmania
Dialysis Transport Options - Victoria (updated December 2013)
Dialysis Transport Options - Western Australia

Patients should be advised they may need to claim in advance in some states. In some states, support is available for family members, and some states also have patient accommodation available through the cancer organisations or hospitals at reduced cost. List of available resources is available from each State and Territory cancer organisation or local hospital.

Essential Medical Equipment Payment
Annual $140 payment to people who experience additional increases in home energy costs from the use of essential medical equipment to manage their disability or medical condition. This payment must be claimed. It applies to you if you run a Home Dialysis machine in your home: refer Clean Energy Future - Q&A>> & Centrelink - Essential Medical Equipment Payment (translated versions available).

Australian Consumer Reference Weblinks

Australian CKD Renal Health Networks - Government

International Kidney Patient Associations and Charters

Regional and Rural Australia


For people with, or affected by kidney and urinary disease


Or email a query to khis@kidney.org.au

National Relay Service - www.relayservice.com.au - for those with hearing or speech impairment

Use this service to connect to our KHIS line - TTY/Voice 133 677  |  Speak & Listen (SSR) 1300 555 727 
www.iprelay.com.au/call/index.aspx 
 

Updated 11 November 2014

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  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: Dec 2014.