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Consumer Participation The Kidney Patient Charter

The Impact of Kidney Disease and what Government should be doing about it produced by your National Consumer Council is a special report made on behalf of all Australians with kidney disease.

Living with advanced kidney disease has a serious negative impact on people’s quality of life. This report highlights problems in our health system which may become an even bigger problem due to our aging population.

The report gives a unique insight into the patient's view of how patients, families and carers are treated by the current system and areas needing urgent reform.

The Australian Patient Charter
Find out your rights - Principles of Optimal Care for Australians with CKD>


Our National Consumer Council Members are state Chairs of your local state Councils and meets on a regularly to make positive change to Australia-wide issues: access to renal units and facilities, transport issues and transplantation waiting times. Council Members represent a range of groups - people with CKD, those on dialysis or with a kidney transplant, carers, nurses and kidney specialists. If you have an issue for our Consumer Council to note, or wish to join, email consumerparticipation@kidney.org.au

Kidney Health Australia has given a long term commitment to families and children affected by kidney disease, but the biggest challenge remains for us to reach those two million Australians who do not know they have early kidney damage. By actively participating in health care decisions, people can improve their health and quality of life outcomes. There is also growing evidence that the participation of health consumers in our health system leads to positive changes in services across different settings.

All State Chairs are members of your National Consumer Council
Australian Capital Territory - Bill Handke act@kidney.org.au
New South Wales - Evan Eggins nsw@kidney.org.au (Chair of National Consumer Council)
Queensland - Matty Hempstalk qld@kidney.org.au
South Australia - John Griffiths sa@kidney.org.au
Tasmania - Amanda Crawford tas@kidney.org.au
Victoria - Wayne McGlone vic@kidney.org.au
Western Australia - Ted Russell wa@kidney.org.au

Kidney Health Australia representatives
Anne Wilson - Chief Executive Officer info@kidney.org.au
Anne Revell - General Manager Health Programs & Service info@kidney.org.au

Criteria for selection as a member of a state Kidney Health Australia Consumer Council:

  • passion and commitment to make a difference in your kidney community
  • ability to articulate and understand issues affecting people living with kidney and urinary tract disease
  • willingness to feed back views and share ideas
  • sometimes be willing to communicate thoughts publicly and politically

How can you become involved in our Kidney Community?  
Kidney Health Australia's Mission is 'to promote good kidney health through education, advocacy and research". Raising awareness of kidney disease and its treatment grows particularly when people with kidney disease talk about dialysis and their lifestyle with friends and family members. 

To achieve change, people must share their concerns and act together, to increase the power of their voice. Kidney Health Australia wants to know the current issues affecting people in our kidney community.

Join your Kidney Community - subscribe@kidney.org.au - email your contact details and note your wish to be added to our growing kidney community. You will receive a copy of our monthly Kidney Community News> 


Kidney Health Australia - Education, Advocacy, Research, Support

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Topics: Our kidney community  I  Transport  I  Home Dialysis  I  Organ Donation

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  Kidney Blog ForumYAP Chat

Kidney Community NewsletterA3 size poster
The impact of kidney diseaseWhat Government should be doing about it
pdf Impact of Rising Electricity Costs on Home Dialysis – CALL TO ACTION! Prepared by the New South Wales Consumer Committee
  The material contained on this site does not constitute medical advice. It is intended for information purposes only. Published by Kidney Health Australia. Privacy Policy. For information about website content please contact the National Communications Manager.

© 2008 Kidney Health Australia

Last updated: Oct 2015.