Consumer Participation The Kidney Patient Charter
Our publication 'The Impact of Kidney Disease and what Government should be doing about it', produced by your National Consumer Council, is a special report made on behalf of all Australians with kidney disease.
Living with advanced kidney disease has a serious negative impact on people’s quality of life. This report highlights problems in our health system which may become an even bigger problem due to our ageing population.
The report provides a unique insight into the patient's view of how patients, families and carers are treated by the current system and areas needing urgent reform.
Australian Patient Charter
Find out your rights and read Principles of Optimal Care for Australians with CKD>
Our National Consumer Council Members are state Chairs of your local state Councils and meets on a regularly to make positive change to Australia-wide issues: access to renal units and facilities, transport issues and transplantation waiting times. Council Members represent a range of groups - people with CKD, those on dialysis or with a kidney transplant, carers, nurses and kidney specialists. If you have an issue for our Consumer Council to note, or wish to join, email firstname.lastname@example.org
Kidney Health Australia has given a long term commitment to families and children affected by kidney disease, but the biggest challenge remains for us to reach those two million Australians who do not know they have early kidney damage. By actively participating in health care decisions, people can improve their health and quality of life outcomes. There is also growing evidence that the participation of health consumers in our health system leads to positive changes in services across different settings.
All State Chairs are members of your National Consumer Council
Australian Capital Territory - David Parker email@example.com
New South Wales - Evan Eggins firstname.lastname@example.org (newly elected Chair of National CC)
Queensland - Matty Hempstalk email@example.com
Sth Australia - David Roberts firstname.lastname@example.org
Tasmania - Pam Walker email@example.com
Victoria - Wayne McGlone firstname.lastname@example.org
Western Australia - Ted Russell email@example.com
Kidney Health Australia representatives
Anne Wilson - Chief Executive Officer firstname.lastname@example.org
A/Professor Tim Mathew - Medical Director email@example.com
Anne Revell - National Health Programs Manager firstname.lastname@example.org
Criteria for selection as a member of a state Kidney Health Australia Consumer Council:
- passion and commitment to make a difference in your kidney community
- ability to articulate and understand issues affecting people living with kidney and urinary tract disease
- willingness to feed back views and share ideas
- sometimes be willing to communicate thoughts publicly and politically
How can you become involved in our Kidney Community?
Kidney Health Australia's Mission is 'to promote good kidney health through education, advocacy and research". Raising awareness of kidney disease and its treatment grows particularly when people with kidney disease talk about dialysis and their lifestyle with friends and family members.
To achieve change, people must share their concerns and act together, to increase the power of their voice. Kidney Health Australia wants to know the current issues affecting people in our kidney community.
Health Issues Centre - Consumers Step Up Program
- Getting Involved: A Kit for Consumers Interested in the Consumer Nominee Program>
Join your Kidney Community - email@example.com - email your contacts details and note your wish to be added to our growing kidney community. You will receive a copy of our monthly Kidney Community News
Kidney Health Australia - Education, Advocacy, Research, Support
Comment on your Kidney Blog Register to post
Topics: Our 'kidney' community I Transport I Home Dialysis I Organ Donation I Donor Compensation
To interact in YAP Space
Kidney Blog I Forum I YAP Chat Registered users only
Updated 12 May 2014